Diagnosed with triple negative breast cancer

Hi.

I have recently been diagnosed with triple negative breast cancer and am about to embark on a fairly aggressive chemo/immunotherapy treatment plan.  Although the consultant I met with yesterday was lovely, it was a bit doomsday with all the possible side effects.  I'd love to chat with anyone who's been through anything similar?  Current plan is 12 weeks of weekly chemo/immunotherapy sessions followed by sessions every 3 weeks for a further 12 weeks.  All support gratefully received. 

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  • Hi carol im 38 and was diagnosed with stage 2 breast cancer just over a week ago, my oestrogen and HER2 are negative just awaiting the last one to confirm triple negative, I have my MRI booked for Tuesday and my insert fitted Wednesday for 12 weekly chemo sessions, I’m dreading chemo was hoping it would be a last resort. I hope your keeping ok xx

  • So sorry to hear what all of you lovelies are going through at the moment.  I am of a similar age (40 in the next week) and just wondered what your symptoms were if you don’t mind me asking? Were you told they think it’s C at the end of your scans etc or did you not have a clue and only found out when receiving biopsy results?

    im just awaiting my results.  Xx

  • Hi Carol

    Sorry for the late reply. We do sound very similar and I know what you mean when you say  you don't feel quite so alone. 

    How are you feeling today?

    My Chemo went OK yesterday, immunotherapy treatment that's every 3 weeks..phewwww. Feel.ok today, but learning hatt can change in a blink of an eye.

    Sending hugs xx

    Tracey

  • Hi Julles63

    How did the wig shopping go? I'm due to go Saturday

    Hope the chemo went OK

    Take care  Tracey

  • Hi Tracey 

    Once my heart rate settles after all the morning routine, I have been feeling fine this week.  I'm very apprehensive about my next chemo session next Thursday.  Like you, my immunotherapy is only every other session (as I'm every 3 weeks, that's every 6th week for immuno), also, like you, I'm very relieved, as that seems to be the baddest boy of the bunch!  

    Hope you continue to feel ok or better.  Just remember to look after you and listen to your body.  That was the biggest mistake I made last week, trying to carry on as if nothing was happening.  My body soon took control of that scenario lol. 

    Here when you need me :)  

    Hugs xxx

    Carol

  • Hi Carol

    I am exactly the same and also my heart pounds before any appointments,never been like this , suppose its part and parcel of our situation

    What day is you chemo session next week. Try and relax and if you need a chat pop on her anytime..everybody Will support you , you are not alone in this xxx

    I'm taking it easy made the mistake of trying to be normal at the beginning of the week and that went badly..lol

    Sending big hugs xxx

    Tracey

  • Hi,

    hope you don’t mind me jumping on this thread but really just looking for support. 

    I was diagnosed with triple negative breast cancer on Friday and I feel like I have been handed a life sentence. I am absolutely terrified of going for these scans and it being even worse then it is right now. 

    Im only 30 and have a daughter and im so scared to leave her. 

    I have had to move back in with my parents as I am so scared, barely ate and cannot sleep.

    Sorry to be a downer… I’m just so lost. 

    x

  • Hi Kmills,

    so sorry to hear of your diagnosis it’s an awful time, I too am relatively young at 48 and have 2 young children, I also have triple negative breast cancer so I know exactly how you feel.

    on the plus side you have found your cancer and it’s now in the hands of the people who know what to do for the best. You will beat this I am sure and we will do it together.

    lovely you have the support of your family and they will help you get through. There are soooo many things they can do now to help so please don’t think of it as a life sentance, there are many on here that will help to reassure they have come out of the other side and life is good again.

    I am currently on 4/16 of my chemotherapy treatments and side effects have not been to bad for me, although I have now started to loose my hair :(

    we are all gear for you and we can try and answer any questions you have at any time.

    sending love and hugs xx

  • Hi Kmills

    Sorry to hear of your diagnosis. I've also been diagnosed with triple negative breast cancer.

    You are not alone in this, talk to as many people as you can. Good to know you have a good support system with family. 

    It really is a rollercoaster of emotions, talking to friends, family, medical people and everybody on here can offer strength and support. There are no silly questions..every question is relevant.

    Sending hugs and love

    Tracey x

  • I am just an emotional wreck just now. I think from going from a very strong minded person so a ball of emotion and fear is unsettling for me. 

    My scans are on Thursday and then 2 weeks after I start 16 weeks of chemo and then an operation (wasn’t fully paying attention so could be wrong).

    In all honesty, the side effects of it doesn’t scare me. Did you try the cold cap? I’ll take a year of illness as long as I survive. Do you have any tips for going to chemo and after? 

    x

  • Hi

    That is exactly how I felt, still.is some days. We all have good and bad and thst is totally fine.

    I made sure that I started drinking plenty of water before my Chemo began, during and after. Dress comfy and take a throw, I get a bit cold. Take whatever you think you will need. The nurses are amazing and will.go through any concerns you have..its the unknown but you will feel looked after.

    I tried the cold cap, but unfortunately I did not like it, but they are a few on my Wednesdays that do, so give it a try.

    After I would advise listening to your body and taking care of yourself, do what feels right and don't push yourself to be super women...take each day as it comes, and if you need help, ask.

    Hope this helps a little

    Hugs Tracey xx

  • Hi Kmiĺls                                                              I  agree definitely a roller coaster of emotions. I was very distraught initially but now chemo has started and no really bad side effects, other than hair loss which will grow back. I still have worries about surgery after 24weeks of chemo. But my partner has been very supportive.  It is really good to have support from people going through similar experiences and emotions. 

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  • Hi Kmiĺls                                                              I  agree definitely a roller coaster of emotions. I was very distraught initially but now chemo has started and no really bad side effects, other than hair loss which will grow back. I still have worries about surgery after 24weeks of chemo. But my partner has been very supportive.  It is really good to have support from people going through similar experiences and emotions. 

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