Diagnosed with triple negative breast cancer

Hi.

I have recently been diagnosed with triple negative breast cancer and am about to embark on a fairly aggressive chemo/immunotherapy treatment plan.  Although the consultant I met with yesterday was lovely, it was a bit doomsday with all the possible side effects.  I'd love to chat with anyone who's been through anything similar?  Current plan is 12 weeks of weekly chemo/immunotherapy sessions followed by sessions every 3 weeks for a further 12 weeks.  All support gratefully received. 

Parents
  • Hi carol im 38 and was diagnosed with stage 2 breast cancer just over a week ago, my oestrogen and HER2 are negative just awaiting the last one to confirm triple negative, I have my MRI booked for Tuesday and my insert fitted Wednesday for 12 weekly chemo sessions, I’m dreading chemo was hoping it would be a last resort. I hope your keeping ok xx

  • So sorry to hear what all of you lovelies are going through at the moment.  I am of a similar age (40 in the next week) and just wondered what your symptoms were if you don’t mind me asking? Were you told they think it’s C at the end of your scans etc or did you not have a clue and only found out when receiving biopsy results?

    im just awaiting my results.  Xx

  • Hi Lofty22,

    sorry you also find yourself in this situation and the waiting is the worst.

    I found a lump on my leafy breast, I left it a few weeks incase it went away it was maybe hormonal, during this time I noticed when looking in the mirror once that when I clenched my fist my breast caved in on that area (puckering). So I seen my GP and she also felt the lump straight away, I was put on the 2WW and had my appointment a week later.

    they done an ultrasound first where they found a solid lump, then sent me for a mammogram and biopsy, they did tell me it looked very suspicious and didn’t look good, but said they had to wait for my biopsy results to confirm, the consultant I seen at the end mention how good care I would receive so I think they were already prepping me for bad news.

    I have stage 2 IDC and it’s triple negative, I had my first chemo on Friday and it was ok tbh, feel tired and a bit achy but waiting for the storm to hit lol.

    I have my fingers crossed for you hopefully it will all be fine and nothing to worry about. 

    what were your Symptoms if you don’t mind me asking? Xx

Reply
  • Hi Lofty22,

    sorry you also find yourself in this situation and the waiting is the worst.

    I found a lump on my leafy breast, I left it a few weeks incase it went away it was maybe hormonal, during this time I noticed when looking in the mirror once that when I clenched my fist my breast caved in on that area (puckering). So I seen my GP and she also felt the lump straight away, I was put on the 2WW and had my appointment a week later.

    they done an ultrasound first where they found a solid lump, then sent me for a mammogram and biopsy, they did tell me it looked very suspicious and didn’t look good, but said they had to wait for my biopsy results to confirm, the consultant I seen at the end mention how good care I would receive so I think they were already prepping me for bad news.

    I have stage 2 IDC and it’s triple negative, I had my first chemo on Friday and it was ok tbh, feel tired and a bit achy but waiting for the storm to hit lol.

    I have my fingers crossed for you hopefully it will all be fine and nothing to worry about. 

    what were your Symptoms if you don’t mind me asking? Xx

Children
  • Hi Lofty22

    I found a lump in my breast that was a little bit tender to touch, I contacted doctor pretty much straight away.  I was sent for mammogram and biobsy within 2weeks.

    I was told that it looked suspicious, and that it was not only the lump that I could feel, but also a bigger area that required another biobsy and more involved mamogram. Also sent for a MRI to get a more detailed picture. I was informed that it was triple negative and will require surgery to remove. First they are trying to shrink whats there with 6months of chemo. Which I only started one week ago, its going to be a long journey. So far just tired and headaches. It is not easy when waiting to get results, but I can't fault the care I have received so far. 

    Hope you have results soon.x 

  • Hi   

    Thank you. I’m so sorry for your diagnosis and sorry that you need chemo. I’m glad it was ok initially and I hope it continues to stay that way. You’re on quite a journey. 

    I felt a lump and noticed the tissue felt different overall on that boob. The gp found another area too and referred me. I had an ultrasound first as I’m 39. But picked up 2 areas of concern so decided to do a mammogram. Then 6 biopsies. They said they weren’t sure if benign or malignant, probably benign. I find out Thursday. I was referred in Jan too for a lump in the other breast. They said after biopsy they were confident it was benign and expected the biopsies to confirm that. Which they did. 

    it was a different clinic this time and different consultant but they didn’t fill me with confidence this time and used the words malignancy and cancer which were never mentioned in January. I guess you can’t help but over analyse every little detail can you. 

    anyway lovely, I’m sending big hugs to you and I really hope everything goes well for you xx

  • Hi  Thank you for your reply. I know you shouldn’t compare. It’s hard not to without answers. 

    ao sorry you are going through this and really hope you recover well. I understand it’s going to be one hell of a journey for you but every week is one week completed. Sending big hugs lovely xx

  • Hi Lofty,

    awww I really hope that the concerns will turn out to be nothing, I know what you mean though with regards to how they were talking about it. After my appointment I kept thinking maybe i misheard what they said, or that they must say that to everyone, but when I’ve seen about a lump in the past (not breast) they told they didn’t think it was anything to worry about, this time I didn’t get that. But again this doesn’t mean that it will be anything to worry about.

    I really hope Thursday has good news for you I have everything crossed. They do say that only 2 in 10 turn out to be cancer so the odds are in your favour.

    Let us know how you get on and if you need to vent or talk just speak up, we’re all here for you.

    sending lots of love and luck xx