Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

Parents
  • Hi everyone, hope you are all having a good day today and enjoying the fine weather. Xx

  • Hey Pippin,

    How are you doing? You sound very sprightly! That's great to hear...long may that last.

    I am good thanks, i've had my Mum here for a couple of days which has been lovely. Especially as my husband has been away ,so although wasn't planned like that it was perfect timing! We had a quick visit to the garden centre today and have been planting some pots which are giving me a lot of joy! I am totally not green fingered but having some pops of colour in the garden is making me smile! It's the small things!

    My energy levels definitely seem better so think i'm over the worst from this last round. Have woken the last couple of nights with a dodgy tummy  and woke up at 3am last night dripping in sweat, i had to change my pjs!...but feel good today. Taste feels like it may be coming back a little too so yes feeling positive and hopeful that i can enjoy 10 days or so of feeling good before round 3 on the 30th! 

    So far no neuropathy and actually so far nails seem to be pretty strong?? Will take a look at this balm that you have mentioned...have you thought any more about whether to do the mitts and socks? I'm going to take them again to the next round i think...now i've paid for them i may as well use them and i guess they can't do any harm and may even just help a little? who knows! 

    Hope you're ok though, sounds like you're breezing through this round too! hurrah!

    Hope everyone else is doing ok?? Sending lots of love and strength to you all  - always here for a chat if you need a rant or need to offload xx

  • Hi Greeny80, lovely that you have your mum visiting, especially with your husband being away. Gardening is something I love and I hope to pay a visit to the garden centre too very soon. It certainly does make you feel good to see a little colour in the garden. Good to hear your energy levels are improving and your taste is coming back. The night sweats are so annoying as it disturbs sleep so much. My night sweats seem to be easing a little since gp put me on some medication to help. She said it would take 2/3 weeks, but I'm sure it's improving already. I'm pleased to hear you're having no neuropathy issues, looks like the mitts and socks are doing their job for you. I have been looking into it, but most say they only stay cold for 20 minutes, which isn't long enough. Thought I might see how first docetaxel goes, if I have any issues, might give them a try on second cycle. I'm feeling good at the moment and due to start my injections tonight for 7 days. Have ct thorax scan for lungs on 26th, then breast scan on 30th. Docetaxel starts on 7th May along with Herceptin injection. Hope you enjoy your 10 days before cycle 3. Xx

  • I've just seen some cooling mitts on amazon which I'm thinking about. The cooling insert is the same shape as the mitt and you get spares to last longer. Thinking I could keep them cold in cool box. £35  for just the mitts, so not cheap. Would need to find something similar for feet. If I'm going to try it, I want the cooling to last for the whole session. This all get quite expensive doesn't it?

  • Morning! Hope you're still feeling good Pippin?

    Yes the cost of the mitts etc do add up. I'm debating getting extra inserts for the socks so they last a little longer?! But yes so far no neuropathy so maybe i'll wait anoher round and see. i took some spare ice packs with me in a cooler bag and switched them around a bit for the mitts...the mitts were a bit annoying and didn't last that long i have to say but the feet ones were good and my feet were freezing!!

    Just about to do a pilates class. I haven't been for a few weeks and have missed it so hoping today will feel good to be back on the mat! Then meeting a friend for walk so yes lots of nice things today.

    Hope youre continuing to feel well..good luck for all the scans on 24th and 30th and that Docetaxol goes well on the 7th. I think youll be fine!! xx

  • Also great news that the medication the doctor pescribed for your hot flushes seems to be working! Amazing! Long may that last! xx

Reply Children
No Data