Worried about side effects of Letrozole

Diagnosed with breast cancer last November stage 2 had a lumpectomy Christmas Eve and start radiotherapy next week fir 5 days.need advice ir maybe more reassurance l have been prescribed Letrozole but always been so healthy before this and never taken medication so really worried about taking this medication after reading side effects,so l wonder if l discussed with my oncologist l can insist l don't want it. l live alone and l worry with all these side effects.

Is there anyone on here who has also not taken it after been prescribed. 
 

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  • Hiya!

    When I was told to take Letrozole, nearly two and a half years ago, I was adamant that I wasn't going to take something g to make me feel ill, so I didn't! ( Looking back, I think I behaved quite childishly)

    A few months later I was talking to my GP and gave her my opinion on taking something that could have so many side effects. In a very calm and sweet way she said that not everyone gets bad side effects, so why not give it a try. After all, she said, if you feel bad from taking it, you just stop. But if you don't feel ill it's a win win situation! So I started taking them almost exactly two years ago. For the first few weeks I would feel a bit nauseous, nothing too bad but it put me off my food. I lost half a stone in that time. However, the nausea didn't last! And, unfortunately, the half stone came back as quick as it went. The list of possible side effects is frightening, and I have developed one or two, but nothing too bothersome. In fact, I had occasion to stop taking it for a few weeks, while something totally unrelated was investigated and I felt quite uneasy about it. I was really glad when I got the all clear to start them again!

    That's my real life experience and I'm sure you'll hear a lot of similar stories. In fact I know women who have been reluctant to stop taking it at the end of their five or ten years.

    Good luck, I hope I haven't totally confused you about it, now!

    Christine xx

Reply
  • Hiya!

    When I was told to take Letrozole, nearly two and a half years ago, I was adamant that I wasn't going to take something g to make me feel ill, so I didn't! ( Looking back, I think I behaved quite childishly)

    A few months later I was talking to my GP and gave her my opinion on taking something that could have so many side effects. In a very calm and sweet way she said that not everyone gets bad side effects, so why not give it a try. After all, she said, if you feel bad from taking it, you just stop. But if you don't feel ill it's a win win situation! So I started taking them almost exactly two years ago. For the first few weeks I would feel a bit nauseous, nothing too bad but it put me off my food. I lost half a stone in that time. However, the nausea didn't last! And, unfortunately, the half stone came back as quick as it went. The list of possible side effects is frightening, and I have developed one or two, but nothing too bothersome. In fact, I had occasion to stop taking it for a few weeks, while something totally unrelated was investigated and I felt quite uneasy about it. I was really glad when I got the all clear to start them again!

    That's my real life experience and I'm sure you'll hear a lot of similar stories. In fact I know women who have been reluctant to stop taking it at the end of their five or ten years.

    Good luck, I hope I haven't totally confused you about it, now!

    Christine xx

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