16 Weeks No Treatment

I was diagnosed over 16 Weeks ago with bowel cancer and have yet to receive any form of treatment I have attended numerous scans etc and around 6 week ago I was told that I have a rare type of tumor (3 apparently) 

As a result of this I was referred to a specialist hospital in Manchester however I have yet to receive any support or a date and I was once again sent for more scans on my Thorax etc 

Now as we approach week 17 I think I have all but given up with the hospital etc and if I'm honest I think it's just a case of deal with it get on with it I never complain or expect anything I just wanted to know what is happening

My last CT scan was horrendous but hey what can I say I smiled and got on with it that was on Sunday morning at 09.30 

As of today Tuesday April 18th I've heard absolutely nothing perhaps this is normal how would I know I'm not exactly experienced in this sort of thing

The truth is I have absolutely no idea what is going on inside or outside my body 

Den

  • Hi Denis, welcome to this forum. You poor thing, it must be so worrying for you to have such a long delay since your diagnosis. My heart goes out to you and I'm sending lots of love and positive vibes your way. All I can think is that all the additional tests and scans are needed for your consultant to make the best informed decision regarding your treatment. I'm sure you have tried to hurry things along. I was lucky as once I had my diagnosis of breast cancer things moved very quickly for me with surgery just 12 days later followed in quick succession by chemo, radiotherapy and since then, drugs. I remember being so anxious for those 12 days. The operation couldn't come fast enough but it was only 12 days. It sounds as if your case is more complicated than mine, hence the additional scans and subsequent delays. Try and keep positive, easier said than done I know. Keep yourself occupied and trust that the doctors know what they are doing. 

    Do let us know when you have any news and remember we are always here for you. 

    Best wishes, Mog, x

     

  • Thank You

    I have not heard anything but I think you're right possibly just a case of getting the best possible outcome etc 

    I get scared sometimes and occasionally cry but as each day goes by I become less attached and have almost moved on from shock to acceptance and I'm getting on with my life.

    The only thing thascares me more than loosing the fight is loosing my amazing partner and my wee boy .

    However if I spent all day thinking about that it would drive me nuts.

    Im so glad you got a quick response and I hope you and your family and friends are enjoying having the opportunity to enjoy life it's so precious and it can also be so cruel but if can learn to smile more and pay it forward we are able to get through anything.

     

    Sending you and your family and friends my very best wishes Denis 

  • Denis have you been in contact with your GP recently to ask if they have any updates that's what I would be doing maybe they could hurry things along ,it seems an awfully long time to wait .I hope you get sorted out asap .

  • Hi Denis, 

    I have just read your post and I'm horrified you have been waiting so long. You sound like a nice guy but please do not rely on things happening spontaneously. Do you have a Macmillan nurse? If not, please give them a call and see if someone can take this up for you. There could be an explanation why your treatment hasn't started but you need to hear it.

    Best wishes to you, I hope you get some answers soon.

    Jane 

  • Hi Dennis l would contact the colorectal secretary and explain your concerns, they have been a great help. They can ask the consultant questions for you, they have done this for me and rung me back the next day. 
    macmillan nurses or the hospital colorectal specialist nurse may also be of help.  Your GP may already have been informed of your progress and be able to update you. I call  the surgery. 
    l hope you have an appointment soon.

    susie

  • Hey there - I'm in the Manchester area and I have had updates, procedures, scans,!threatments almost in a bi-weekly basis so your wait it not normal.

    I was given the contact for the colo-rectal specialist nurses. They can tell you where you are in terms of waiting for results, they can just listen if you feel overwhelmed and they really are the centre of everything. Check what leaflets your were given on diagnosis day. It will be in there.

    hope it al works out