Liposarcoma - have moved from Pre-diagnosis

My operation is called Resection retroperitoneal sarcoma left nephrectomy left hemicolectomy splenectomy? Distal pancreatectomy.

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  • Hi Mary,

    That's quite a mouthful! I hope that everything has been explained to you  and that you understand exactly what is going to be done. Do you have a date for surgery now and how are you feeling about it, now that you've had some time for it to sink in? 

    I shall be thinking of you and I sincerely hope that it all goes well? As you know, we are always here for you.

    Kind regards,

    Jolamine xx

  • Thank you.The intention is to remove the sarcoma, the left kidney, the spleen, the left bowel and possibly part of the pancreas.  It seems strange no longer being in pre-diagnosis. I still feel well, no pain, eating the same as usual, and went for a one mile walk this afternoon.  I am unsure that it has completely sunk in, still feels like writing a story about someone else. When reality does occasionally sink in, then I cry. The operation is due to be 21st November. I don't want all that taken away from me, but deep inside I know it has to be done, well that's the logical thinking sometimes.There's an outpatients pre-op appointment on the 15th.

  • Thank you. I believe you are right.

  • I quite agree with all that you said.

  • Every day is an added bonus.

  • Hi Mary,

    I totally agree and am eternally grateful for the dawning of each new day. How have you been today?  Less than 2 weeks until this is all behind you.

    Kind regards,

    Jolamine xx

  • Yes, nine days now. I was just wondering to myself, if I didn't have the operation, how long would it be / how long would I have?

  • Hi Mary how are you feeling now ,still ok I hope , do you have to have any pre -op checks before you go in for your op ,have they said how long you'll be in x

  • Mary bless you 

    I’m sure your operation will prolong your life for a long long time if they didn’t think so they would not put you through this , but if you want to no this you can ask the question they will tell you , I can not imagine the worry and stress before the operstion but you will be ok you gunna be fine , a few months time you will look back and be glad you had it xx 

    big hugs love Lara xx 

  • HI Mary,

    A very good question and I imagine, one that is difficult to answer.. 

    The best person to answer this would be your professor. He should also be able to provide the figures for survival, if you do have the operation. I don't expect that you'll be seeing much of him before you have your operation. However, your specialist nurse could get these figures for you, or arrange for you to see the professor again before your surgery. There are people who don't want to know anything about surgery and just want to get on with it, leaving their fate in the hands of their surgeon. Then there are people like me, who want to know all the statistics prior to the event. At best even a surgeon, as eminent as your professor, can only give you a "guesstimate", because many go much sooner and others can live on for many years past their predicted time. It is likely to be a nurse that you see when you go for your pre-op appointment on 15th.

    However, one thing I would caution you about, before you embark on this. If you were told that you only had a limited time without surgery, would you feel even more depressed, with knowing the facts - I'm not saying that this will happen, only that it could and if it did, do you think that you would be able to cope? Sorry to be so blunt - I am only thinking of your long-term welfare. 

    Always here for you.

    Kind regards,

    Jolamine xx

  • Quite anxious at times, thank you. Going to London on Wednesday for the pre-op checks. They've said approximately ten days.

  • Thank you. I think I was being silly even putting the question to myself.

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