Hi NGS, I was thinking of you today. Hope everything went well with your treatment and that you're feeling OK. Xx

Morning everyone. 

greeny hoping your continuing to feel brighter with every day.  Lovely that your parents are coming to stay 

In terms of ovary removal I remember the genetics team telling me that removal before 45 added another preventive for breast cancer ( although maybe not successful in my case but they just be because the BRCA1 stacked the odds against me ) 

pippin - how are you feeling ?   Glad yesterday went smoothly.  

My treatment went well. Just a long day as had to waited several hours for my take home meds - poor planning by pharmacy at hospital 

I had reduced dose at 75% and injections now in days 3/5/7/9. Also prescribed muscle relaxants to try and help with bone pain 

feeling god so far.  Fingers crossed that continues

i also had call from doctor to say CT results clear - no evidence of blood clot and no abnormality or cancer in chest / heart / lungs which has given me huge positive boost 

so one more chemo to go   Then surgery 3-6 weeks after bone infusions every 6 months for at least 3 years and bone density scans  and letrazole for at least 10 years 

I'm meeting genetics on 6 th June for next stage of  cascade testing for my family and I'll be asking about any other tests / trials    The treatment for BRCA1 is imminent in next 5-10 years which is encouraging for my children 

Carol - lovely to hear your doing well   Good luck with next part of treatment    

wishing everyone positivity for the days ahead 

no baby as yet -   Midwife appointment today and likely being offered a sweep as 2 days overdue now   Watch this space 

xxx 

Hey Pippin,

Just wanted to check in to see how you’re doing? Really hope you’re ok. Xx

Thanks Greeny80, feeling a bit better now. I just became really anxious for a little while as everything seemed to get a bit confusing. Hopefully macmillan nurses will phone tomorrow, rather than texting and will be able to reassure me. I'm sure they must be getting fed up with me to be honest. All I wanted was a letter confirming ct scan results. Now it seems I'm getting an appointment with oncologist. Also not sure what BCN meant by they couldn't see my lymph nodes on breast scan. When I got those results over the phone, no-one mentioned that. Have a bit more energy today, but taste gone up the wall. Hope you are feeling ok and sorry for all the moaning. Xx

Morning everyone. 

just catching up on posts. 
how are you feeling now Pippin.  The waiting worrying and mixed messages can be really hard - I do think communication is key to offering reassurance.  But how good does it sound when you say in 5 weeks chemo will be over.  I agree with carol.  Chemo is the hardest stage. im doing much better this cycle.  I’ve just got 4 injections on days 3/5/7/9 - last one tonight.   The day after I feel rough with lots of bone pain but I’ve managed to keep out of hospital this time.  
I have Horrible metal taste in mouth and am off food.  Tummy feels quite delicate.  

but all this is made better by the safe arrival of our beautiful granddaughter Wrenley Robin on Saturday 1 st June at 13:58 weighing a healthy 8 lb 4 oz. 

I feel so very spoilt having them live with us.  Nanny cuddles are on tap.  

Wishing everyone a positive week 

xxx

Hi NGS, I'm feeling ok thank you. I did not get a call back from anyone yesterday regarding confirmation of ct scan results.  I've decided to forget about it for now and might speak to the person who phones for my review, before next chemo. It's so good to hear that you are feeling much better this cycle, only one more to go and you're done yay!!!

I too have had that horrible metallic taste in my mouth for the last couple of days. Last time it only lasted 3 days, so hopefully will be gone by tomorrow. I also had a funny tummy for a couple of days, but seems to have settled down now. 

Congratulations on the birth of your granddaughter and what a beautiful name. How lovely that they are living with you, enjoy all those cuddles. 

Hope everyone else is doing OK  xx

Hi Everyone,

For some strange reason i've stopped getting notifications when you post a reply on here so was starting to worry that i hadn't heard from you.It's not like you to be so quiet!...anyway just jumped on here to message again to see how you all were and then saw some missing messages!!...

The taste thing is very odd isn't it. Mine lingers for ages, i'd say around 10 days or so before it lifts...great that yours was only 3 days last time. let's hope more of the same. Sorry about all the confusion with communication, It's hard when you just want info and to know. really hope you get to the bottom of it and get some clear info soon but hope in the meantime you can try and forget about it. Hope your tummy and other side effects are ok.

NGS - Ahhhhhh congratulations! Gorgeous name and amazing that you get to give her lots of cuddles! Ah lovely, happy news. Hope Mummy and Daddy are doing well too. Glad the boneo pain seems to be a bit more manageable and no hospital visits this time! AMAZING ONLY 5 WEEKS TO GO!!!!!!!!!!!!!!!

i've got my penultimate round on Tuesday...and then last one on the 2nd July. Not the best timing as it's my daughters end of year speech day. She leaves her school after being there for 5 years so there's a big leaving party too and i know i'll be feeling a bit rubbish BUT it will mean end of chemo so i'll be celebrating inside!! I've got a meeting with a Dr next Thursday to talk about radiotherapy and how much i have to have and timing etc...feels good to be moving onto the next stage.

