How much do you find out at diagnosis?

I have an appointment tomorrow following having biopsies (breast) taken last week. I'm keeping everything crossed that it goes ok but the radiographer did warm me that he was very concerned about a lump so I'm not overly hopeful. Anyway, can anyone tell me what exactly you find out at diagnosis? Are they able to tell you straightaway the course of treatment and when either it or surgery will happen or is it much slower than that? Any questions that I should be asking would also be very welcome. I'm a bag of nerves!! Thank you.

Parents
  • Hi Daisy,

    sorry to meet you here, I hope your okay. 
    I was diagnosed with DCIS and IDC in October, it came as a huge shock, my Gp didn't seem worried and said probably a cyst I'm 38 active mum, I went to the Breast clinic on my own and didn't think for a second it would be BC, I was actually told on that day it was Bc and confirmed a week later. 
     

    I think that each appointment is different but from my biopsy that was taken they told be that it was a Grade 2 invasive Ductal carcinoma, they had measured it at the Scan and staged it from that. They will definitely tell you what they think, treatments seem to vary depending on which Bc it is and whether your HER2- or positive. Don't be surprised if things change down the line, I had surgery first and was having Radiotherapy but my grade was increased to a grade 3 after Surgery so I'm now having chemo followed by Radiotherapy, i know some ladies have chemo first before surgery.

    But yes they will certainly be able to tell you what they think at your appointment.

    I hope that it's as positive as it can be, and you will be on the road to recovery really quickly. 
    Love Sarah
     

     

  • Hi Sarah

    Thanks so much for your reply. I was pretty much given exactly the same diagnosis as you last night although I don't yet know whether I'm HER2 - or + so I'm not sure what treatment I'll have and whether surgery will come first or whether I'll start with chemo. The consultant seemed to think that the lymph nodes under the arm looked clear so I'm keeping everything crossed that it hasn't spread anywhere. He has sent me off for an MRI and CT scan though, no idea whether that's standard?!

     

    Feeling a bit overwhelmed by everything and am trying not to get ahead of myself and just take each day as it comes. If you have any advice when it comes to surgery / treatment then please let me know!

    Hope you're treatment is going well. How much longer do you have?

    Daisy x

  • Hi Diasy,

    I am so sorry you had those results today. Do they know if it's Oestrogen Fed? My Lymph nodes looked clear on my Ultrasound and when I had my lumpectomy they removed 2 nodes to check and they were clear. Have they staged it yet? More often than not they like to do and MRI and CT for planning so don't worry too much about that it's better too get them all done now. Did they tell you what grade it is?  So I had a lumpectomy, My Tumor was oestrogen Fed, because it was a Grade 3 I'm having Chemo, followed by Radiotherapy and then Tamoxifen.

    Although I was really upset about my diagnosis I was also relieved that at least I knew what I was dealing with. Everything seems too take so long.

    You will get through this I promise. Xxx

     

Reply
  • Hi Diasy,

    I am so sorry you had those results today. Do they know if it's Oestrogen Fed? My Lymph nodes looked clear on my Ultrasound and when I had my lumpectomy they removed 2 nodes to check and they were clear. Have they staged it yet? More often than not they like to do and MRI and CT for planning so don't worry too much about that it's better too get them all done now. Did they tell you what grade it is?  So I had a lumpectomy, My Tumor was oestrogen Fed, because it was a Grade 3 I'm having Chemo, followed by Radiotherapy and then Tamoxifen.

    Although I was really upset about my diagnosis I was also relieved that at least I knew what I was dealing with. Everything seems too take so long.

    You will get through this I promise. Xxx

     

Children
  • Hi Sarah,

    No, it's not oestrogen fed. I wasn't told a stage at the appointment, only that it's grade 2. I'm guessing I'll get lots more detail at my appointment next week.

    Really struggled with the MRI yesterday, think it started to hit me and I just felt a whole range of emotions. I've got the CT tomorrow and I think it's the results from that that I'm worrying about most. There was no reason to think that it had spread but I'm just terrified that they'll find it in lots of other places! Need to keep reminding myself that the consultant said that it was early stage breast cancer and not let me mind run away with itself!

    How are you finding the chemo? Hope it's not too awful.

    I'm really struggling with being very hungry all the time at the moment but not being able to put on any weight. I'm sure there's a lot of anxiety in my body at the moment but it's just so annoying as im waking in the night needing to eat!

    Anyway, I hope you're doing ok and thanks again for your messages.

    xx

  • Hi Daisy,

    I hope your CT was okay today. The hard thing about scans and any hospital appointments it makes things very real,, You hopefully won't have too have them again, it's good that it's early stages.

    at your appointment next week you will be given all the facts and everything will be on the table, so they will be able to tell you what treatment you will have and you can start too move forward and get it gone. 
     

    It will be a long journey ahead with plenty of ups and downs and dark days, take each day as it comes, trust your team, they will look after you. 
     

    I found speaking to my Breast Care Nurse a real help. 
     

    Let me know how you get on next week! You've got this!  You will be fine. 
     

    Lots of love Sarah 

    Ps don't be scared of Chemo it's not as bad as you think xxx