Mastectomy

I found out today that I might need a mastectomy. I've been crying all day. In the space of a few weeks it has went from removal of cancer with breast lift to now a reduction or mastectomy depending if we get clear margins or not from my first op to remove cancer. If I need a mastectomy I won't qualify for reconstruction due to my BMI which isn't massively over the requirement. I'm really struggling with it all. I feel that I'm being vain when I should be lucky that my cancer is early and treatable. 

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  • Hi Twinmum.

    Really sorry to hear you have received this news today. Its OK to cry and you are not being vain at all. The idea of losing a part of you is totally terrifying and any breast surgery and cancer diagnosis no matter how early and treatable has a huge effect on a person mentally and physically.

    What was it that changed the treatment plan for you? 

    Be kind to yourself! You never have to apologise for how you are feeling.

    Sending hugs x

     

  • Thank you for the reply. 

    When I went to get my magseed ultrasound they ended up doing more biopsies as there was another area they weren't sure about which turned out to be cancerous too. I have 5 small areas over a section of my breast. I do have large breasts so hoping the reduction works out. Xx

  • I was the same, as soon as I heard the words mammoplasty I was smiling under the face mask. She said I'll let you think about it but I think I know the answer. My partner was just looking bewildered as he hadn't realised what she meant.  The surgeon also explained that having less tissue would mean radiotherapy would work better and possibly cut down on recurrence risks. Makes sense to me. 

    Further treatment was to be radiotherapy to breast and hormone therapy as hormone +ve, her2 -ve.  Due to grade 3 and very tiny cells in 1/4 sentinel nodes following surgery they have organised an Oncotype test to see if there would be any benefit to having chemo. Fingers crossed there would be no benefit as it's the one thing I didn't want to happen. I'll know more on 15th March.

    I've learned so much from this site since I was diagnosed in November,  still can't quite believe it's happening mind you.  Positive thoughts though & we'll all get through it. x

  • I really hope you get the right result from your oncotype test and don't have to go through chemo. But either way....you've got this.

    I haven't been told anything about hormone positive/negative yet. Perhaps after the biopsy on everything that is removed?!?

    It's such a journey isn't it. Not one we want to be on but am sure we will get to the final destination!

    Stay strong xx

  • You'll get some pathology info after the biopsy but all of the info after your surgery. As I said mine was 22mm to begin with then 43mm after removal.  That concerned me a bit but it's still a stage 2 cancer & considered to be caught early. Mine is lobular, less common than ductal & no obvious lump.

    Thank you, I'm praying just radiotherapy & hormone therapy.  You're right we've got this and will get there. x

  • Magseed was absolutely fine. I got one put in lying on the bed and the other under mammogram which is when I fainted but I'm a fainter at the best of times. Think it's because I was sitting up for that and felt the needle and was thinking about it too much. 

  • Yay! That's good to hear. Apart from the fainting bit!

    Next step surgery. Bring it on, we've got this xx

  • Sorry I've not been on for days. 

    I'm so tired, think it's the overthinking and waking a bit during the night. 

    Hope all goes well for your surgery. Please let me know how you get on. 

    You've got this. Xxx

  • Thank you! It's all feeling very real now.

    Magseed in, PCR was negative so all set for tomorrow. One more sleep although I don't imagine I'll be getting much - last few days I have been awake from 4.00am! Sorry you are struggling to sleep too - it is so difficult to stop the mind from wandering.

    Will be in touch after surgery!

    Take care xx

  • Good luck - I'm sure you'll feel much better once the op is done. It's a massive sense of relief. Just try not to overdo it. I felt ok a couple of days later and rubbish the following week! We're all thinking of you.

    x

  • Hi

    i haven't slept properly since my first diagnosis in December. After being told I need a mastectomy, as I didn't get clear margins and there is invasive cancer in my left boob, i went to the doc last week and am now taking diazepam which has made a massive difference to my sleep and my ability to cope.

    It might be worth talking to your doctor if you haven't already.

    x  

  • Thank you Bubblesmum!

    I am fully planning to take it easy - my daughter is spending the weekend with my mum so I can rest and be looked after! 

    Hope you're doing ok after your news about the invasive and needing a mastectomy. It's good that your doctor has helped with prescribing diazepam as it's so important to feel rested to be able to function.

    Take care and sending best wishes xx

Reply
  • Thank you Bubblesmum!

    I am fully planning to take it easy - my daughter is spending the weekend with my mum so I can rest and be looked after! 

    Hope you're doing ok after your news about the invasive and needing a mastectomy. It's good that your doctor has helped with prescribing diazepam as it's so important to feel rested to be able to function.

    Take care and sending best wishes xx

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