Hi carol im 38 and was diagnosed with stage 2 breast cancer just over a week ago, my oestrogen and HER2 are negative just awaiting the last one to confirm triple negative, I have my MRI booked for Tuesday and my insert fitted Wednesday for 12 weekly chemo sessions, I’m dreading chemo was hoping it would be a last resort. I hope your keeping ok xx

So sorry to hear what all of you lovelies are going through at the moment. Lebell84 I am of a similar age (40 in the next week) and just wondered what your symptoms were if you don’t mind me asking? Were you told they think it’s C at the end of your scans etc or did you not have a clue and only found out when receiving biopsy results?

im just awaiting my results.  Xx

Hi Lofty22

I found my lump when I had an itch!  As I scratched it, it felt a bit tender so I had a little prod around and felt a lump.  I went to my GP and she referred me for tests which included ultrasound and biopsy.  When I returned for my results about a week later, unfortunately they came back positive as cancer which was a total shock to me.  They didn't give any indication of possible outcome at the time of the tests.  A later MRI confirmed the size and location of the lump and a treatment plan was put in place.  Unfortunately I had a significant adverse reaction to the Paclitaxel on first treatment day so it had to be halted.  Am going back to my consultant on Wednesday to hopefully have a new treatment plan. 

On a positive note though, I did try to cold cap and found it absolutely fine.  No denying it's cold, but I didn't find it painful.  I was quite chilled (literally lol) when it came to chemo administration time and was happily settled and munching on my NHS cheese sandwich but then it all went a bit pete tong.  My body is extremely sensitive to any new drug so please don't let me put you off.  There were 4 other people in the room having the same treatment and they were all absolutely fine.  I just like to test the emergency treatment protocols! 

Hi Lebell84  

Thank you. I’m so sorry for your diagnosis and sorry that you need chemo. I’m glad it was ok initially and I hope it continues to stay that way. You’re on quite a journey. 

I felt a lump and noticed the tissue felt different overall on that boob. The gp found another area too and referred me. I had an ultrasound first as I’m 39. But picked up 2 areas of concern so decided to do a mammogram. Then 6 biopsies. They said they weren’t sure if benign or malignant, probably benign. I find out Thursday. I was referred in Jan too for a lump in the other breast. They said after biopsy they were confident it was benign and expected the biopsies to confirm that. Which they did. 

it was a different clinic this time and different consultant but they didn’t fill me with confidence this time and used the words malignancy and cancer which were never mentioned in January. I guess you can’t help but over analyse every little detail can you. 

anyway lovely, I’m sending big hugs to you and I really hope everything goes well for you xx

Hi Julles63 Thank you for your reply. I know you shouldn’t compare. It’s hard not to without answers. 

ao sorry you are going through this and really hope you recover well. I understand it’s going to be one hell of a journey for you but every week is one week completed. Sending big hugs lovely xx

Blimey Carol. Sounds eventful. As if having a positive result wasn’t bad enough. You’ve been through the wringer. 

I hope you’re meeting with your consultant is positive and a new plan is put in place for you and I hope everything is ok for you in the long run. 

sending hugs xx

Hi Lofty,

awww I really hope that the concerns will turn out to be nothing, I know what you mean though with regards to how they were talking about it. After my appointment I kept thinking maybe i misheard what they said, or that they must say that to everyone, but when I’ve seen about a lump in the past (not breast) they told they didn’t think it was anything to worry about, this time I didn’t get that. But again this doesn’t mean that it will be anything to worry about.

I really hope Thursday has good news for you I have everything crossed. They do say that only 2 in 10 turn out to be cancer so the odds are in your favour.

Let us know how you get on and if you need to vent or talk just speak up, we’re all here for you.

sending lots of love and luck xx

Thanks Lofty

I've been to have my bloods done today, goodness they were testing for a lot!  Hopefully it will help them decide the next steps for me. 

Am thinking of you and really hope Thursday turns out to be a good day for you.  Big hugs. xx

Good morning everyone.  How's everyone doing? 

I had the week from hell last week but seem to be on the up now.  My treatment plan has changed from weekly to every 3 weeks, so I feel better about that.  Gives my poor body time to recover from each session. 

I hope you're all well.   Been thinking of you all. 

Hi Carol,

sorry to hear you had a bad week. Glad to hear you’ve finally got your treatment plan sorted, good to know you’ll have a longer recovery time.

I’ve been ok, 3 chemo sessions down now, but I have had a really bad cold for the last 9 days and just can’t seem to shake it off, fed up of it now.

hope everyone is ok xx

Hi Lebell. 

So sorry to hear you've had a really bad cold.  I guess we're all a little more prone to it than usual with everything that's going on.  I passed out on Wednesday so was taken to A&E by ambulance and they kept me in overnight for observation.  My heart rate is constantly elevated and if I move too fast my body gets out of synch and it's "lights out" for a few seconds.  It scared the hell out of me, so am taking things much more slowly now.  I am definitely feeling much better than I did this time last week!  I'm hoping that's not going to be a regular occurrence after every treatment ... Oh and to add insult to injury, I also have neuropathy.  My body is not a happy bunny! 

