Having a stressful day today. Had my pre chemo consultation by phone today. Went well with lots of information given about what to expect.  However, I did forget to mention about some niggling breast pain I've been having. They come and go, sometimes slightly shooting pain. Did phone breast care nurses last week, who said probably due to all the biopsies I had. They were done a few weeks ago, so wondered if pains would only start happening in the last week. So annoyed with myself, even had it written down. I know I can mention on Monday, but will now have to go through two more days of stress!!

Hi Pippin 24, I think every little niggling pain is a worry when you're in the position that we are, try not to worry hopefully the chemotherapy will start to work killing all of the harmful cancer cells,  hope everything goes well for you on Monday,   I'm anxious at the moment waiting for my PET scan results on Friday the 8th xx

Hi Pippin, I"m glad the chemo seems to be going well and the injections too, i think i'm going to have to do that too so it's good to hear you're ok on them. Sorry sleep isn't great though..ive been waking at silly o'clock too and i haven't started my treatment!!....i think you just wake up and then your. brain pings open and there's so much buzzing around your head. Really hope you can get into a better sleeping pattern soon...these hormones and overactive brain have a lot to answer for don't they!!!!..Sounds like you're doing well though.but i'm so sorry you're worrying about the nodules...yes very easy for them to say don't worry but i can totally undestand that you will...but if they're not worried for now then hopefully that will give you some comfort. Concentrate on the chemo that you're having now and it's fab that they want to check again in 3 months so if it is anything they'll be totally on it...i know it's hard to put it the back of your brain though so i'm sending big virtual hugs...and really hope the next few days are ok with the chemo. xx

Oh i'm so sory to read this. I want to jump out the screen and give you a hug....That must have been a lot to hear today. BUT it sounds like they have a plan....and although perhaps not curable they can hopefuly treat and keep at bay...do you know when you'll start your treatment? You need to go and do something nice for yourself...but you can totally do this...i'm sure you have so much support around you so lean on them...and i am here too if you want to offload to a random!! I'm here. Big hugs xx

It certainly is upsetting to be on permanent chemo, but try to stay positive. I suppose we have to be grateful that there are so many available treatments with what we have. Let me know how you get on moving forward. I'll also keep you updated too, especially with regards to my next scan regarding the nodules. I think once you have cancer, there is no end to the worry unfortunately. I saw that you posted a new thread, I hope you get some responses from others in a similar position, which may be of some help to you. Xxx

To be honest I think sleep issues are to do with hot flushes, as had to come off hrt. One minute I'm boiling hot, next minI feel cold. I ended up listening to relaxing music from sbout 4.30am, which was better than laying there overthinking everything. Managed to clean bathrooms and go for an hours walk with hubby, so a pretty good day today. Trying really hard to not focus on the nodules they found. Even before I had my scan, they said they have seen these a lot since covid. Just need to keep reminding myself of that. Did you manage to sort out a wig and decide whether you will try the cold cap?

Ah that’s really good to know xx 

Sorry to hear this.  But please stay positive.  My cousin developed secondary breast cancer in her lymph nodes some years after breast cancer.  She has been managing this with tablet chemotherapy well for the past 8 years xxx 

You’ve done really well.  I’ve been pretty tired with a fuzzy head.  Just think the chemo circulating around your body will be attacking anything that should not be there and it is fantastic they are on it and monitoring.  I know it’s hard not to worry though - we are but human. Xxx 

Thank you for this, I've got to pick myself up and try and be positive , all of you on here are so much help,  giving hope ️ xx 

This group is an invaluable lifeline.  You’ve got this and we’ve got you xxx 

Greeny80 thank you so much,  I have got so much support but I'm sad for how it affects them too, I'm sure you'll all agree it's not just all about us it's everyone who loves and cares about us, still not got a date to start and it's got to be at Nottingham which is horrendous for parking but I must get myself together again and be positive xx

Greeny80 thank you so much,  I have got so much support but I'm sad for how it affects them too, I'm sure you'll all agree it's not just all about us it's everyone who loves and cares about us, still not got a date to start and it's got to be at Nottingham which is horrendous for parking but I must get myself together again and be positive xx

It’s so hard when it affects others which inevitably it does, kids, family, husbands, friends..thats super hard. My husband actually had prostate cancer 2 years ago and it was really hard being the carer or the one who wasn’t ill and seeing someone I love going through that…trying to be positive all the time, keeping the house running and supporting him emotionally…so I totally understand how my Husband now feels as the shoe is now on the other foot! Clearly I didn’t want him having all the limelight!! It’s hard when you know others are worrying - I hate that part. BUT I hope it also makes you realise how much you are loved and that’s very special and heartwarming. They’ll be ok…as will you be!

Thank you for your kind words and putting things into perspective you've seen things from both sides , hoping and praying we can get through this xx