Hi carol im 38 and was diagnosed with stage 2 breast cancer just over a week ago, my oestrogen and HER2 are negative just awaiting the last one to confirm triple negative, I have my MRI booked for Tuesday and my insert fitted Wednesday for 12 weekly chemo sessions, I’m dreading chemo was hoping it would be a last resort. I hope your keeping ok xx

So sorry to hear what all of you lovelies are going through at the moment. Lebell84 I am of a similar age (40 in the next week) and just wondered what your symptoms were if you don’t mind me asking? Were you told they think it’s C at the end of your scans etc or did you not have a clue and only found out when receiving biopsy results?

im just awaiting my results.  Xx

Blimey Carol. Sounds eventful. As if having a positive result wasn’t bad enough. You’ve been through the wringer. 

I hope you’re meeting with your consultant is positive and a new plan is put in place for you and I hope everything is ok for you in the long run. 

sending hugs xx

Hi Lofty,

awww I really hope that the concerns will turn out to be nothing, I know what you mean though with regards to how they were talking about it. After my appointment I kept thinking maybe i misheard what they said, or that they must say that to everyone, but when I’ve seen about a lump in the past (not breast) they told they didn’t think it was anything to worry about, this time I didn’t get that. But again this doesn’t mean that it will be anything to worry about.

I really hope Thursday has good news for you I have everything crossed. They do say that only 2 in 10 turn out to be cancer so the odds are in your favour.

Let us know how you get on and if you need to vent or talk just speak up, we’re all here for you.

sending lots of love and luck xx

Thanks Lofty

I've been to have my bloods done today, goodness they were testing for a lot!  Hopefully it will help them decide the next steps for me. 

Am thinking of you and really hope Thursday turns out to be a good day for you.  Big hugs. xx

Good morning everyone.  How's everyone doing? 

I had the week from hell last week but seem to be on the up now.  My treatment plan has changed from weekly to every 3 weeks, so I feel better about that.  Gives my poor body time to recover from each session. 

I hope you're all well.   Been thinking of you all. 

Hi Carol,

sorry to hear you had a bad week. Glad to hear you’ve finally got your treatment plan sorted, good to know you’ll have a longer recovery time.

I’ve been ok, 3 chemo sessions down now, but I have had a really bad cold for the last 9 days and just can’t seem to shake it off, fed up of it now.

hope everyone is ok xx

Hi Lebell. 

So sorry to hear you've had a really bad cold.  I guess we're all a little more prone to it than usual with everything that's going on.  I passed out on Wednesday so was taken to A&E by ambulance and they kept me in overnight for observation.  My heart rate is constantly elevated and if I move too fast my body gets out of synch and it's "lights out" for a few seconds.  It scared the hell out of me, so am taking things much more slowly now.  I am definitely feeling much better than I did this time last week!  I'm hoping that's not going to be a regular occurrence after every treatment ... Oh and to add insult to injury, I also have neuropathy.  My body is not a happy bunny! 

Hope you feel better soon xx

Hi Carol. I also have triple negative, stage 3...I am on same plan as you at the beginning. Had my first chemotherapy and immunotherapy last Wednesday..wasn't to bad..but then fatigue and sickness kicked in. But then got a uti and when I went for bloods yesterday, could not get any..passed out in the doctors and vomited for the rest of the day, so totally freaked out..had to.go hospital to have bloods done under ultrasound, so will see if all OK fir chemo tomorrow.....so I can totally understand how you feel. 

Nice to know we are not alone and see the messages...

I must admit I'm struggling with not being able to look after.everybody like usual. I'm 55 in 2 weeks. 

Hope you feel better soon and they get your treatment back on track xxx

Hi Tib

Sorry to hear your having a ruff time, 

I have my 4th chemo cocktail tomorrow and although I haven't had too many side effects so far.  Headaches,  tired, and hair is all gone. I am really worried about tomorrow's treatment and  not sure y but I just can't sleep

Hope everyone is OK 

Hi Julles63.  I hope you managed to get a few hours sleep. Its a rollercoaster of emotions. I hope your treatment goes well, and you are back home before you know it.  I feel anxious with every appointment, it's awful. Got 2nd chemo today, so will be thinking about you. 

Hi to all the other ladies, Hope you don't mind me joining your chat. Hope you are all OK 

Xx

Hi Tib 

Goodness sounds like you're having as rough a time as me!   I was really hoping to be one of those people who breezed through treatment, but I should have known better.  My body was never going to take this lying down.  My next treatment is on the 16th so I have a bit more time to recover.  I was feeling pretty good yesterday, but today seem to have taken a bit of a step backwards with my heart rate very elevated for some reason.  Trying to get it back under control.  

I only have my dog to look after but I know how frustrating it is not being able to do the things you're used to doing, but it's their turn to look after you now.  You need to be your priority.  I'm having to rely heavily on friends and neighbours to keep me going and they're being amazing. 

I hope you were able to get your treatment today (Weds) and you're feeling a bit better.  As much as I hate that you're suffering the way you are, I don't feel quite so alone now. 

Look after yourself.

Carol xx

Hi Tib 

Goodness sounds like you're having as rough a time as me!   I was really hoping to be one of those people who breezed through treatment, but I should have known better.  My body was never going to take this lying down.  My next treatment is on the 16th so I have a bit more time to recover.  I was feeling pretty good yesterday, but today seem to have taken a bit of a step backwards with my heart rate very elevated for some reason.  Trying to get it back under control.  