Hope you feel better soon xx

Hi Carol. I also have triple negative, stage 3...I am on same plan as you at the beginning. Had my first chemotherapy and immunotherapy last Wednesday..wasn't to bad..but then fatigue and sickness kicked in. But then got a uti and when I went for bloods yesterday, could not get any..passed out in the doctors and vomited for the rest of the day, so totally freaked out..had to.go hospital to have bloods done under ultrasound, so will see if all OK fir chemo tomorrow.....so I can totally understand how you feel. 

Nice to know we are not alone and see the messages...

I must admit I'm struggling with not being able to look after.everybody like usual. I'm 55 in 2 weeks. 

Hope you feel better soon and they get your treatment back on track xxx

Hi Carol. I also have triple negative, stage 3...I am on same plan as you at the beginning. Had my first chemotherapy and immunotherapy last Wednesday..wasn't to bad..but then fatigue and sickness kicked in. But then got a uti and when I went for bloods yesterday, could not get any..passed out in the doctors and vomited for the rest of the day, so totally freaked out..had to.go hospital to have bloods done under ultrasound, so will see if all OK fir chemo tomorrow.....so I can totally understand how you feel. 

Nice to know we are not alone and see the messages...

I must admit I'm struggling with not being able to look after.everybody like usual. I'm 55 in 2 weeks. 

Hope you feel better soon and they get your treatment back on track xxx

Hi Tib

Sorry to hear your having a ruff time, 

I have my 4th chemo cocktail tomorrow and although I haven't had too many side effects so far.  Headaches,  tired, and hair is all gone. I am really worried about tomorrow's treatment and  not sure y but I just can't sleep

Hope everyone is OK 

Hi Julles63.  I hope you managed to get a few hours sleep. Its a rollercoaster of emotions. I hope your treatment goes well, and you are back home before you know it.  I feel anxious with every appointment, it's awful. Got 2nd chemo today, so will be thinking about you. 

Hi to all the other ladies, Hope you don't mind me joining your chat. Hope you are all OK 

Xx

Hi Tib 

Goodness sounds like you're having as rough a time as me!   I was really hoping to be one of those people who breezed through treatment, but I should have known better.  My body was never going to take this lying down.  My next treatment is on the 16th so I have a bit more time to recover.  I was feeling pretty good yesterday, but today seem to have taken a bit of a step backwards with my heart rate very elevated for some reason.  Trying to get it back under control.  

I only have my dog to look after but I know how frustrating it is not being able to do the things you're used to doing, but it's their turn to look after you now.  You need to be your priority.  I'm having to rely heavily on friends and neighbours to keep me going and they're being amazing. 

I hope you were able to get your treatment today (Weds) and you're feeling a bit better.  As much as I hate that you're suffering the way you are, I don't feel quite so alone now. 

Look after yourself.

Carol xx

Hi Julles

Well done at getting through 3 chemo sessions so far.  That's amazing.  That's a quarter of the way there.  

Sometimes we worry about things and we've no idea why.  Don't beat yourself up about it.  You're allowed to worry.  What we're all going through is major and will take it's toll on us both physically and mentally, and some days will be better than others.  Give yourself a round of applause for battling on and being determined to beat this.  Go have some fun wig shopping.  If you can, have a 'you' day. 

I hope chemo goes well for you tomorrow.  Thinking of you all. xx

Hi Carol

Thank you 

I am actually going wig shopping tomorrow, hopefully depending on how I feel after todays cocktail of drugs.

Julles63

Hi Carol

Sorry for the late reply. We do sound very similar and I know what you mean when you say  you don't feel quite so alone. 

How are you feeling today?

My Chemo went OK yesterday, immunotherapy treatment that's every 3 weeks..phewwww. Feel.ok today, but learning hatt can change in a blink of an eye.

Sending hugs xx

Tracey

Hi Julles63

How did the wig shopping go? I'm due to go Saturday

Hope the chemo went OK

Take care  Tracey

Hi Tracey 

Once my heart rate settles after all the morning routine, I have been feeling fine this week.  I'm very apprehensive about my next chemo session next Thursday.  Like you, my immunotherapy is only every other session (as I'm every 3 weeks, that's every 6th week for immuno), also, like you, I'm very relieved, as that seems to be the baddest boy of the bunch!  

Hope you continue to feel ok or better.  Just remember to look after you and listen to your body.  That was the biggest mistake I made last week, trying to carry on as if nothing was happening.  My body soon took control of that scenario lol. 

Here when you need me :)  

Hugs xxx

Carol

Hi Carol

I am exactly the same and also my heart pounds before any appointments,never been like this , suppose its part and parcel of our situation

What day is you chemo session next week. Try and relax and if you need a chat pop on her anytime..everybody Will support you , you are not alone in this xxx

I'm taking it easy made the mistake of trying to be normal at the beginning of the week and that went badly..lol

Sending big hugs xxx

Tracey

Hi,

hope you don’t mind me jumping on this thread but really just looking for support. 

I was diagnosed with triple negative breast cancer on Friday and I feel like I have been handed a life sentence. I am absolutely terrified of going for these scans and it being even worse then it is right now. 

Im only 30 and have a daughter and im so scared to leave her. 

I have had to move back in with my parents as I am so scared, barely ate and cannot sleep.

Sorry to be a downer… I’m just so lost. 

x