Diagnosed with triple negative breast cancer

Hi.

I have recently been diagnosed with triple negative breast cancer and am about to embark on a fairly aggressive chemo/immunotherapy treatment plan.  Although the consultant I met with yesterday was lovely, it was a bit doomsday with all the possible side effects.  I'd love to chat with anyone who's been through anything similar?  Current plan is 12 weeks of weekly chemo/immunotherapy sessions followed by sessions every 3 weeks for a further 12 weeks.  All support gratefully received. 

  • Hi Julles63.  I hope you managed to get a few hours sleep. Its a rollercoaster of emotions. I hope your treatment goes well, and you are back home before you know it.  I feel anxious with every appointment, it's awful. Got 2nd chemo today, so will be thinking about you. 

    Hi to all the other ladies, Hope you don't mind me joining your chat. Hope you are all OK 

    Xx

  • Hi Tib 

    Goodness sounds like you're having as rough a time as me!   I was really hoping to be one of those people who breezed through treatment, but I should have known better.  My body was never going to take this lying down.  My next treatment is on the 16th so I have a bit more time to recover.  I was feeling pretty good yesterday, but today seem to have taken a bit of a step backwards with my heart rate very elevated for some reason.  Trying to get it back under control.  

    I only have my dog to look after but I know how frustrating it is not being able to do the things you're used to doing, but it's their turn to look after you now.  You need to be your priority.  I'm having to rely heavily on friends and neighbours to keep me going and they're being amazing. 

    I hope you were able to get your treatment today (Weds) and you're feeling a bit better.  As much as I hate that you're suffering the way you are, I don't feel quite so alone now. 

    Look after yourself.

    Carol xx

  • Hi Julles

    Well done at getting through 3 chemo sessions so far.  That's amazing.  That's a quarter of the way there.  

    Sometimes we worry about things and we've no idea why.  Don't beat yourself up about it.  You're allowed to worry.  What we're all going through is major and will take it's toll on us both physically and mentally, and some days will be better than others.  Give yourself a round of applause for battling on and being determined to beat this.  Go have some fun wig shopping.  If you can, have a 'you' day. 

    I hope chemo goes well for you tomorrow.  Thinking of you all. xx

  • Hi Carol

    Thank you 

    I am actually going wig shopping tomorrow, hopefully depending on how I feel after todays cocktail of drugs.

    Julles63

  • Hi Carol

    Sorry for the late reply. We do sound very similar and I know what you mean when you say  you don't feel quite so alone. 

    How are you feeling today?

    My Chemo went OK yesterday, immunotherapy treatment that's every 3 weeks..phewwww. Feel.ok today, but learning hatt can change in a blink of an eye.

    Sending hugs xx

    Tracey

  • Hi Julles63

    How did the wig shopping go? I'm due to go Saturday

    Hope the chemo went OK

    Take care  Tracey

  • Hi Tracey 

    Once my heart rate settles after all the morning routine, I have been feeling fine this week.  I'm very apprehensive about my next chemo session next Thursday.  Like you, my immunotherapy is only every other session (as I'm every 3 weeks, that's every 6th week for immuno), also, like you, I'm very relieved, as that seems to be the baddest boy of the bunch!  

    Hope you continue to feel ok or better.  Just remember to look after you and listen to your body.  That was the biggest mistake I made last week, trying to carry on as if nothing was happening.  My body soon took control of that scenario lol. 

    Here when you need me :)  

    Hugs xxx

    Carol

  • Hi Carol

    I am exactly the same and also my heart pounds before any appointments,never been like this , suppose its part and parcel of our situation

    What day is you chemo session next week. Try and relax and if you need a chat pop on her anytime..everybody Will support you , you are not alone in this xxx

    I'm taking it easy made the mistake of trying to be normal at the beginning of the week and that went badly..lol

    Sending big hugs xxx

    Tracey

  • Hi,

    hope you don’t mind me jumping on this thread but really just looking for support. 

    I was diagnosed with triple negative breast cancer on Friday and I feel like I have been handed a life sentence. I am absolutely terrified of going for these scans and it being even worse then it is right now. 

    Im only 30 and have a daughter and im so scared to leave her. 

    I have had to move back in with my parents as I am so scared, barely ate and cannot sleep.

    Sorry to be a downer… I’m just so lost. 

    x

  • Hi Kmills,

    so sorry to hear of your diagnosis it’s an awful time, I too am relatively young at 48 and have 2 young children, I also have triple negative breast cancer so I know exactly how you feel.

    on the plus side you have found your cancer and it’s now in the hands of the people who know what to do for the best. You will beat this I am sure and we will do it together.

    lovely you have the support of your family and they will help you get through. There are soooo many things they can do now to help so please don’t think of it as a life sentance, there are many on here that will help to reassure they have come out of the other side and life is good again.

    I am currently on 4/16 of my chemotherapy treatments and side effects have not been to bad for me, although I have now started to loose my hair :(

    we are all gear for you and we can try and answer any questions you have at any time.

    sending love and hugs xx