Breast cancer at 38 - terrified.

After a bout if viral illness I had found a painful lump in the upper chest which my gp referred me tp the breast clinic. 

After being told it wasn't likely to be anything, they did an ultrasound - said it look suspicious and one lymph node looked a bit bigger than it ought too. Biopsy and clip the lump but not the lymph node. 

Mammogram abnormal. 

Consultant said that said he still wasn't convinced but biopsy has confirmed grade 2 invasive lobular breast cancer. Said it was early and small  2.4cm

An MRI has now said it is larger (expected with lobular) and likely multifocal. 10cm. 2 lymph nodes enlarged needing biopsy which I'm waiting for. The waiting is tormenting me.  

I feel like my whole world has collapsed overnight and a busy job i love. I have 2 young children who I'm now terrified I will not see the grow up. I cannot stop crying and cannot sleep.

Since the biospy 2 weeks ago my right chest and shoulder have become quite painful and tense my BCN has said it could be reactive to the biopsy and clip. I'm terrified that it has spread as I'm convinced that my lymph nodes are now involved.

My lovely husband has been wonderful but his answer to my fear is to be positive and stop crying and I don't want to pile more onto my parents as they are both devastated.  I'm desperately trying to hide my tears from my beautiful children.

My gp has given me diazepam to help me sleep but struggling in the daytimes to cope. 

 

Parents
  •  

    Hi HPMS,

    A very warm welcome to our forum. 

    I can understand how you're feeling as you wait for your biopsy. We nearly all feel tearful and overemotional at this stage and our overactive imaginations don't help. Many of us get annoyed with our poor well meaning hubbies, who try to persuade us to look on the positive side. Remember that he will be terrified too. 


    Fortunately, our worst fears seldom come to pass. you will feel better once you have a diagnosis and a treatment plan. I felt exactly like you when I was first diagnosed. That was 13 years ago. I found a second cancer in the same breast the following year. First time I had a lumpectomy and the second was a double mastectomy. Thankfully, I am still here and leading a busy and fulfilling life. Treatments really have advanced tremendously. I lost my mum to breast cancer and there is just no comparison between the diagnosis, treatment and aftercare which we've both had.

    I hope that you get your biopsy soon and that you don't have too long to wait for the results. Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,
    jolamine xx

  • Thank you all for your comments. 

     

    The biopsy of the enlarged larged lymph node came back normal. (Yay - got to take the small wins) 

    Have been told due to position and size I will need to have a single mastectomy with sentinel node evaluation. They have told me I am unable to have an immediate reconstruction and it will be delayed as I will almost certainly have radiotherapy following and they want the best possible overall chance of a getting it gone and treated without ruining a reconstruction. (This is what I'm really struggling with)

    Chemo will depend on oncotype/lymph node evaluation. 

    I'm floored. Everytime I have gone things have gotten worse. Gone from its small well whip it out you'll be fine (consultants words!!) to this!!!

    I'm really struggling with the idea of being flat on one side for a year (or possibly more with the current waits) I feel like  they have told me they are chopping a leg off .  I know I want my life more than my boob but I'm devastated. 

    I'm more scared for my hubby and kids than ever. I feel numb like I can't climb out of this whirlwind. 

     

    H 

  •  

    Hi Hpms,

    I am delighted to hear that the biopsy of the large lymph node was clear.

    This isn't bad news. It is great! We all have sentinel node evaluation at the time of surgery, so this is nothing to worry about. I can see why you're struggling with the idea of being flat for a year following surgery. The only person who'll be aware of this is your hubby. Prostheses nowadays really do  look like the real thing, when you are dressed. 

    Here again, you can count yourself lucky that you will still be a candidate for reconstruction in a year.  This is such a small gap out of your life, that you'll hardly notice it. I wasn't able to have reconstruction following my double mastectomy and have had to rely on am assortment of different prostheses for different activities. I can't say that I particularly like this, but I am still here, so even the loss of my breasts, which were my pride and joy, is still a small price to pay.

    You can do this and, we're all here to support you along the way.

    Kind regards,

    Jolamine xx

Reply
  •  

    Hi Hpms,

    I am delighted to hear that the biopsy of the large lymph node was clear.

    This isn't bad news. It is great! We all have sentinel node evaluation at the time of surgery, so this is nothing to worry about. I can see why you're struggling with the idea of being flat for a year following surgery. The only person who'll be aware of this is your hubby. Prostheses nowadays really do  look like the real thing, when you are dressed. 

    Here again, you can count yourself lucky that you will still be a candidate for reconstruction in a year.  This is such a small gap out of your life, that you'll hardly notice it. I wasn't able to have reconstruction following my double mastectomy and have had to rely on am assortment of different prostheses for different activities. I can't say that I particularly like this, but I am still here, so even the loss of my breasts, which were my pride and joy, is still a small price to pay.

    You can do this and, we're all here to support you along the way.

    Kind regards,

    Jolamine xx

Children
No Data