Hi 

I’m so sorry to read your story re your husband’s diagnosis!

I just wanted to let you know that my husband was in exactly the same position when he was diagnosed with PC in Nov 22! 
It was a massive shock to us too, as he had tripped on holiday in July of the same year and gradually by Nov he could not get out of bed and walk at all!  He had no other symptoms other than more trips to the bathroom at night, only two weeks before! 
Turned out PC had spread to his whole skeleton and his hip had deteriorated rapidly!  His PSA was 1250+, Gleason score 4+4 

Let’s just say, do have faith with the journey, as after having two hormone injections, my husband was back walking again within two weeks! 
After 14 months, monthly hormone injections, six weeks of Chemo, his PSA is right back down to 24! 
We both know how much of a waiting game this journey can be, but so worth it, when you see the successes that can be achieved. Please reach out if you need to as I know all too well that’s it’s not easy on us as partners & the family too! 

Hi thank you for replying to me my husbands PSA was 776 after 1 injection it had dropped to 81 we was amazed with that result, we go on the 6th of feb to talk about his bone cancer IE what treatment he is having my husband didnt realy want chemo as he said he didnt want to be poorly how was your hubby with the chemo ,the cancer is only in the middle region of his bones from his neck his groin its not anywere eles all his organs are working as they should

Hi thank you for replying to me my husbands PSA was 776 after 1 injection it had dropped to 81 we was amazed with that result, we go on the 6th of feb to talk about his bone cancer IE what treatment he is having my husband didnt realy want chemo as he said he didnt want to be poorly how was your hubby with the chemo ,the cancer is only in the middle region of his bones from his neck his groin its not anywere eles all his organs are working as they should

Hiya

No problem.  He wasn’t keen on chemo either, but when we chatted through the other options with his Consultant & specialist nurse, they all came to the same conclusion that he wouldn’t ever be fitter than he was then!  The chemo was nothing like it used to be and is definitely less invasive. 
You are asked all the time what side effects you are getting and when they thought it was too many they reduced his dosage.. 

Some charities do a session all about chemo for you both before you start having it - we didn’t have time to attend before the treatment started, but definitely worthwhile if you can get on one! 
good luck  

how long has it been since your hubby was diagnosed how is he doing right now hun

14 Months ago, Nov 22.  Not bad now albeit PSA has started increasing again so now just waiting more results on why! 

Aww hun hope it isnt rising much keep in touch hope all goes well with results.

Hi everyone, hope you don't mind me butting in. just read all your posts  for the last 4 weeks, Unfortunately my treayments are limited but i wsh you well with yours,

Eddie

Eddie do you have prostate cancer and why are your treatments limited if you don't mind me asking in fact I am sending you a friend request 

Hi woodywood1 have accepted your friend request but can't contact you using it

Thank you, fingers crossed for Tuesday’s results! 

Good morning hels64 how is your hubby doing hun  

Results back on 23/1, PSA doubled and increasing once again so appears PC now finding other ways to avoid deglerex monthly injections! Now talking about giving him two other hormone tablets as well as monthly injection! It never ends at the mo..