Breast cancer at 38 - terrified.

After a bout if viral illness I had found a painful lump in the upper chest which my gp referred me tp the breast clinic. 

After being told it wasn't likely to be anything, they did an ultrasound - said it look suspicious and one lymph node looked a bit bigger than it ought too. Biopsy and clip the lump but not the lymph node. 

Mammogram abnormal. 

Consultant said that said he still wasn't convinced but biopsy has confirmed grade 2 invasive lobular breast cancer. Said it was early and small  2.4cm

An MRI has now said it is larger (expected with lobular) and likely multifocal. 10cm. 2 lymph nodes enlarged needing biopsy which I'm waiting for. The waiting is tormenting me.  

I feel like my whole world has collapsed overnight and a busy job i love. I have 2 young children who I'm now terrified I will not see the grow up. I cannot stop crying and cannot sleep.

Since the biospy 2 weeks ago my right chest and shoulder have become quite painful and tense my BCN has said it could be reactive to the biopsy and clip. I'm terrified that it has spread as I'm convinced that my lymph nodes are now involved.

My lovely husband has been wonderful but his answer to my fear is to be positive and stop crying and I don't want to pile more onto my parents as they are both devastated.  I'm desperately trying to hide my tears from my beautiful children.

My gp has given me diazepam to help me sleep but struggling in the daytimes to cope. 

 

  • Hpms 

    I just read back your post mine to was her2 - the wait continues but one look on bright side the cancer has gone it's left the building chin up Lippy on not for one min let it get you you can run faster sooner than you think you will doing exactly as you used to I found after my operation I went out for coffee and cake everyday this helped me tremendously.

    I kept working everyday logging in from home obviously and today I'm back to the Lara before this headache started time really ent quickly 

    will you be taking the tablets ? 
     

    love Lara ️

  • They have said no to the pills yet until they know if chemo will be required. They wanted priority to be surgery and SNB. 

    Once they know I'm sure the next journey will start. Also had BRCA genetics sent so will.find out about that soon too. 

    H x 

  • Hpms 

    have you heard about the Oncotype DX test , I requested this as sometimes chemo is not beneficial I had this test and results came in very low so no chemo was required as in my case my cancer chemo would have done more harm than good  love Lara ️

  • Yes will be having this unless it's got into lymph nodes from what I understand. I've had lymph node biopsy which was negative but obviously awaiting the pathology now x 

    Trying to control my anxiety about it but it's so difficult xx 

  • H pms 

    tge Oncotype for me was closure I coukd breathe I suffer no mental health or anxiety over reoccurring because you then have your score in detail for me it saved how I cope today I have no fear as I no what my score was and it was the end for me .for me it was my tumour my result not statistics don't get me wrong awaiting results again was another drama but was worth it 

    I then just went on to 5 sessions of radiotherapy and started the tablets the day after my radiotherapy finished 

    good luck hope your results are clear 

    love Lara ️

     

  • So post op appointment today

    Healing well and have good movement in my arm. 

    The cancer was smaller 5.7cm surrounded by lots of LCIS. 

    NO spread to lymph nodes or surrounding vascular tissue. 

    I am at this moment in time cancer free!

    Now awaiting oncologist, oncotype score and genetic testing. 

    They are hopeful for radiotherapy then hormone suppressant. 

    I feel so lucky at the moment. I know I have another wait and this journey is far from over but I'm over this part. 

  • Hpms 

    so happy for you it's gone done finished nearly happy you got to oncotyoe how long have you got to wait for results ? 
    Soon you will be back to normal life and can put it all behind you 

    love Lara ️

  • It was sent off on Friday so hopefully 2-3 weeks they said but could be sooner. 

    I think I'm still in shock to be honest. 

    Thank you for all your lovely kind words x 

     

    H x 

  • Hpms 

    they said 2 to 3 weeks it comes back much sooner I waited about 12 days it was hard waiting but I'm sure you will be happy with results and can move on quickly you will sleep better tonight for sure 

    let us no how you get on x 

    love Lara ️

  • Hi, I came across your post and I'm in a similar situation....I'm only 36 and have grade 2 60mm invasive lobular breast cancer. Been told I'll have to have a masectomy and radiotherapy and can then consider a reconstruction after a year or so. Im dreading coming home with a part of me missing, I would have this surgery a thousand times over if it means im alive and healthy for my kids but my god i'm so scared that I'm not going to be able to love myself when I don't look like me anymore! I'm already booking in beauty treatments to make myself feel better and look as much like myself as possible while recovering. 

    Have you had your surgery yet? Hope you are ok xxx