Hope you are ok today and Pippin hope you manage to get out for your daily walk!..and really hope the taste comes back soon both of you.

xx

Hi Greeny80,

I just saw your comment about not receiving notifications - if you haven't already you can select to 'Bookmark this thread'. You can then go to your notification settings (the bell icon at the top of the page), select 'Notifications', and then ensure that 'Replies are added to threads I'm subscribed to' is checked. You can then choose to receive an email each time a reply is added.

Hope this helps.

Best wishes,

Ben
Cancer Chat Moderator

Hi Greeny80, I've had that happen with the notifications on some occasions too. I've had a  couple of bad days with the taste thing, but think it has started to improve now. I found eating salad leaves was awful, tasted really bitter. I've decided to put the confirmation letter about results out of my mind now. They said that all was OK on the phone, so that will have to do. Ended up going yo gp this morning, due to bleeding from back passage. Turns out I have a hemorrhoid, as if there isn't enough to deal with lol! A shame that your last chemo clashes with your daughter's end of year speech. But as you say, you'll still be celebrating the end of chemo. My last one on  the 9th of July is on my wedding anniversary, so I know how you feel. Going to try and go for my walk this afternoon, as missed it this morning. 

Wishing you all a lovely day. Xx

How’s everyone feeling.  Wishing you all the best for treatment this week Greeny.  
ive still got a horrible taste in my mouth and terrible heartburn. Also feeling incredibly tired again at moment.  
I have one more week of my PICC line - it will be so lovely to have a proper shower 

I had my meeting with the genetics team last Thursday which was very positive.  I am being considered for the vaccinations to prevent recurrence and potentially pancreatic preventative testing as well.  
wishing you all well xx 

Hi NGS, sorry to hear you're still having taste issue's, so annoying. Mine seems to last for about 3 days, then goes back to normal. I feel quite tired today too, did have a busy weekend though. Went out for dinner with hubby on Friday evening, which I really enjoyed. We spent Saturday with my daughter, son-in-law and the grandkids. Went to their local fire station open day, which was great fun. Yesterday was a visit to my mum an dad, hubby did a few jobs for them, that needed doing. This morning I went for my covid jab, which caused me a little uncertainty. The pharmacist seemed reluctant to give it to me. First mentioned I wasn't the correct age. I told him it was because of being a cancer patient. He went off for about 1/2 hour to make phone calls. Then came back and was talking about my heart. I told him my heart is being monitored due to phesgo injections, but there was nothing wrong with it. I had to get in touch with chemo unit, who sent text to say I could have it. I ended up in there an hour, but eventually had it. Left feelling a little unsettled though and wondered if I should have left it. Hope you had a nice weekend and enjoy this week before your last treatment. You must be so happy that it will be your last one. Pleased to hear that your genetics meeting was positive, that is good news. Xx

Good luck for tomorrow Greeny80, hope all goes smoothly. Xx

Hey!!

oh that’s amazing you have your pic line removed in a week! Yay! So nice to be coming to the end of  Chemo! Amazing!! Sorry taste is still off, mine has been pretty bad during chemo, usually it’s bad for about 10/14 days and I still don’t think it’s quite right..I went out for dinner on Friday night to this amazing 8 course taster menu but my husband said one of the courses was really salty and to be it tasted a bit bland!..think my taste buds just seem to dampen any flavour. Hopefully they’ll return after chemo! Sorry about the heartburn too - can you take anything for that??

Glad you had a good meeting last week though with the genetics team. Keep us posted on the vaccine, I didn’t know such a thing existed for prevention or recurrence. Amazing!

gearing myself up for tomorrow! But after that I’ll only have one more to go!! Whoop!! Have an appt with radiologist on Thursday so will hopefully find out next steps and timings etc after that!

Hope the last round goes ok for you!! Just think last one!!!!! Hurrah! Xx

take care and have a good eve!!  

Hey!!

oh that’s amazing you have your pic line removed in a week! Yay! So nice to be coming to the end of  Chemo! Amazing!! Sorry taste is still off, mine has been pretty bad during chemo, usually it’s bad for about 10/14 days and I still don’t think it’s quite right..I went out for dinner on Friday night to this amazing 8 course taster menu but my husband said one of the courses was really salty and to be it tasted a bit bland!..think my taste buds just seem to dampen any flavour. Hopefully they’ll return after chemo! Sorry about the heartburn too - can you take anything for that??

Glad you had a good meeting last week though with the genetics team. Keep us posted on the vaccine, I didn’t know such a thing existed for prevention or recurrence. Amazing!

gearing myself up for tomorrow! But after that I’ll only have one more to go!! Whoop!! Have an appt with radiologist on Thursday so will hopefully find out next steps and timings etc after that!

Hope the last round goes ok for you!! Just think last one!!!!! Hurrah! Xx

take care and have a good eve!!