Hi

i haven't slept properly since my first diagnosis in December. After being told I need a mastectomy, as I didn't get clear margins and there is invasive cancer in my left boob, i went to the doc last week and am now taking diazepam which has made a massive difference to my sleep and my ability to cope.

It might be worth talking to your doctor if you haven't already.

x  

Thank you Bubblesmum!

I am fully planning to take it easy - my daughter is spending the weekend with my mum so I can rest and be looked after! 

Hope you're doing ok after your news about the invasive and needing a mastectomy. It's good that your doctor has helped with prescribing diazepam as it's so important to feel rested to be able to function.

Take care and sending best wishes xx

Hi,

I have Pleomorphic Lobular Carcinoma InSitu, is that what you have? I've had one lumpectomy, then had to have haematoma evacuation 6 days later which was very scary! Lumpectomy results yesterday and margins aren't clear so unfortunately I have to have a second excision on 4th April. I'm gutted they have to go in again. I'm thinking if they don't get it all this time I'll have a mastectomy. Recovery has been really challenging and I still can't wear a crop top, sports bra or soft cup bra for any longer than a couple of hours. Intense itching, needle stabbing and feeling that all fabric that touches the nipple is chafing. 
My sons seem to think I should be ecstatic as it's still non invasive and don't understand why this has got me down. Daughter is more understanding and husband is supportive understanding my frustration as this impacts in our life together.

Really lovely to see the interaction and mutual support on this thread and to know we experience similar things xx

Hi there

I have invasive lobular cancer, grade 3, stage 2 . Not sure if stage 2a or 2b as although there were a few cells in 1/4  sentinel nodes the report says negative lymph involvement.  I really didn't expect a second op either as surgeon had removed lots of tissue (660 grams in each breast ) the first time. The second op was much quicker though. 

I understand how you're feeling, I initially had stinging, throbbing pain. Now I'm at the intense itching, numb in some areas stage. I'm also leaking from the incisions as they heal and going from soft cotton bras to cotton crop tops at night. I only just tried to stop putting dressings onto the breast creases as of today to see if that helps with the itching. I can still only sleep on my back which isn't my normal sleeping position but I'm still glad I got the reduction as it will be great once it all settles. No-one really explains how long it will take to heal. The breast nurse said 3-4 weeks but I'm now 8 weeks since my first main surgery and I'm nowhere near back to normal.

I think we just need to be patient and know that the tumours are being dealt with.  I find waiting on results and upcoming appointments difficult. It's not nice that we all have to go through this but good to know there is support out there from others in the same boat. 

I wish you well for your 2nd op and hope you get clear margins this time. X

Ps great to hear everything went well with your surgery PositiveT,  all the best for your healing. X

Thank you so much! Xx

Hi PositiveT 

That's great news. Hope you managed to get a decent night's sleep and good that you are in the road to recovery. I'm four weeks post lumpectomy and feel fine - have played tennis twice this week and not had any pain. I'm sure it won't be long before you're feeling more like yourself again.

take care

x

Thank you!

Wow, tennis after 4 weeks sounds pretty impressive!! That's fab that you've recovered so well!

Have been a bit more sore today but to be expected I guess now the anesthesia and block will have fully worn off!!

Sending hugs and best wishes xx

I'm right handed and my lumpectomy was on my left breast which made it a lot easier. So fed up I won't be able to play for a while after my mastectomy. It's the best thing for my mental and physical health. 

Your soreness probably won't last too long - mine got easier after the first few days.

xx

Thanks for the update, I've been thinking of you. Hope you're feeling ok today.

I'm good, nerves kicking in for me already. Xx