Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

Parents
  • Having a stressful day today. Had my pre chemo consultation by phone today. Went well with lots of information given about what to expect.  However, I did forget to mention about some niggling breast pain I've been having. They come and go, sometimes slightly shooting pain. Did phone breast care nurses last week, who said probably due to all the biopsies I had. They were done a few weeks ago, so wondered if pains would only start happening in the last week. So annoyed with myself, even had it written down. I know I can mention on Monday, but will now have to go through two more days of stress!!

  • Hi Pippin 24, I think every little niggling pain is a worry when you're in the position that we are, try not to worry hopefully the chemotherapy will start to work killing all of the harmful cancer cells,  hope everything goes well for you on Monday,   I'm anxious at the moment waiting for my PET scan results on Friday the 8th xx

  • Hi NGS, so sorry to hear you have had such a hard time after your first treatment. Hopefully this is a one off and it will be better after next cycle. I'm due to start injections tomorrow until day 10 to boost white blood cells. Apparently I could get some side effects from this, so will have to see how that goes. Had another lovely walk with hubby today, which was nice. I too have been using the polybalm and am really hoping it helps to avoid too much nail damage. Really hope the cold cap works for you. I decided against it as already get headaches anyway, so thought it would be too difficult. Have my wig and hats ready. Hope you start to feel better soon. Xx

  • Sorry Pippin i replied to you and then asked whether you used a cold cap but i know you have told us a million times that you haven't used one! Sorry i clearly have chemo brain before starting the chemo!!!!!

    Glad you got out for a walk today, that sounds lovely. How tired are you feeling or has the tiredness not been affected? Sounds like you're doing well! Fab news...will have a look at the polybalm! xx

  • Headache now gone I'm pleased to say. Only side effects so far is a little tiredness, but did manage an hours walk with hubby. Due to start a week of injections tomorrow which can also have side effects, will have to see how that goes. Decided against cold cap, due to already being prone to headaches. I also feel the cold and thought this would be too uncomfortable. It'll have to be a wig and nice hats, which I've got ready. Good luck for the 19th, hope all goes well for you. Always here for a chat and to swap tips. Xx

  • I did snooze on and off yesterday, but today I've been fine. Think this is due to a better night's sleep  last night. Don't worry about asking same question, it's hard to keep track of what you've said to who on here. Xx

  • Hi Greeny 

    I started on 19 th as well.  I hope you have gotten on ok.  It’s very surreal - I too had my very long curly hair cut short.  It’s weird being so upset my cutting hair in the grand scheme of things isn’t it. 

    wishing you well

    Norma x 

  • Thankyou so much for kind words. Im Feeling better today just a fuzzy head 

     I have started the injections today for 7 days in total. Was told to have them after 5 pm as can cause bone pain so if so best just to go to bed.  Will let you know how it goes but so far so good 

    xxx 

  • Hi Pippin 24, really nice to hear that you're coping well,  just be careful with those injections,  they gave them me to use and I could hardly walk upstairs afterwards,  I also absolutely hated injecting myself,  I  ended up begging them not to give me any more  and luckily my blood count was OK enough not to need them xx

  • Thanks for giving me the heads up on the injections. If I have problems, will get them to check my blood count too.  Luckily won't have to inject myself, as hubby is going to do this for me. Will let you know how it goes. Xx

  • Ah thanks also for heads up.  I already suffer with osteoarthritis so hoping this does not make it worse.  
    pout if interest has anyone else had / been to,d they will be having bone therapy. I’m due to have zometa post chemo by IV every 6 months for 3 years xx 

  • If you haven’t seen it already I highly recommend Revenge on Chanel 5. 4 seasons and many twists and turns.  I loved it xx 

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