Diagnosed with triple negative breast cancer

Hi.

I have recently been diagnosed with triple negative breast cancer and am about to embark on a fairly aggressive chemo/immunotherapy treatment plan.  Although the consultant I met with yesterday was lovely, it was a bit doomsday with all the possible side effects.  I'd love to chat with anyone who's been through anything similar?  Current plan is 12 weeks of weekly chemo/immunotherapy sessions followed by sessions every 3 weeks for a further 12 weeks.  All support gratefully received. 

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  • Hi carol im 38 and was diagnosed with stage 2 breast cancer just over a week ago, my oestrogen and HER2 are negative just awaiting the last one to confirm triple negative, I have my MRI booked for Tuesday and my insert fitted Wednesday for 12 weekly chemo sessions, I’m dreading chemo was hoping it would be a last resort. I hope your keeping ok xx

  • So sorry to hear what all of you lovelies are going through at the moment.  I am of a similar age (40 in the next week) and just wondered what your symptoms were if you don’t mind me asking? Were you told they think it’s C at the end of your scans etc or did you not have a clue and only found out when receiving biopsy results?

    im just awaiting my results.  Xx

  • Hi Lofty22,

    sorry you also find yourself in this situation and the waiting is the worst.

    I found a lump on my leafy breast, I left it a few weeks incase it went away it was maybe hormonal, during this time I noticed when looking in the mirror once that when I clenched my fist my breast caved in on that area (puckering). So I seen my GP and she also felt the lump straight away, I was put on the 2WW and had my appointment a week later.

    they done an ultrasound first where they found a solid lump, then sent me for a mammogram and biopsy, they did tell me it looked very suspicious and didn’t look good, but said they had to wait for my biopsy results to confirm, the consultant I seen at the end mention how good care I would receive so I think they were already prepping me for bad news.

    I have stage 2 IDC and it’s triple negative, I had my first chemo on Friday and it was ok tbh, feel tired and a bit achy but waiting for the storm to hit lol.

    I have my fingers crossed for you hopefully it will all be fine and nothing to worry about. 

    what were your Symptoms if you don’t mind me asking? Xx

  • Hi Lofty22

    I found a lump in my breast that was a little bit tender to touch, I contacted doctor pretty much straight away.  I was sent for mammogram and biobsy within 2weeks.

    I was told that it looked suspicious, and that it was not only the lump that I could feel, but also a bigger area that required another biobsy and more involved mamogram. Also sent for a MRI to get a more detailed picture. I was informed that it was triple negative and will require surgery to remove. First they are trying to shrink whats there with 6months of chemo. Which I only started one week ago, its going to be a long journey. So far just tired and headaches. It is not easy when waiting to get results, but I can't fault the care I have received so far. 

    Hope you have results soon.x 

  • Hi Lofty22

    I found my lump when I had an itch!  As I scratched it, it felt a bit tender so I had a little prod around and felt a lump.  I went to my GP and she referred me for tests which included ultrasound and biopsy.  When I returned for my results about a week later, unfortunately they came back positive as cancer which was a total shock to me.  They didn't give any indication of possible outcome at the time of the tests.  A later MRI confirmed the size and location of the lump and a treatment plan was put in place.  Unfortunately I had a significant adverse reaction to the Paclitaxel on first treatment day so it had to be halted.  Am going back to my consultant on Wednesday to hopefully have a new treatment plan. 

    On a positive note though, I did try to cold cap and found it absolutely fine.  No denying it's cold, but I didn't find it painful.  I was quite chilled (literally lol) when it came to chemo administration time and was happily settled and munching on my NHS cheese sandwich but then it all went a bit pete tong.  My body is extremely sensitive to any new drug so please don't let me put you off.  There were 4 other people in the room having the same treatment and they were all absolutely fine.  I just like to test the emergency treatment protocols! 

  • Hi   

    Thank you. I’m so sorry for your diagnosis and sorry that you need chemo. I’m glad it was ok initially and I hope it continues to stay that way. You’re on quite a journey. 

    I felt a lump and noticed the tissue felt different overall on that boob. The gp found another area too and referred me. I had an ultrasound first as I’m 39. But picked up 2 areas of concern so decided to do a mammogram. Then 6 biopsies. They said they weren’t sure if benign or malignant, probably benign. I find out Thursday. I was referred in Jan too for a lump in the other breast. They said after biopsy they were confident it was benign and expected the biopsies to confirm that. Which they did. 

    it was a different clinic this time and different consultant but they didn’t fill me with confidence this time and used the words malignancy and cancer which were never mentioned in January. I guess you can’t help but over analyse every little detail can you. 

    anyway lovely, I’m sending big hugs to you and I really hope everything goes well for you xx

  • Hi  Thank you for your reply. I know you shouldn’t compare. It’s hard not to without answers. 

    ao sorry you are going through this and really hope you recover well. I understand it’s going to be one hell of a journey for you but every week is one week completed. Sending big hugs lovely xx

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