How do you do the "waiting game"?

Yesterday when I heard the news, after my biopsy was taken, that on a scale of 1-5 they gave me a 4 for a probability that I had cancer I was really pragmatic and wanted to discuss all the possible options with the breast cancer nurse.  Today I just feel physically sick and on the brink of having a melt down.  

What hints do you have to distract yourself.  I have a 2-3 week wait for confirmation of the results.

Any advice appreciated.

Thank you.

Parents
  • Hi,

    Telling you that was very unprofessional, you are well within your rights to make a formal complaint. I’m pretty sure it wasn’t a doctor who talked such nonsense.

    The vast majority of cancer test referrals end in a negative result. That’s because “query cancer?” referrals are made if the referring clinician thinks there is as little as a 5% chance that the presenting symptoms may indicate cancer. 

    There is literally no way of knowing a biopsy is cancerous without testing it and examining it under a powerful microscope. Anyone who tells you otherwise risks being struck off no matter how “experienced” they think they are.

    Waiting for results is stressful enough without that sort of uninfomed nonsense echoing around your head. 

    I agree with everyone else that dogs are a great distraction.

    Good luck!

    Dave

  • Dave, there is a scoring system for mammograms and ultrasounds in the UK, the 5 point breast imaging scoring system, Europe and the USA have a slightly different system - BIRADS.

  • I understand that, but sharing those scores with a patient without fully explaining that these are levels of suspicion of malignancy which aren’t 100% reliable/accurate and that a diagnosis can’t be confirmed without a biopsy is bad practice and can raise anxiety levels unnecessarily. 
    Over the years, we’ve had many complaints on here about the impact of false negatives and of false positives prematurely shared which were overturned when the biopsy results were eventually received. 
    I had a different type of cancer but the consultants I was seeing were very careful to use wording like “your scan results make it seem likely that you have a malignant tumour but we won’t know for sure either way until the biopsy results are back. This gave me the opportunity to prepare psychologically for any bad news, without prematurely losing hope - or feeling I’d been misled if the news was good (which it had been ten years earlier when there was a query about a different type of cancer). 

Reply
  • I understand that, but sharing those scores with a patient without fully explaining that these are levels of suspicion of malignancy which aren’t 100% reliable/accurate and that a diagnosis can’t be confirmed without a biopsy is bad practice and can raise anxiety levels unnecessarily. 
    Over the years, we’ve had many complaints on here about the impact of false negatives and of false positives prematurely shared which were overturned when the biopsy results were eventually received. 
    I had a different type of cancer but the consultants I was seeing were very careful to use wording like “your scan results make it seem likely that you have a malignant tumour but we won’t know for sure either way until the biopsy results are back. This gave me the opportunity to prepare psychologically for any bad news, without prematurely losing hope - or feeling I’d been misled if the news was good (which it had been ten years earlier when there was a query about a different type of cancer). 

Children