Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

Parents
  • Hi NGS, I was thinking of you today. Hope everything went well with your treatment and that you're feeling OK. Xx

  • Morning everyone. 

    greeny hoping your continuing to feel brighter with every day.  Lovely that your parents are coming to stay 

    In terms of ovary removal I remember the genetics team telling me that removal before 45 added another preventive for breast cancer ( although maybe not successful in my case but they just be because the BRCA1 stacked the odds against me ) 

    pippin - how are you feeling ?   Glad yesterday went smoothly.  

    My treatment went well. Just a long day as had to waited several hours for my take home meds - poor planning by pharmacy at hospital 

    I had reduced dose at 75% and injections now in days 3/5/7/9. Also prescribed muscle relaxants to try and help with bone pain 

    feeling god so far.  Fingers crossed that continues

    i also had call from doctor to say CT results clear - no evidence of blood clot and no abnormality or cancer in chest / heart / lungs which has given me huge positive boost 

    so one more chemo to go   Then surgery 3-6 weeks after bone infusions every 6 months for at least 3 years and bone density scans  and letrazole for at least 10 years 

    I'm meeting genetics on 6 th June for next stage of  cascade testing for my family and I'll be asking about any other tests / trials    The treatment for BRCA1 is imminent in next 5-10 years which is encouraging for my children 

    Carol - lovely to hear your doing well   Good luck with next part of treatment    

    wishing everyone positivity for the days ahead 

    no baby as yet -   Midwife appointment today and likely being offered a sweep as 2 days overdue now   Watch this space 

    xxx 

  • Good morning NGS, so good to hear that your treatment went well and that you're feeling good. Bit annoying having to wait around at the hospital just for the meds, you really don't need that after just having treatment. Brilliant news about your ct scan results, that must be a big relief. Only one more to go, you're nearly there. I still have two more, so not far behind you, I will also then be having my surgery. I too am starting bone infusions in August, for three years. Only dropped that info on me last week, so came as a bit of a surprise. I really hope you continue to feel well this time round, now that they have reduced chemo and injections. Hope all goes well with your meeting on the 6th of June. Xx

  • Meant to add, hope this grandbaby doesn't keep you waiting too long, you must be so excited  

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