Hi everyone. I have TNBC whichis treatable not curable. I'm really struggling with this as I know options are limited and I'm very low at the moment. Any words of wisdom out there pls?
Welcome to the forum the club nobody wants to join. There's quite a few uncurable or even terminal .on here who have been here for years .I myself was uncurable for two years then saw another oncologist and told i was palative care ,I was given 5 years. 6 years ago im still here still fighting and positive . hopefully my good friend [@mare] and a few others will Pop on to talk to you soon .
I was diagnosed Feb 2016 stage 4 prostate cancer gone to lymph nodes spine ribs pelvis and a lung . Kept working for two years then had to retire to look after my wife she was diagnosed with Alzheimer's and Parkinson's plus other problems im her carer .
Many thanks for your quick reply. Unfortunately TNBC doesn't have as many treatment options ( which is the big problem) so I'm really down in the dumps, and scared. Let's hope an amazing scientist comes up with the goods this year.
It is only natural to feel down in the dumps. If your medical team are looking at treating you then I would look on that as good news perhaps? But it might be a good idea to reach out and ask for help with the difficult mental side of living with cancer; it can be tough.
People always tell me to be positive, but that's easier said than done isn't it? Over the years living with my cancer I have found various ways to help myself mentally. And from the outset I was determined to stay as healthy as I can alongside my treatment to put myself in the best possible position. And, in doing so, I gained the Hope and Focus I needed to carry on.
My daughter told me from the start "It is your cancer Mum. It belongs to you, and you must take control", and her words really helped. I used to compare myself with others and I spent too long looking at various spurious statistics online, which were by their very nature rather old (and not me). My daughter's words helped me see that my cancer is my own, and maybe not like anyone else's.
My cancer was widespread throughout both of my lungs and liver, moderately aggressive IDC, but hormone receptive. Chemotherapy shrunk my tumours well down and I have lived with them ever since with Tamoxifen. I get results this week so am totally getting that anxiety already.
I am wishing you all the best, and crossing everything I have for you that your treatment can get it shrunk too, and that you will find your way through this and live with it for a very long time too on the treatment that is chosen as the best for you.
Huge hugs, take good care of yourself, you are important.
Reepsie alot of people don't have many options for treatment my only one is hormone therapy which has to be changed for stronger option every couple of years . there comes a time when no stronger option for me .i had chemotherapy at beginning but bad side effects because of other medical conditions . im 70 years old had a good life been married over 50 years and planning on celebrating more anniversaries .
i have blood tests every month , phone call from oncologist every three months and another specialist every month .
alot of us have found being sure or positive helps ..
