Liposarcoma - have moved from Pre-diagnosis

My operation is called Resection retroperitoneal sarcoma left nephrectomy left hemicolectomy splenectomy? Distal pancreatectomy.

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  • Hi Mary,

    That's quite a mouthful! I hope that everything has been explained to you  and that you understand exactly what is going to be done. Do you have a date for surgery now and how are you feeling about it, now that you've had some time for it to sink in? 

    I shall be thinking of you and I sincerely hope that it all goes well? As you know, we are always here for you.

    Kind regards,

    Jolamine xx

  • Thank you.The intention is to remove the sarcoma, the left kidney, the spleen, the left bowel and possibly part of the pancreas.  It seems strange no longer being in pre-diagnosis. I still feel well, no pain, eating the same as usual, and went for a one mile walk this afternoon.  I am unsure that it has completely sunk in, still feels like writing a story about someone else. When reality does occasionally sink in, then I cry. The operation is due to be 21st November. I don't want all that taken away from me, but deep inside I know it has to be done, well that's the logical thinking sometimes.There's an outpatients pre-op appointment on the 15th.

  • Hi Mary,

    They say "what doesn't kill you makes you stronger" and I believe that this is true. We cope because we have to, but find hidden strengths along the way. I  feel sure that, before long, you will be discovering strengths that you never even knew you had.

    I am delighted to hear that you had a short reprieve from the sarcoma today. It's so good to get a little normality, even for a short while.

    Kind regards,

    Jolamine xx

  • Hi Jolamine on hearing what you've been through over the years is nothing short of a miracle ,you are a very strong person to have come through everything and achieved so much and I must say you have a wonderful way with words it is very reassuring for many hearing about your journey and it calms people and takes away some of the fear ,so many have been helped and reassured by your kindness x

  • Hi Jenny,

    Thank you so much for your kind words. It is wonderful to hear that my words can help to reassure some people along their journeys. I got such tremendous help here, when I first found this forum and really needed support, that I am glad to be able to repay that. If I wrote a book about my life, I don't think that anyone would believe it. I am indeed very fortunate to be here still. This is something that I am grateful for every day.

    It is great to see your caring contributions to others here too and I hope that you can continue to help out with your wisdom and compassion.

    Kind regards,

    Jolamine xx

  • Thank you. I believe you are right.

  • I quite agree with all that you said.

  • Every day is an added bonus.

  • Hi Mary,

    I totally agree and am eternally grateful for the dawning of each new day. How have you been today?  Less than 2 weeks until this is all behind you.

    Kind regards,

    Jolamine xx

  • Yes, nine days now. I was just wondering to myself, if I didn't have the operation, how long would it be / how long would I have?

  • Hi Mary how are you feeling now ,still ok I hope , do you have to have any pre -op checks before you go in for your op ,have they said how long you'll be in x

  • Mary bless you 

    I’m sure your operation will prolong your life for a long long time if they didn’t think so they would not put you through this , but if you want to no this you can ask the question they will tell you , I can not imagine the worry and stress before the operstion but you will be ok you gunna be fine , a few months time you will look back and be glad you had it xx 

    big hugs love Lara xx 

Reply
  • Mary bless you 

    I’m sure your operation will prolong your life for a long long time if they didn’t think so they would not put you through this , but if you want to no this you can ask the question they will tell you , I can not imagine the worry and stress before the operstion but you will be ok you gunna be fine , a few months time you will look back and be glad you had it xx 

    big hugs love Lara xx 

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