Got a call today to arrange a date for my port. Unfortunately, can't fit me in before next chemo cycle, which is disappointing. First date offered was 27th March, which is only 2 days after my chemo, so was a bit concerned about this date. Ended up settling on 3 April. I'm pleased it's now been organised.

Oh that’s fab you’ve got a date. I had my port inserted yesterday, was sore yesterday but already feeling lots better today and I’m sure I’ll be so grateful for it when Chemo starts..glad the boob pain easing can totally understand that it’s a constant reminder…Hope you get your GP appt soon and hope the lower back pain gets better once the injections stop. You must be end of week 1 now so fingers crossed side effects should start to reduce a little??

Feeling much better this evening, back pain much improved. Had a lovely chat with gp today who was very reassuring. She has prescribed me treatment for oral thrush  and given me stuff for constipation if I need it. Pleased you're feeling OK after your port, I don't feel so worried about procedure after hearing about your experience. Xx

Feeling much better this evening, back pain much improved. Had a lovely chat with gp today who was very reassuring. She has prescribed me treatment for oral thrush  and given me stuff for constipation if I need it. Pleased you're feeling OK after your port, I don't feel so worried about procedure after hearing about your experience. Xx

So happy to hear your back isn't so sore and amazing that you had such a good chat with your GP. 

Please don't worry about the port. The first day/night was painful but yesterday felt much better, i slept pretty well last night and it's better still today. You can feel it, it's slighlty uncomfortable but not painful. I didn't take any painkillers either so actually if i had on the first night i would probably have been so much better. I'm just a bit weird about taking pills...which is silly really seeing as i'm about to take pills for the next 10 or so years anyway!!!!!! I have no doubt over the next little while i'll take all the drugs i can get to take any pain/side effect symptons away!...but yes please don't worry about the port, it's super quick and easy. 

Hope no new side effects today and hope the oral thrush treatment kicks in soon. Take care xx

Back pain returned as soon as I got into bed last night and thought I wouldn't get any sleep. However, I managed to prop pillows behind me and stuck one under my knees. Amazingly pain vanished, and I ended up really comfortable. Feel so much better today and have been for a nice walk. Feel really positive about having the port now, thanks to you sharing your experience. I know what you mean about only taking medication if really necessary. My mouth improved as the day went on, so I haven't taken anything for it yet, will see how it goes. At least I have it here if I need it. Have all the family coming over on Saturday, so looking forward to seeing the grandkids, can't wait. Look after yourself. Xx

Oh good tip about propping your legs up with a pillow. Glad that helped and it sounds like you are doing really well, which is fab to hear..and yes you will be totally fine with the port. Sore for a day or so but will be totally worth it. Hope your mouth is feeling a bit better...how is the tiredness? Have you been needing to rest/nap most days or have you been ok? It's so weird not quite knowing how i'n going to feell...i guess time will tell on Tuesday!

Have an amazing time with your grandkids on Saturday, how lovely!! xx

Hope you’re doing well Pippin with each day that goes by and it will be wonderful to see your grandchildren for sure.  How is your mouth feeling ?   

today I finally feel as close to normal as possible.  I woke up and said “I’m back”.  Very clearly the injections and I do not like each other so I will know that for next time.  The chemo team are speaking with my consultant to prescribe something stronger if I need it for the pain next time.  

I feel positive today and am hopeful that I now have 2 weeks before we go again  

i hope you are doing equally as well 

xxx 

Hi Greeny

today is a Good day.  I am feeling much more normal.  I will be thinking of you on Tuesday.  I would say the first 10 days are very up and down so listen to your body and have no expectations of how you may be each day.   All the tips and reassurance in this chat has really helped.  

good luck xxx 

Hi Greeny80, feeling really good today. My mouth is fine now and I didn't even need to use medication from Dr. The last few days I started drinking warm lemon juice first thing in the morning, as I read it helps with constipation. Seems to be working and mouth seems back to normal too. Really don't know if it's the lemon or not to be honest. Have had occasional nap in the afternoon and usually in the evening, but haven't felt exhausted. The daily walks seem to give me more energy strangely. Last injection was last night which is great. Booked to go out for dinner with hubby tomorrow evening and seeing all the family on Saturday, so all is good. Good luck with your treatment on Tuesday, hopefully any side effects will be minimal. Xx

Hi NGS, I feel just the same as you, back to my normal self, which is great. Mouth is totally fine now and I didn't actually need to use medication the dr gave me. I had started drinking warm lemon juice first thing in the morning, for constipation. Don't know if this could have helped my mouth too, who knows! Looking forward to a meal out with hubby tomorrow evening and seeing the family on Saturday, can't wait. It's good that your chemo team will be speaking to your consultant, so pain management can be sorted for next time. I, like you feel positive and am going to enjoy a bit of a break from everything, before next treatment. Fingers crossed we both do well next time round. Xx

Hey Pippin,

Just checking in. Hope you're still feeling well and back to feeling normal and hope you had a lovely time with your family over the weekend. When is round 2? Next Monday? Hope you can enjoy a week of feeling good....i start my first round tomorrow....ready as i'll ever be!!!! 

Take care xx

Thanks so much! Hope you're continuing to feel good this week. Yep I start tomorrow, eek!!...but ready as i'll ever be!!! 

Take care and hope round 2 goe ok...keeping everything crossed for a smooth ride!! xx

Hi Greeny80, I'm feeling really good at the moment. Hubby and I are doing a 2  1/2 mile walk most days, when the weather is OK. Unfortunately didn't get to see the grandkids on Saturday, as my Grandson was unwell. Was really disappointed, as haven't seen them in 5 weeks. Was also meant to visit them just before 1st chemo started, but my granddaughter was unwell. My daughter has decided to take them out of school for a day tomorrow, to bring them over, as I have chemo coming up again next week. Good luck with your treatment tomorrow, hope all goes well, with minimal side effects. Did you decide whether to try the cold cap? I'm starting to feel a little apprehensive now about my hair starting to fall out. Let me know how you get on this week. Xx