Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

  • Thanks Jolamine, so far so good. I did  have a headache all day yesterday, but that's not unusual for me. It's the reason I didn't go for the cold cap, which I think was the right decision. Finger's crossed I'll be fine once off the  anti sickness meds. Xx

  • Hi Greeny80, all has been fine apart from a slight headache all day yesterday. However, I am prone to headaches anyway, which is why I decided against the cold cap.  Had a lovely walk with hubby and was able to cook dinner. Good luck with your chemo on the 19th and with your wig shopping. I was really happy with my wig and have also bought a few nice hats. I got my hair cut short last week, still trying to get used to it. I'm  a bit apprehensive about it falling out though! Please let me know how you get on. Xx

  • Hi Annielouise, sorry to hear your cancer is more advanced than first thought. I was initially shocked how advanced mine was, as I'd only had a clear mammogram 14 months before. It sounds like your chemo is similar to mine, I'm having EC-T. 3 cycles of EC, then 4 cycles T (Docetaxel). I think there are different T options, so not sure if yours will be the same. I had my first cycle of EC on Monday and all went smoothly. So far side effects have been minimal, with just a headache all day yesterday. Hope all goes well with your chemo, always here for a chat. Xx

  • Hi, mine is paclitaxel, it's a whole new vocabulary isn't it! I'm glad you didn't have side effects, hope they stay away! I'm in two minds about the cold cap, it seems a but of a faff... 

    I was diagnosed 11 Dec and they initially said lumpectomy and radiotherapy, stage 2. Then it emerged there were 4 lumps, so it was DIEP, then the lumps were aggressive and I had 3 infected lymph nodes, extra capsular? So now I'm stage 3 and booked for chemo etc, it was such a shock in a short space of time x

  • Hi Pippin

    So glad you're having minimal side effects with the chemo.  I wish my ride had been the same lol.  It's been a nightmare!  But, hopefully unless they change my regime again, tomorrow is my last chemo.  I will then have surgery some time in April (what kind depends on repeat MRI scan to check the efficacy of the chemo) then 6 months of immunotherapy (Pembro).  My hair started to fall out in earnest on Day 14 after chemo.  I tend to wear scarves around the house if I have video calls, sometimes embrace the bald to let my scalp breathe and keep the wig for going "out out".  It was strange wearing a wig at first and I was very self conscious, now I'm used to it and have a little more faith that it won't just fall off lol.  I hope you continue to have minimal side effects an that your journey is a smooth one. xx

  • Hello,,I had Paclitaxel  first with hardly any side effects ,whilst on the EC I felt slightly different ,more chemo brain and neuropathy in my little toes and fingers .Tell them in the unit about any changes and how you are feeling . Keep on drinking plenty of water and rest when your body tells you to . 
    Good luck on your journey xxx

  • My hair also started falling out on second treatment ,my son gave me a good shave . I felt happy wearing hats and hair grew back very quickly once treatment was over xx

  • Oh that's odd - I had a severe reaction to Paclitaxel so they moved me on to Doctaxel then had to stop because the neuropathy got quite severe in my fingers.  They moved me onto EC which has had fewer side effects for me except for extreme nausea for about 7-10 days after treatment (plus the usual tiredness!).  Just goes to show everyone is different and how we react is very different!  Good luck on your journey. xx

  • Oh bless you hun, how are you feeling after the update.

  • Hi Carol, good to hear that you have your last chemo tomorrow. I'm due to start injections in stomach tomorrow days 4-10, to build up white blood cells. I think this may bring on some extra side effects, but will have to see. Also the docetaxel is supposed to be quite harsh, so people say. Good luck with your surgery in April, please let me know how it goes. I think that is the surgery I'm supposed to be having. Xx