My operation is called Resection retroperitoneal sarcoma left nephrectomy left hemicolectomy splenectomy? Distal pancreatectomy.
My operation is called Resection retroperitoneal sarcoma left nephrectomy left hemicolectomy splenectomy? Distal pancreatectomy.
Hi Mary I just wanted to say "Happy Christmas" and to wish you all the very best on your recovery and for the new year ahead , as Jolamine said we think about you often wondering how you are doing ,Best Wishes to you and your husband
Jenny xxx
Thank you. I was told that, although the operation (7 hours) was successful, there were complications afterwards. I was in clinical care twice with dialysis the second time for a while. Was there for five and a half weeks. Back home now, full recovery 3 - 4 months. I had no idea how weak and tired I would be. Thank God for good surgeons!
Thank you. I think I had been feeling stronger until someone from Radiology at the hospital rang about 6.30pm yesterday to say that Prof etc had requested a CT scan - why wasn't a blood test and consultation enough? When I saw him last, 28th December, I asked then if he would want a CT scan and he said no. I suppose even the best change their minds.
I think you're right Mary even the best change their minds he obviously wants to make absolute sure you are ok ,its a while since your op and he seems very caring and has probably for his peace of mind and yours while you're there decided to have a scan x
Great to hear from you I was thinking about you and I'm over the moon all is well and glad to hear no more check ups required for 6 months ,I hope now you can start enjoying your days especially with Summer coming soon ,I know there's always that worry of recurrence but I don't think its something you'll dwell on after what you've been through ,I'm sure most people worry about health issues whether or not they've had a serious illness or not so just concentrate on getting fitter and stronger so you can enjoy life with your hubby ,you have come a long way over a long journey stay positive and we are always here for a friendly chat Mary so stay in touch when you can xxx
I can hardly believe it's two months since being here. I have told Chris about being here helped me so much on my journey. Recently I did some weeding, only a little, the first time since last year - then I had a good rest!
Hi Mary its so lovely to hear from you and to realise that you are progressing ,what a brilliant surgeon you had to get you to this stage ,such a massive operation and there you are weeding the garden ,its the perfect time of year to start doing bits and pieces and pottering slowly but surely and then resting whenever you feel like it ,so Mary keep going and rebuilding your strength you are doing amazingly well and I hope you go from strength to strength ,take good care lots of kind wishes ,let us know how you go ,keep in touch Jenny x
Today I had the first scan locally and I shall find out the results on the 18th. Easy to tell myself "don't worry, they'll either be okay or not", but not so easy to heed my own advice!
Hi Mary I think most people will agree its the hardest part waiting for results , its the unknown keeps the mind active ,at least the waits not too long compared to some ,I wish you well and hope you have good results .
Hi Mary,
There is no need to tell you not to worry, as, I'm sure that you'll be doing that anyway. What I am doing is hoping and praying that your results are as good as they were last time. It takes some time for the realisation of what a lot you've been through to sink in. Initially, you feel as if you are being dragged along with the flow, but after the operation is over and you begin to heal, you have time to yourself to think and ponder over how far you've come.
It is really great to hear that you have managed to do some light weeding, but be careful not to overdo things. No amount of worry will change the outcome of your results, but I shall be thinking of you on 18th and have everything crossed for good news.
Kind regards,
Jolamine xx
I had a 'phone call cancelling my appointment; I was told that the scan results are not back yet - talk about stress!
I had a 'phone call cancelling my appointment; I was told that the scan results are not back yet - talk about stress!
Mary that must be terrible considering how you must have prepared for today ,I can't imagine how you must be feeling the not knowing and the imagining and wondering how much longer ,hopefully its not much longer and hopefully the results will be very good and you won't have to worry anyway , how are you actually feeling now Mary are you getting stronger and being able to do a few more things now ,I hope so we are always here for you so stay in touch x
I have done a little more light weeding - literally little! I am trying to be more sensible now and do a little at a time.
Gradually and more and more, I have been able to say that I have had cancer.
Did you see the Super Surgeons programme on Tuesday?
Hi Mary, so sorry to hear your appt was cancelled, back to the waiting game. Hope you don't have to wait too long. I love your positivity in that you can say "I have HAD cancer". That's brilliant x
Hi Mary,
I am so sorry to hear that your appointment was cancelled. It is so difficult to accept this when you were all geared up for it. Did they give you any indication of how much longer you may have to wait for the results to be back?
I am delighted to hear that you feel fit enough to do a little more weeding, but glad to hear that you are trying to be more sensible about how much you tackle.
Unfortunately, I've not been well myself this week, so didn't see the Super Surgeons programme on Tuesday - do I take it that you found this interesting?
Please let us know when you get your appointment through - I sincerely hope that it won't take too long.
Kind regards,
Jolamine xx
Hi Mary no I didn't see Super Surgeons on Tuesday ,to be fair I don't watch much TV but I'm sure you found it very interesting considering you had a super surgeon ,he wasn't on the programme was he ??? that would have been something special for you seeing the surgeon who did your operation ,I wouldn't have been surprised to see him considering the amazing operations he did for you ,I remember you saying he was a Top Surgeon x
Hi Jolamine its lovely to hear from you although I'm sorry to hear you haven't been well this week ,I'm hoping its nothing too serious and that you are now starting to feel much better x
Hi Jenny,
Many thanks for your kind thoughts. I am getting a little better each day and should soon feel back to normal. I hope that you are keeping well and enjoying this lovely weather.
Jolamine xx
He was the first one. It was interesting seeing him on television. He removed a patient's sarcoma.
I am so sorry you have been unwell but hope you will feel better soon.
No, I wasn't told of a new appointment for the results. However, I decided that I would ring radiology to ask how long results of scans were taking.This was yesterday. The polite lady did not tell me that but she asked for my details and told me that the results were sent to the consultant 7am that morning.