Mastectomy

I found out today that I might need a mastectomy. I've been crying all day. In the space of a few weeks it has went from removal of cancer with breast lift to now a reduction or mastectomy depending if we get clear margins or not from my first op to remove cancer. If I need a mastectomy I won't qualify for reconstruction due to my BMI which isn't massively over the requirement. I'm really struggling with it all. I feel that I'm being vain when I should be lucky that my cancer is early and treatable. 

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  • Hi Twinmum.

    Really sorry to hear you have received this news today. Its OK to cry and you are not being vain at all. The idea of losing a part of you is totally terrifying and any breast surgery and cancer diagnosis no matter how early and treatable has a huge effect on a person mentally and physically.

    What was it that changed the treatment plan for you? 

    Be kind to yourself! You never have to apologise for how you are feeling.

    Sending hugs x

     

  • Thank you for the reply. 

    When I went to get my magseed ultrasound they ended up doing more biopsies as there was another area they weren't sure about which turned out to be cancerous too. I have 5 small areas over a section of my breast. I do have large breasts so hoping the reduction works out. Xx

  • I really hope you get the right result from your oncotype test and don't have to go through chemo. But either way....you've got this.

    I haven't been told anything about hormone positive/negative yet. Perhaps after the biopsy on everything that is removed?!?

    It's such a journey isn't it. Not one we want to be on but am sure we will get to the final destination!

    Stay strong xx

  • You'll get some pathology info after the biopsy but all of the info after your surgery. As I said mine was 22mm to begin with then 43mm after removal.  That concerned me a bit but it's still a stage 2 cancer & considered to be caught early. Mine is lobular, less common than ductal & no obvious lump.

    Thank you, I'm praying just radiotherapy & hormone therapy.  You're right we've got this and will get there. x

  • Magseed was absolutely fine. I got one put in lying on the bed and the other under mammogram which is when I fainted but I'm a fainter at the best of times. Think it's because I was sitting up for that and felt the needle and was thinking about it too much. 

  • Yay! That's good to hear. Apart from the fainting bit!

    Next step surgery. Bring it on, we've got this xx

  • Sorry I've not been on for days. 

    I'm so tired, think it's the overthinking and waking a bit during the night. 

    Hope all goes well for your surgery. Please let me know how you get on. 

    You've got this. Xxx

  • Thank you! It's all feeling very real now.

    Magseed in, PCR was negative so all set for tomorrow. One more sleep although I don't imagine I'll be getting much - last few days I have been awake from 4.00am! Sorry you are struggling to sleep too - it is so difficult to stop the mind from wandering.

    Will be in touch after surgery!

    Take care xx

  • Good luck - I'm sure you'll feel much better once the op is done. It's a massive sense of relief. Just try not to overdo it. I felt ok a couple of days later and rubbish the following week! We're all thinking of you.

    x

  • Hi

    i haven't slept properly since my first diagnosis in December. After being told I need a mastectomy, as I didn't get clear margins and there is invasive cancer in my left boob, i went to the doc last week and am now taking diazepam which has made a massive difference to my sleep and my ability to cope.

    It might be worth talking to your doctor if you haven't already.

    x  

  • Thank you Bubblesmum!

    I am fully planning to take it easy - my daughter is spending the weekend with my mum so I can rest and be looked after! 

    Hope you're doing ok after your news about the invasive and needing a mastectomy. It's good that your doctor has helped with prescribing diazepam as it's so important to feel rested to be able to function.

    Take care and sending best wishes xx

  • Hi Twinmum & Bubblesmum!

    Just to let you know that surgery is done!

    Was home by 2.30pm curled up on the sofa with my nest of cushions /pillows. Felt quite fuzzy for a while but OK now and no pain at the moment. Keeping on top of the drugs to hopefully keep the pain at bay. Hoping for a decent sleep and see how I feel in the morning!

    Anyway, just thought I would update!

    Hope you are both doing OK.

    Sending love xx

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  • Hi Twinmum & Bubblesmum!

    Just to let you know that surgery is done!

    Was home by 2.30pm curled up on the sofa with my nest of cushions /pillows. Felt quite fuzzy for a while but OK now and no pain at the moment. Keeping on top of the drugs to hopefully keep the pain at bay. Hoping for a decent sleep and see how I feel in the morning!

    Anyway, just thought I would update!

    Hope you are both doing OK.

    Sending love xx

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