Worried about side effects of Letrozole

Diagnosed with breast cancer last November stage 2 had a lumpectomy Christmas Eve and start radiotherapy next week fir 5 days.need advice ir maybe more reassurance l have been prescribed Letrozole but always been so healthy before this and never taken medication so really worried about taking this medication after reading side effects,so l wonder if l discussed with my oncologist l can insist l don't want it. l live alone and l worry with all these side effects.

Is there anyone on here who has also not taken it after been prescribed. 
 

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  • Hi Kimmyboo,

    I was prescribed Letrozole after completing radiotherapy sessions in February 2020. I had a breast reduction for stage 2 lobular breast cancer which was diagnosed on October 2019. 
    Like you I have always had good health (apart from breast cancer!) and didn't want hormones to upset my active lifestyle. The protective element of Letrozole for me was about 2%. I did try them out but very quickly found I was in low mood and had painful joints preventing me from walking and swimming. I kind of thought that if I didn't stop the Letrozole then I would get heart issues through not exercising?!!  

    It IS a very personal decision that needs a lot of thought. I DO sometimes think I ought to be taking them but I love my life and just don't want anything standing in the way of being active and joyful about life. Whatever time I have left I want it to be as best it can be rather than being almost 'wounded' by hormones isn't what I want. 
     

    I hope you come to the decision that's 'right' for you. I did ask the oncologist about my decision and he said that it was an informed decision offering me little real benefit. I was ok with that. Go well and stay well. 
    Kebbs x 

Reply
  • Hi Kimmyboo,

    I was prescribed Letrozole after completing radiotherapy sessions in February 2020. I had a breast reduction for stage 2 lobular breast cancer which was diagnosed on October 2019. 
    Like you I have always had good health (apart from breast cancer!) and didn't want hormones to upset my active lifestyle. The protective element of Letrozole for me was about 2%. I did try them out but very quickly found I was in low mood and had painful joints preventing me from walking and swimming. I kind of thought that if I didn't stop the Letrozole then I would get heart issues through not exercising?!!  

    It IS a very personal decision that needs a lot of thought. I DO sometimes think I ought to be taking them but I love my life and just don't want anything standing in the way of being active and joyful about life. Whatever time I have left I want it to be as best it can be rather than being almost 'wounded' by hormones isn't what I want. 
     

    I hope you come to the decision that's 'right' for you. I did ask the oncologist about my decision and he said that it was an informed decision offering me little real benefit. I was ok with that. Go well and stay well. 
    Kebbs x 

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