My dad has terminal cancer and I don’t know how to cope

Hi, 

We found out today that my lovely dad has cancer. Incurable lung cancer at the top of his lung, which has spread to part of his liver, bone and a couple lymph nodes. The doctors have said that they can treat it but it isn't curable, they have expressed that chemo is an option and he has said he will have the chemo. 
I'm struggling to cope with the prospect of losing him, he is 57 and I am 24 and my sister is 26. He is our whole world. 
I'm seeking some comfort in knowing it hasn't spread to his other lung, but knowing it has spread elsewhere is devastating me. 
We don't know how much time he has, has anybody experienced similar diagnosis and know roughly how long they survived. 
He is very fit and healthy, he hasn't had any typical symptoms of cancer. No weight loss, appetite is fine, no weakness or cough or persistent infections/illnesses. 
His X-Ray was clear however his CT scan showed otherwise. 
I'm struggling to cope with this diagnosis and don't know if I can actually carry on if and when something happens to him. 
Sorry this post is all over the place, my heads a mess.

Parents
  • Hello Hannah, 

    After reading your post there was no way I could not reply. 
    First of all I'm so so sorry to hear about your dad, I know just how much of a shock it can be! 
    My grandad (who raised me) was also diagnosed with stage 4 metastic lung cancer in 2019. At the time I was 29 and he was 71 - a very young and fit 71 too. His diagnosis was such a huge shock to us all. He only found out because of a swollen lymph node in his neck during his yearly flu jab! To this day he still doesn't have any 'lung cancer' signs or symptoms. I've personally never accepted the diagnosis, especially been so close to him and watching him go about his daily life. When folk see him they struggle to understand his diagnosis and expect to see a very poorly man. When we found out in November 2019 we were told without treatment he'd have 3-6 month to live. Another blow considering how well he was! Since his diagnosis he has experienced fluid around the heart twice (both times it could of killed him, but thankfully the fluid was caught and drained in good time)!! 
    He had 4 rounds of chemo and other than it making him a little bit unwell it worked well - all tumours significantly shrunk. Since then he has been receiving immunotherapy and I am delighted to say it's been amazing. Everything is stable and under control, the side effects are a lot less mean than the chemo and generally (other than getting tired more often) he's coping very well. 
    Please don't Google or let you mine run away with you. I've been down that rabbit hole and it's not a nice place to be. I am sending lots of positive love your way and I am praying for your dad. X

Reply
  • Hello Hannah, 

    After reading your post there was no way I could not reply. 
    First of all I'm so so sorry to hear about your dad, I know just how much of a shock it can be! 
    My grandad (who raised me) was also diagnosed with stage 4 metastic lung cancer in 2019. At the time I was 29 and he was 71 - a very young and fit 71 too. His diagnosis was such a huge shock to us all. He only found out because of a swollen lymph node in his neck during his yearly flu jab! To this day he still doesn't have any 'lung cancer' signs or symptoms. I've personally never accepted the diagnosis, especially been so close to him and watching him go about his daily life. When folk see him they struggle to understand his diagnosis and expect to see a very poorly man. When we found out in November 2019 we were told without treatment he'd have 3-6 month to live. Another blow considering how well he was! Since his diagnosis he has experienced fluid around the heart twice (both times it could of killed him, but thankfully the fluid was caught and drained in good time)!! 
    He had 4 rounds of chemo and other than it making him a little bit unwell it worked well - all tumours significantly shrunk. Since then he has been receiving immunotherapy and I am delighted to say it's been amazing. Everything is stable and under control, the side effects are a lot less mean than the chemo and generally (other than getting tired more often) he's coping very well. 
    Please don't Google or let you mine run away with you. I've been down that rabbit hole and it's not a nice place to be. I am sending lots of positive love your way and I am praying for your dad. X

Children
  • Hi!

    Thank you so much for taking the time to read and reply. I love reading your story of your Grandad, it gives me a lot of hope for my lovely dad. He has been my everything since my mom left in 2012, I can't imagine not having him here. 
    My worry is he is suffering with pain in his rib due to a cancer spot being there as well. I'm reassured in knowing that apart from that he is okay. But I still panic that it's just going to get worse until he is doped on morphine and palliative. 
    They have said radiation for his pain is an option to go alongside his specific treatment, which we will know more about once his biopsy is back. 
    All the best with your grandad, Hannah x