Hi  I was diagnosed with cmml in April 2021

I'm still in shock lay awake at night wondering what's going to happen.

I was offered no treatment am on " watch and observe" program .

Have bloods checked periodically.

I'm told it's a slow growing cancer.

Although  only diagnosed two years ago specialist said I've probably had a lot longer 

I'm 71  

Just plodding on lol

Hi strawberry I am on a watch and observe also its not Very reassuring, I was in shock when I got the diagnosis and it wasn't until I got home I thought of a few questions I should have asked I need to speak to someone about this to reasure me and to find out the do's and don'ts like you say I'll just have to plod on 

Hi Ampispartacus 

Thanks for your reply 

It was discovered I had an enlarged Spleen after having a scan and then sent for bone marrow biopsy were they found cancer.

That worries me .My spleen nearly twice normal size and yet no  treatment  probably because more problems to remove ??

When I was told I had CMML my first question was " what treatment will I have" Was shocked when told "nothing" 

Told on "watch and observe " program.

.I think because  my Cancer smouldering that's plan 

Only advise I was given was to lead a healthy life style and exercise.

I try to walk each day and I'm afraid to say my healthy diet includes the occasional glass of wine .

Take care x

Hi strawberry 99 

Nice to hear from you hope you're keeping well your story mirrors mine only difference was I fainted one morning which led to me having blood tests every thing else is the same as your experience, I live by the sea and try to get to have a walk along the beach to keep active but I find I do get out of breath if I tend to overdo it ,I used to drink quite a lot in my younger days but now it's just an odd pint maybe at weekends I'm due a blood test in a couple of months so see what happens next, you take care and keep positive x

Hi  Ampispartacus.

Nice to hear from you

CMML is rare so nice to correspond with someone in same condition .

Keep plodding on and let me know how blood tests go.

Take care x

Hi  Ampispartacus.

Nice to hear from you

CMML is rare so nice to correspond with someone in same condition .

Keep plodding on and let me know how blood tests go.

Take care x