Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

Parents
  • Hi all, what a lovely day today, hope you're all doing something nice. So, I went to the hospital to get bloods done through my port today. They wouldn't do them through port as said it needs to be after 10 days and it's only 9. They had told me at last chemo session it would be fine, that guidelines had changed to 7 days. A bit annoying as I could have gone to a closer hospital to have bloods done in the normal way. On the plus side, I asked them to talk to pharmacist for me about what gp can prescibe for hot flushes, as I've had to stop hrt. They suggested a suitable medication which doesn't affect hormones (as I'm pr positive, er positive and HER2 positive). I have a phone consultation with gp this afternoon, so hopefully she can prescribe this for me. Although receptionist did ask if the hospital were sending a letter (which they're not), so hope this won't be a problem. Also have my oncology appointment this afternoon, to see if chemo can go ahead on Monday. Off out for a walk shortly and out with friends for dinner tonight, which I'm looking forward to. Hope you all have a lovely weekend. Xx

  • Hey,

    Ah that's annoying they couldn't access your port for your bloods this week. Hopefully by Monday and then going forward it will work perfectly but sorry you had a slightly longer journey to make today. Let us know what the oncologist says later...fingers crossed for the go ahead on Monday!

    That's great news that the pharmacy has suggested some medication for your hot flushes! Let us know how you get on with that...really hope it helps.

    Sunshine is amazing today, makes such a difference doesn't it?! Just been out for a lovely dog walk too....definitely helps having chemo this time of year going into summer..definitely better for the headspace!

    I'm feeling pretty good today, weird taste still but not nausea, a little light headed maybe but all totally manageble and had a much better night sleep now i'm off the steroids!....my body definitely prefers this TC combo...although there is part of me that is still frustrated that my body couldn't tolerate the EC...I can't help but worry i'm not having the best chemo or the strongest one but i know i have to get that out of my head...and know that i have the next best thing and that my body just didn't want the EC so i have to ust go with it...but it does play on my mind a little!

    Have a lovely evening tonight and let us know if you're good to go for Monday! xx

    How's everyone else doing?? Sending love and hope you're all ok! xx

  • Hi Greeny80, I got the go ahead for cycle 3 on Monday. Apparently my liver function is almost back to normal, which is amazing. All the water obviously helped and they've told me to keep this up. Also spoke to gp who agreed to put me on recommended medication for hot flushes. She did say it could take up to three weeks to kick in, but it's better than seeing no end in sight. It's so good that any symptoms you have are pretty manageable this time and that the TC is OK for you. I wouldn't stress too much about EC being a stronger one though, I think different oncologists just go for different combinations. So many people with breast cancer, seem to have slightly different combinations of chemo and number of cycles. I was always under the impression that the docetaxel was stronger, as they up the steroids on this one, but who knows. My oncologist told be that as well as having the ct thorax scan on 26th, I've also been booked in for a breast scan on the 30th  (although I've not received a letter confirming this), they want to check progress after the first 3 cycles, to see how things are going. I was told they should have results for my next oncology phone call at the beginning of May, which I was happy to hear, so not too long for results thank goodness. I had a lovely evening and a catch up with friends last night, although pretty tired by the time I got to bed, I did miss my snooze on the sofa during the evening. Hope you have a lovely weekend. Xx

  • Oh Pippin,  I'm so pleased you've got the go ahead for Monday, that's great news. Well done to your liver!! Glad you've got some medication for the hot flushes too and like you say even if they take a few weeks to kick in at least there will hopefully be some improvement and relief soon. 

    I know you're right about the TC vs EC..at the end of the day i just have to go with what my body will tolerate and just accept the new plan!

    Will be interesting to see how the scans go, keeping everything crossed for you and also glad there won't be a huge wait for the results. The waiting is the hardest part sometimes!

    Glad you enjoyed a lovely dinner out..i was super tired yesterday afternoon, i think it's the co-cocodomol i take with the injections so i'm going to give the co-cocdomol a miss today and see if that makes me less sleepy! I've got slight hip pain with the injections but all manageable at the moment...

    Enjoy your weekend, so sunny again today makes such a difference!..and really hope the next round goes just as well as the previous ones. You seem to be taking it all in your stride! Let us know how you're getting on...

    Take care xx

  • I too feel a bit tired today, after going out last night, but did manage to get out for my walk. It's a shame the co-codomol make you so tired. You can't win really, either tiredness or in pain, it's difficult to know what to do!! At least the sun is shining today, always makes things feel a bit better. Xx

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  • I too feel a bit tired today, after going out last night, but did manage to get out for my walk. It's a shame the co-codomol make you so tired. You can't win really, either tiredness or in pain, it's difficult to know what to do!! At least the sun is shining today, always makes things feel a bit better. Xx

Children
  • Glad you still got out for your walk…it’s so beautiful today..spring is springing! 

    Gave the co-cocodomol a miss this afternoon and so far ok pain wise…2 more jabs to go for this round so hoping no serious pain to contend with. Seems ok so far. I only had 3 jabs last time so will be interesting to see if the extra 2 make any difference. Are you ok with your jabs? Other than hot flushes and tiredness you seem to be doing so well! 

    For the moment I am very much enjoying the sunshine and being outside! Have a lovely, lovely weekend  Xx

  • I am really pleased with how things are going so far. Yes it's just been the hot flushes and some tiredness, so feel really fortunate. Have been fine with the jabs too, no side effects so far. I have to have them for 7 days, starting on day 4, do you only have to have 5? Glad to hear you're enjoying the sunshine, it is gorgeous out there today. I've managed to get two loads of washing dry!

  • Hope today goes well Pippin, last EC, whoop!! Hope they can access the port ok today and that you continue to feel good with minimal side effects...xx

  • Thank you, just on my way to the hospital now. As you say its my last EC, so one milestone to tick off. Hope you're still feeling ok. Xx