Kiera

Wishing you all the best for treatment. I have stage 3 lobular breast cancer grade 2 and had surgery and been told radio and hormone treatment and possibly more surgery to remove all lymph nodes next but all the cases I am seeing for my size 5cms on MRI seem to have chemo and often told late on so I fear this will happen to me too and same as you dreading it. 

How much chemo do you have? When I asked about it they said it would be 6 times 3 weeks apart and my hair would all fall out. I am not sure how you get your head around it, I guess its best to do everything to maximise your chances of killing the cancer and reducing reoccurance and to know you gave it everything. But gosh I wish there was a kinder way for you. 

Feel free to message me directly if that helps and you can do that on here, never tried but I have people from other sites were we talk directly and it does help though I can only offer sympathy and listen as not been through it myself yet. 

Take care and lots of love

Silkies 

Hi Kiera

I have an appointment on Thursday to find out if I am starting chemo -had Onco DX test to see if it would be of any benefit.If the results say there's any benefit at all I will definately be having it as although it is gruelling if it means it gives us less chance of reoccurance it will be worth it.

Been told mine would be fortnightly and 8 sessions. 

I was originally told my lymph nodes were clear but node taken showed 5mm cancer , it was a shock.I totally understand how the change in the treatment plan sends you into a spin.I was really struggling with the new information but am now focusing on the new plan xx Sending hugs

Hi Silkies , love the name!
Thank you for your message it means a lot. I am having 6 cycles of FEC 3 weekly the radiotherapy and hormone therapy. Yes hair loss is my biggest dread, I have already got some bandanas and cried when I opened them I have to say. I really don't know how we get this into our heads process it and carryon like normal. I cry at the drop of a hat, I feel like bloody tiny tears!

I know deep inside that I have to have it and in a funny kind of way I want it to maximise the benefits and not have a reoccurrence but it doesn't make it any easier.

I got my appointment today for my heart scan, it's tomorrow then I am expecting one for the Picc to be put in, that will certainly make it real.

I hope you get your surgery soon, do you have a date. It's such a shock when you think you are having something done and that will sort that but then it all changes.

can I ask how old you are? I'm 57. 

thank you for your kind words, I would love to keep in touch

Hi Minty lovely to hear from you.

I really hope all goes well for you.

my oncotype was 35 but it was the vascular invasion the changed, up till my result I think even my breast care nurses thought no chemo. My oncotype said I would have a 15% benefit from chemo so to high not too.

yes its definitely the change in direction that's difficult to swallow but hopefully 6 months down the line we can look back and be happy it's done.

please take care and I hope all goes in your favour xx

Hi Kiera,

I am 48 with 2 kids at secondary. Have sent you a friend request so we can message. We have silkie chickens, they are very fluffy, more fluff than chicken as my son loves them. I have had a mastectomy so that bit is done though as soon as I was coming round from it they said may need more surgery to take all lymph nodes out but said breast part had gone well. Its quite a big lump, around 5cms cubed, chemo has not been mentioned so far but a lump that big plus lymph nodes involvement don't rate my chances - on scans nodes were clear but the way was phrased implied at least one has cancer in it and now a 4 week wait for results which half way through, on 14th. 

I am also terrified of chemo, at the moment I am in lets pretend it isn't going to happen mode but my plan at first I thought I would just scream if they told me or run away and hide permanently under my fleece duvet, but neither of those would really achieve anything. I am terrified of hair loss and being sick but I guess we have to do whatever it takes and this time next year we should both be cancer free and this will just be a bad memory. Hope its not as bad as we fear and thinking of you and sending hugs. Wish you did not have to go through this. I would just take it day by day and each day you should be closer to being cured, play lots of nice music, watch trash TV, do whatever you find distract you and remember you are a beautiful person with or without hair and hair will grow back in time. Maybe we can put silkie chickens on our heads. :love:

Take care

Silkies

Good luck for Thursday Minty. Mine did say if I have one node they will do radio then hormone tablets. More than one of sentinel nodes surgery to remove others then radio then hormone tablets. But am very sceptical won't be given chemo, think they are just breaking bad news up so we don't run away but best to kick the cancer as hard as we can I guess. I think you have lobular like me, if you have not found it there is a very good Facebook group called Linking Lobular Ladies I recently joined with lots of ladies with lobular breast cancer and also feel free to message me anytime. 

Love Silkies

Hi silkies, thank you for yr message. The friend request can you direct me as I can't see how to access it thanks lovely x

Found it 

Good luck for tomoz Minty I am keeping everything crossed for you, let me know how you get on if your happy too xxx

Thanks both 

Just want to know whats happening now -will let you know x