I only have my dog to look after but I know how frustrating it is not being able to do the things you're used to doing, but it's their turn to look after you now.  You need to be your priority.  I'm having to rely heavily on friends and neighbours to keep me going and they're being amazing. 

I hope you were able to get your treatment today (Weds) and you're feeling a bit better.  As much as I hate that you're suffering the way you are, I don't feel quite so alone now. 

Look after yourself.

Carol xx

Hi Carol

Sorry for the late reply. We do sound very similar and I know what you mean when you say  you don't feel quite so alone. 

How are you feeling today?

My Chemo went OK yesterday, immunotherapy treatment that's every 3 weeks..phewwww. Feel.ok today, but learning hatt can change in a blink of an eye.

Sending hugs xx

Tracey

Hi Tracey 

Once my heart rate settles after all the morning routine, I have been feeling fine this week.  I'm very apprehensive about my next chemo session next Thursday.  Like you, my immunotherapy is only every other session (as I'm every 3 weeks, that's every 6th week for immuno), also, like you, I'm very relieved, as that seems to be the baddest boy of the bunch!  

Hope you continue to feel ok or better.  Just remember to look after you and listen to your body.  That was the biggest mistake I made last week, trying to carry on as if nothing was happening.  My body soon took control of that scenario lol. 

Here when you need me :)  

Hugs xxx

Carol

Hi Carol

I am exactly the same and also my heart pounds before any appointments,never been like this , suppose its part and parcel of our situation

What day is you chemo session next week. Try and relax and if you need a chat pop on her anytime..everybody Will support you , you are not alone in this xxx

I'm taking it easy made the mistake of trying to be normal at the beginning of the week and that went badly..lol

Sending big hugs xxx

Tracey

Hi,

hope you don’t mind me jumping on this thread but really just looking for support. 

I was diagnosed with triple negative breast cancer on Friday and I feel like I have been handed a life sentence. I am absolutely terrified of going for these scans and it being even worse then it is right now. 

Im only 30 and have a daughter and im so scared to leave her. 

I have had to move back in with my parents as I am so scared, barely ate and cannot sleep.

Sorry to be a downer… I’m just so lost. 

x

Hi Kmills,

so sorry to hear of your diagnosis it’s an awful time, I too am relatively young at 48 and have 2 young children, I also have triple negative breast cancer so I know exactly how you feel.

on the plus side you have found your cancer and it’s now in the hands of the people who know what to do for the best. You will beat this I am sure and we will do it together.

lovely you have the support of your family and they will help you get through. There are soooo many things they can do now to help so please don’t think of it as a life sentance, there are many on here that will help to reassure they have come out of the other side and life is good again.

I am currently on 4/16 of my chemotherapy treatments and side effects have not been to bad for me, although I have now started to loose my hair :(

we are all gear for you and we can try and answer any questions you have at any time.

sending love and hugs xx

Hi Kmills

Sorry to hear of your diagnosis. I've also been diagnosed with triple negative breast cancer.

You are not alone in this, talk to as many people as you can. Good to know you have a good support system with family. 

It really is a rollercoaster of emotions, talking to friends, family, medical people and everybody on here can offer strength and support. There are no silly questions..every question is relevant.

Sending hugs and love

Tracey x

I am just an emotional wreck just now. I think from going from a very strong minded person so a ball of emotion and fear is unsettling for me. 

My scans are on Thursday and then 2 weeks after I start 16 weeks of chemo and then an operation (wasn’t fully paying attention so could be wrong).

In all honesty, the side effects of it doesn’t scare me. Did you try the cold cap? I’ll take a year of illness as long as I survive. Do you have any tips for going to chemo and after? 

x

Hi

That is exactly how I felt, still.is some days. We all have good and bad and thst is totally fine.

I made sure that I started drinking plenty of water before my Chemo began, during and after. Dress comfy and take a throw, I get a bit cold. Take whatever you think you will need. The nurses are amazing and will.go through any concerns you have..its the unknown but you will feel looked after.

I tried the cold cap, but unfortunately I did not like it, but they are a few on my Wednesdays that do, so give it a try.

After I would advise listening to your body and taking care of yourself, do what feels right and don't push yourself to be super women...take each day as it comes, and if you need help, ask.

Hope this helps a little

Hugs Tracey xx

Hi Kmiĺls                                                              I  agree definitely a roller coaster of emotions. I was very distraught initially but now chemo has started and no really bad side effects, other than hair loss which will grow back. I still have worries about surgery after 24weeks of chemo. But my partner has been very supportive.  It is really good to have support from people going through similar experiences and emotions. 

I know it’s hard not to stress about it it’s only natural, and we all deal with things differently. I think I all ready new something was wrong before they even told me so it wasn’t really a surprise, we had our holiday booked which was a week after I was diagnosed, at that point they have all of my receptor results back so I didn’t know I was triple negative when we went away. My MRI was booked in for when I got back but I panicked on holiday because my breast started to look different/worse (more puckering). I was convinced the MRI would show it was worse than they thought, but then I worried for nothing as it only showed what was first diagnosed nothing more.

I suppose what I’m trying to say is try not to think the worst until you actually know, I worried for nothing.

I didn’t use the cold cap, I hate being cold and it also extends you time in treatment, it’s -4 degrees and I think you are in an hour before treatment and an hour after if you use it….I might be wrong but it wasn’t really for me, especially with no guarantee.

they did mention surgery to me aswell but I think it’s dependant on how well a job the chemo does. I’ve also had bloods done for the genetic testing.

the main thing is you have family support, and you have us on here who are also going/been through it to help.

mare you having a PICC line insert? 

xx