Hi,

I can't tell you what will definitely happen but my experience was scan/biopsy etc first week where they advised I probably had breast cancer. I returned the following week to be told def was and prob grade 3 IDC. As it was at the very beginning of covid I was given medication to plunge me into the menopause. I had a lumpectomy and node biopsy 6 weeks later. Post surgery my cancer was downgraded to grade 2, no lymph node involvement, clear margins and a low oncotype score so no need for chemo. I then had radiotherapy and fell out the other side. I am coming up to 2 years since that awful day & now take tamoxifen.

all I can say is that it's like a whirlwind I didn't really have time to think and just blindly went through it. I know how lucky I am but please be reassured the nhs moves very quickly & like [@snow-drop]‍ has said things can change depending on results.

good luck & sending you virtual positivity x

Hi Nelly,

Please can you tell me your Onco score, I was a 10, but due to the grade going up I'm having Chemo! I have never heard it going down that must of been a relief for you xx 

Hi Snowdrop,

my oncotype score was 14, my initial biopsy said I had grade 3 but after my operation the tumour was downgraded to grade 2 & yes I was so relieved. They had said if it was grade 3 I would have needed chemo.
I hope everything is going well with your treatment,

xx
 

Hi Snowdrop,

my oncotype score was 14, my initial biopsy said I had grade 3 but after my operation the tumour was downgraded to grade 2 & yes I was so relieved. They had said if it was grade 3 I would have needed chemo.
I hope everything is going well with your treatment,

xx
 

Hi Nelly,

thanks for sharing that with me! I must admit I actually found finding out that score was mentally hard, I actually decided not too know it as I felt I didn't need too know thinking it would be high. It was only that my Breast Care Nurse rang and said to me about me deciding not too know, anyway she said would I want too know if it was low risk! And I thought well yes I would. Anyway it was 10, the relief was huge. 
 

I must admit being 38 with two young sons Chemo was something I wish I could of Dodged! Fell at the last hurdle as I had my Lumpectomy, Lymph node Neg, clear Margins etc and was told I would have 5 sessions of Radiotherapy, like I say it went up afterwards. 
 

i will also be on Tamoxifen for 5 years, I have been offered councilling to try and rationalise the thought of it returning, I really struggle with that.

Thanks Again love Sarah 
 
 

Hi Sarah,

yeah waiting for the results of that score was nerve wracking as for me it determined what happened next. I'm 11 years older than you and have 2 teenagers  so like everyone else on here it was pretty rubbish.

the fear of recurrence lessens as time goes on I had 6 sessions with a counsellor who was brilliant & helped me get my head around it all. 

 I have my 2 year scan coming up, not gonna lie I'm *** myself about that.

 I'm hoping your treatment goes well & the chemo doesn't make you feel too awful.

take care & I'm always here xx

Thankyou so much,, I hope your Scan is clear I am sure it will be. 

I will definitely talk to someone I think I need that support.

Love Sarah