Breast cancer at 38 - terrified.

After a bout if viral illness I had found a painful lump in the upper chest which my gp referred me tp the breast clinic. 

After being told it wasn't likely to be anything, they did an ultrasound - said it look suspicious and one lymph node looked a bit bigger than it ought too. Biopsy and clip the lump but not the lymph node. 

Mammogram abnormal. 

Consultant said that said he still wasn't convinced but biopsy has confirmed grade 2 invasive lobular breast cancer. Said it was early and small  2.4cm

An MRI has now said it is larger (expected with lobular) and likely multifocal. 10cm. 2 lymph nodes enlarged needing biopsy which I'm waiting for. The waiting is tormenting me.  

I feel like my whole world has collapsed overnight and a busy job i love. I have 2 young children who I'm now terrified I will not see the grow up. I cannot stop crying and cannot sleep.

Since the biospy 2 weeks ago my right chest and shoulder have become quite painful and tense my BCN has said it could be reactive to the biopsy and clip. I'm terrified that it has spread as I'm convinced that my lymph nodes are now involved.

My lovely husband has been wonderful but his answer to my fear is to be positive and stop crying and I don't want to pile more onto my parents as they are both devastated.  I'm desperately trying to hide my tears from my beautiful children.

My gp has given me diazepam to help me sleep but struggling in the daytimes to cope. 

 

Parents
  • Hi Hpms1984,

    I'm so sorry you're going through this. I am a similar age to you, my diagnosis ten days ago floored me as I have just had a baby. My lump did not feel small - though since the diagnosis I have been unable to touch the area at all. 
     

    Like you I am terrified and my emotions are everywhere. I think once the relief that you can be cured sinks in, the reality of the treatment and the change to your life take over. 
     

    My results day is tomorrow so I'm a few steps behind;  but I just wanted to say that I understand, I hate it too and everything you're feeling makes sense. "Keeping busy" is hard when you can't focus on anything and "stay positive" is a challenge when your brain is screaming at you all day. I'm so glad you have a plan and treatment and don't beat yourself up for struggling in these early weeks xx 

     

  • Hpms & els 

    I'm wishing you the best of luck going forward for operstion and for results  please stay here for support and let us no how you getting on I was in your position last July the dreaded news but now I'm back to my normal life line a fizzy bottle of pop time goes quick you really don't no how strong you become . 

    love Lara ️

  • Hi all,

     

    Mastectomy and sentinel node biospy done on Thursday. Life is an adjustment, can't look without crying atm but pain wise so much more manageable than expected. Just got to wait for results now...seems like the waiting is so much harder x 

    Doing my excersizes and getting to know my new underwear and softie. 

    Thank you all for your kind words. There's still the mountain to climb....

  • Hi have read through all the messages since your first post. I see things have moved forward and your now on the journey to recovery. I think it always harder when you are so young and breast cancer comes in to your life. I'm 62 and just awaiting results tomorrw So  will start my journey soon. 

    At my age I'm not so scared just want a plan to recovery. Have 7 grandchildren I want to see grow and have families of their own. And these are the things that keep me sane. Good luck with your journey, you will get better I'm sure and see your children grow up and have grandchildren later in your life to fuss over. Plant some pictures of future family life to look forward to. Good luck xx hugs

  • Hpms 

    I just read back your post mine to was her2 - the wait continues but one look on bright side the cancer has gone it's left the building chin up Lippy on not for one min let it get you you can run faster sooner than you think you will doing exactly as you used to I found after my operation I went out for coffee and cake everyday this helped me tremendously.

    I kept working everyday logging in from home obviously and today I'm back to the Lara before this headache started time really ent quickly 

    will you be taking the tablets ? 
     

    love Lara ️

  • They have said no to the pills yet until they know if chemo will be required. They wanted priority to be surgery and SNB. 

    Once they know I'm sure the next journey will start. Also had BRCA genetics sent so will.find out about that soon too. 

    H x 

  • Hpms 

    have you heard about the Oncotype DX test , I requested this as sometimes chemo is not beneficial I had this test and results came in very low so no chemo was required as in my case my cancer chemo would have done more harm than good  love Lara ️

  • Yes will be having this unless it's got into lymph nodes from what I understand. I've had lymph node biopsy which was negative but obviously awaiting the pathology now x 

    Trying to control my anxiety about it but it's so difficult xx 

Reply Children
  • H pms 

    tge Oncotype for me was closure I coukd breathe I suffer no mental health or anxiety over reoccurring because you then have your score in detail for me it saved how I cope today I have no fear as I no what my score was and it was the end for me .for me it was my tumour my result not statistics don't get me wrong awaiting results again was another drama but was worth it 

    I then just went on to 5 sessions of radiotherapy and started the tablets the day after my radiotherapy finished 

    good luck hope your results are clear 

    love Lara ️

     

  • So post op appointment today

    Healing well and have good movement in my arm. 

    The cancer was smaller 5.7cm surrounded by lots of LCIS. 

    NO spread to lymph nodes or surrounding vascular tissue. 

    I am at this moment in time cancer free!

    Now awaiting oncologist, oncotype score and genetic testing. 

    They are hopeful for radiotherapy then hormone suppressant. 

    I feel so lucky at the moment. I know I have another wait and this journey is far from over but I'm over this part. 

  • Hpms 

    so happy for you it's gone done finished nearly happy you got to oncotyoe how long have you got to wait for results ? 
    Soon you will be back to normal life and can put it all behind you 

    love Lara ️

  • It was sent off on Friday so hopefully 2-3 weeks they said but could be sooner. 

    I think I'm still in shock to be honest. 

    Thank you for all your lovely kind words x 

     

    H x 

  • Hpms 

    they said 2 to 3 weeks it comes back much sooner I waited about 12 days it was hard waiting but I'm sure you will be happy with results and can move on quickly you will sleep better tonight for sure 

    let us no how you get on x 

    love Lara ️