Triple negative breast cancer diagnosis

Hello, today I have been diagnosed with TNBC and am in a complete spin about it! As soon as he said it I went into a massive panic as I know it's aggressive and less easy to treat and I'm now scared out of my mind. I'm to have an MRI and CT scan within 2 weeks and then probably straight to chemo.

im 43 and wasn't offered gene testing and I wonder if I should have been as I have a sister and 6 year old daughter to consider 

I guess I'm just hoping there are ladies out there who have had a similar diagnosis to me and are doing well? 

  • Hi sorry to read your diagnosis.

    I was diagnosed last March with it had surgery in April then chemo and radiotherapy therapy finishing Dec 21st.

    I'm now free of cancer and on yearly screening I'm 56.

    I did have the genetic screening due to family history and my age.

    It's not an easy journey to go through so just take it a day at a time. There are triple negative groups on fb which are really good and also breastcancernow.org is worth joining. 

    Anything I can help with please just ask.

    Best wishes 

    Louise xx

  • Thanks for replying Louise, it's so comforting to hear from someone who had had it and has come through the other side. 
     

    did you have the gene? I think I'm going to ask to be put forward for testing because my mums auntie did have a double mastectomy in her 30's and we don't know lots of our family members. I just thought if I have the gene then it will impact the treatment I chose and so I should be given it.

    im not sure how I'm going to be a normal mummy to my kids today but I'm going to have to muster the strength from somewhere :-( xx

  • Hi, 

    I was 46 when diagnosed with TNBC,  I was offered genetic testing, I would ask your BCN to refer you, mine thankfully came back negative but it does take 6/8 weeks to get the results back.  I had a lumpectomy in November then followed by 20 weeks of chemotherapy,  I will then need radiotherapy,  it's a lot to take in a diagnosis of triple negative is always frightening, once you have a plan of treatment it will get easier. 
    xx

  • Hello I'm also triple negative,I had chemo then the op and after radiotherapy,I went on chemo tablets after that,try not to worry so much I know it's difficult but you just have to stay positive and strong,you will fight this and it's not always doom and gloom.The operation was a success so there is always a positive out come x

  • Thanks for replying. I emailed my BCN and she said she will refer me, hopefully it's negative like your but knowledge is power I guess. 
    Im praying that I get my scans booked in soon, they show it hasn't spread and can get on with treatment asap as I keep reading about it being 'aggressive' and that worry's me.

    im pleased your treatment is going well, was the chemo doable? I know it's probably awful to go through 

    wishing you all the best xx

  • Thanks, your situation sounds like mine. Are you now cancer free? Hope so. How old are you? I keep reading that triple negative tends to affect younger women more x

  • Yes I'm now cancer free,I'm 55 years old I had to have the genetic gene because I have a lot of family members who had cancer.I haven't got the gene I was told it was just one of those things.I did keep positive through it all and did not let it get the better of me,I just went with it all had a year of chemo 6 months before the op and 6 months of the tablet form after,you will get through it x

  • Thank you, it does help me to try and find my fight I seem to be stuck feeling tearful and sorry for myself but I know that's no help, I need to be more positive and get through it for my children x

  • Yes I know that was in the back of my mind all the time thinking about my children,they we help you get through it ,if ever you feel worried or anything just feel free to message me,I do understand what you are going through,and remember you are tougher than you think x

  • Thank you, I'm feeling bit better already x