Change in BC treatment plan. Has anyone else had this happen

Hi I posted recently about my new BC diagnosis in September. I have grade 3 IDC with clear lymph nodes so was hopefully expecting surgery which I've had followed by radiotherapy and hormone therapy as it was initially ER pos and HER neg however after a recent appointment it appears that I have some HER negative cells and some vascular invasion.

I am now having chemotherapy starting the week after next and am totally dreading it.

Are there ladies that have experienced this? 

 

 

Love Kiera 

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  • Hi Kiera

    I have an appointment on Thursday to find out if I am starting chemo -had Onco DX test to see if it would be of any benefit.If the results say there's any benefit at all I will definately be having it as although it is gruelling if it means it gives us less chance of reoccurance it will be worth it.

    Been told mine would be fortnightly and 8 sessions. 

    I was originally told my lymph nodes were clear but node taken showed 5mm cancer , it was a shock.I totally understand how the change in the treatment plan sends you into a spin.I was really struggling with the new information but am now focusing on the new plan xx Sending hugs

  • Good luck for Thursday Minty. Mine did say if I have one node they will do radio then hormone tablets. More than one of sentinel nodes surgery to remove others then radio then hormone tablets. But am very sceptical won't be given chemo, think they are just breaking bad news up so we don't run away but best to kick the cancer as hard as we can I guess. I think you have lobular like me, if you have not found it there is a very good Facebook group called Linking Lobular Ladies I recently joined with lots of ladies with lobular breast cancer and also feel free to message me anytime. 

    Love Silkies

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  • Good luck for Thursday Minty. Mine did say if I have one node they will do radio then hormone tablets. More than one of sentinel nodes surgery to remove others then radio then hormone tablets. But am very sceptical won't be given chemo, think they are just breaking bad news up so we don't run away but best to kick the cancer as hard as we can I guess. I think you have lobular like me, if you have not found it there is a very good Facebook group called Linking Lobular Ladies I recently joined with lots of ladies with lobular breast cancer and also feel free to message me anytime. 

    Love Silkies

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