Liposarcoma - have moved from Pre-diagnosis

My operation is called Resection retroperitoneal sarcoma left nephrectomy left hemicolectomy splenectomy? Distal pancreatectomy.

Parents
  • Hi Mary I just wanted to say "Happy Christmas"  and to wish you all the very best on your recovery and for the new year ahead , as Jolamine said we think about you often wondering how you are doing ,Best Wishes to you and your husband  

    Jenny xxx

  • Thank you. I was told that, although the operation (7 hours) was successful, there were complications afterwards. I was in clinical care twice with dialysis the second time for a while. Was there for five and a half weeks. Back home now, full recovery 3 - 4 months. I had no idea how weak and tired I would be. Thank God for good surgeons! 

  • I think you're right Mary even the best change their minds he obviously wants to make absolute sure you are ok ,its a while since your op and he seems very caring and has probably for his peace of mind and yours while you're there decided to have a scan x

  • All is well. No more checkups for six months and they should be nearer home. He did say that if it should recur, it is probable that they would not operate again because my kidney might not be able to cope with it
  • Great to hear from you I was thinking about you and I'm over the moon all is well and glad to hear no more check ups required for 6 months ,I hope now you can start enjoying your days especially with Summer coming soon ,I know there's always that worry of recurrence but I don't think its something you'll dwell on after what you've been through ,I'm sure most people worry about health issues whether or not they've had a serious illness or not so just concentrate on getting fitter and stronger so you can enjoy life with your hubby ,you have come a long way over a long journey stay positive and we are always here for a friendly chat Mary so stay in touch when you can xxx

  • I can hardly believe it's two months since being here. I have told Chris about being here helped me so much on my journey. Recently I did some weeding, only a little, the first time since last year - then I had a good rest!

  • Hi Mary its so lovely to hear from you and to realise that you are progressing ,what a brilliant surgeon you had to get you to this stage ,such a massive operation and there you are weeding the garden ,its the perfect time of year to start doing bits and pieces and pottering slowly but surely and then resting whenever you feel like it ,so Mary keep going and rebuilding your strength you are doing amazingly well and I hope you go from strength to strength ,take good care lots of kind wishes ,let us know how you go ,keep in touch Jenny x

  • Today I had the first scan locally and I shall find out the results on the 18th. Easy to tell myself "don't worry, they'll either be okay or not", but not so easy to heed my own advice!

  • Hi Mary I think most people will agree its the hardest part waiting for results , its the unknown keeps the mind active ,at least the waits not too long compared to some ,I wish you well and hope you have good results .

  • Hi Mary,

    There is no need to tell you not to worry, as, I'm sure that you'll be doing that anyway. What I am doing is hoping and praying that your results are as good as they were last time. It takes some time for the realisation of what a lot you've been through to sink in. Initially, you feel as if you are being dragged along with the flow, but after the operation is over and you begin to heal, you have time to yourself to think and ponder over how far you've come.

    It is really great to hear that you have managed to do some light weeding, but be careful not to overdo things. No amount of worry will change the outcome of your results, but I shall be thinking of you on 18th and have everything crossed for good news.

    Kind regards,

    Jolamine xx

  • I had a 'phone call cancelling my appointment; I was told that the scan results are not back yet - talk about stress!

  • I had a 'phone call cancelling my appointment; I was told that the scan results are not back yet - talk about stress!

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