Hi Daisy,

sorry to meet you here, I hope your okay. 
I was diagnosed with DCIS and IDC in October, it came as a huge shock, my Gp didn't seem worried and said probably a cyst I'm 38 active mum, I went to the Breast clinic on my own and didn't think for a second it would be BC, I was actually told on that day it was Bc and confirmed a week later. 
 

I think that each appointment is different but from my biopsy that was taken they told be that it was a Grade 2 invasive Ductal carcinoma, they had measured it at the Scan and staged it from that. They will definitely tell you what they think, treatments seem to vary depending on which Bc it is and whether your HER2- or positive. Don't be surprised if things change down the line, I had surgery first and was having Radiotherapy but my grade was increased to a grade 3 after Surgery so I'm now having chemo followed by Radiotherapy, i know some ladies have chemo first before surgery.

But yes they will certainly be able to tell you what they think at your appointment.

I hope that it's as positive as it can be, and you will be on the road to recovery really quickly. 
Love Sarah
 

hi dasiy

i cant offer you any answers , i had my 1st appointment on the 8th march , also had biopsies taken from breast and under lymph nodes ,the radiographer said it dont look infected and it dont look like a cyst , my consultant said my under arm breast and nipple dont look good and made my second appointment on 21st 

i have made a list of family members who has had and has cancer ( incase they ask) 

sorry cant be much help 

Hi,

I can't tell you what will definitely happen but my experience was scan/biopsy etc first week where they advised I probably had breast cancer. I returned the following week to be told def was and prob grade 3 IDC. As it was at the very beginning of covid I was given medication to plunge me into the menopause. I had a lumpectomy and node biopsy 6 weeks later. Post surgery my cancer was downgraded to grade 2, no lymph node involvement, clear margins and a low oncotype score so no need for chemo. I then had radiotherapy and fell out the other side. I am coming up to 2 years since that awful day & now take tamoxifen.

all I can say is that it's like a whirlwind I didn't really have time to think and just blindly went through it. I know how lucky I am but please be reassured the nhs moves very quickly & like [@snow-drop]‍ has said things can change depending on results.

good luck & sending you virtual positivity x

Hi Nelly,

Please can you tell me your Onco score, I was a 10, but due to the grade going up I'm having Chemo! I have never heard it going down that must of been a relief for you xx 

Hi Snowdrop,

my oncotype score was 14, my initial biopsy said I had grade 3 but after my operation the tumour was downgraded to grade 2 & yes I was so relieved. They had said if it was grade 3 I would have needed chemo.
I hope everything is going well with your treatment,

xx
 

Hi Sarah,

yeah waiting for the results of that score was nerve wracking as for me it determined what happened next. I'm 11 years older than you and have 2 teenagers  so like everyone else on here it was pretty rubbish.

the fear of recurrence lessens as time goes on I had 6 sessions with a counsellor who was brilliant & helped me get my head around it all. 

 I have my 2 year scan coming up, not gonna lie I'm *** myself about that.

 I'm hoping your treatment goes well & the chemo doesn't make you feel too awful.

take care & I'm always here xx

Thankyou so much,, I hope your Scan is clear I am sure it will be. 

I will definitely talk to someone I think I need that support.

Love Sarah 

Hi Sarah

Thanks so much for your reply. I was pretty much given exactly the same diagnosis as you last night although I don't yet know whether I'm HER2 - or + so I'm not sure what treatment I'll have and whether surgery will come first or whether I'll start with chemo. The consultant seemed to think that the lymph nodes under the arm looked clear so I'm keeping everything crossed that it hasn't spread anywhere. He has sent me off for an MRI and CT scan though, no idea whether that's standard?!

Feeling a bit overwhelmed by everything and am trying not to get ahead of myself and just take each day as it comes. If you have any advice when it comes to surgery / treatment then please let me know!

Hope you're treatment is going well. How much longer do you have?

Daisy x

Hi Diasy,

I am so sorry you had those results today. Do they know if it's Oestrogen Fed? My Lymph nodes looked clear on my Ultrasound and when I had my lumpectomy they removed 2 nodes to check and they were clear. Have they staged it yet? More often than not they like to do and MRI and CT for planning so don't worry too much about that it's better too get them all done now. Did they tell you what grade it is?  So I had a lumpectomy, My Tumor was oestrogen Fed, because it was a Grade 3 I'm having Chemo, followed by Radiotherapy and then Tamoxifen.

Although I was really upset about my diagnosis I was also relieved that at least I knew what I was dealing with. Everything seems too take so long.

You will get through this I promise. Xxx