Hi Kiera

I have an appointment on Thursday to find out if I am starting chemo -had Onco DX test to see if it would be of any benefit.If the results say there's any benefit at all I will definately be having it as although it is gruelling if it means it gives us less chance of reoccurance it will be worth it.

Been told mine would be fortnightly and 8 sessions. 

I was originally told my lymph nodes were clear but node taken showed 5mm cancer , it was a shock.I totally understand how the change in the treatment plan sends you into a spin.I was really struggling with the new information but am now focusing on the new plan xx Sending hugs

Hi Kiera

I have an appointment on Thursday to find out if I am starting chemo -had Onco DX test to see if it would be of any benefit.If the results say there's any benefit at all I will definately be having it as although it is gruelling if it means it gives us less chance of reoccurance it will be worth it.

Been told mine would be fortnightly and 8 sessions. 

I was originally told my lymph nodes were clear but node taken showed 5mm cancer , it was a shock.I totally understand how the change in the treatment plan sends you into a spin.I was really struggling with the new information but am now focusing on the new plan xx Sending hugs

Hi Minty lovely to hear from you.

I really hope all goes well for you.

my oncotype was 35 but it was the vascular invasion the changed, up till my result I think even my breast care nurses thought no chemo. My oncotype said I would have a 15% benefit from chemo so to high not too.

yes its definitely the change in direction that's difficult to swallow but hopefully 6 months down the line we can look back and be happy it's done.

please take care and I hope all goes in your favour xx

Good luck for Thursday Minty. Mine did say if I have one node they will do radio then hormone tablets. More than one of sentinel nodes surgery to remove others then radio then hormone tablets. But am very sceptical won't be given chemo, think they are just breaking bad news up so we don't run away but best to kick the cancer as hard as we can I guess. I think you have lobular like me, if you have not found it there is a very good Facebook group called Linking Lobular Ladies I recently joined with lots of ladies with lobular breast cancer and also feel free to message me anytime. 

Love Silkies

Good luck for tomoz Minty I am keeping everything crossed for you, let me know how you get on if your happy too xxx

Thanks both 

Just want to know whats happening now -will let you know x

Hi Minty I'm sure you do, not much longer to wait. Fingers crossed for you!

I've got my head around the chemo now, just have to get on with it. If the outcome is the same you will come to terms with it. I have read a chat that someone in the same position as me was given the option of chemo, she elected to have it but then the consultant thought not as he felt he would be over treating. When I look at this I know I need chemo so hanging on to the positives now.

Take care and good luck again lovely xxx

Hi Kiera and Silkie

Well I had my appointment and I am still going to wait as unbeleivably Fed Ex lost my tissue sample and it never got to America so another has to be sent.At least another two weeks.

Oncologist said this has never happened before in ten years of him ordering the test-typical.

I will have radiotherapy first for three weeks whilst waiting then chemo will come after if needed.Also gave me Tamoxifen to start tomorrow.

Kiera

I am glad that you are more settled about the thought of chemotherapy.x

Oh god Minty that's aweful for you, can't believe it. At least they are going to start treatment while they wait. I was concerned how it was growing while I was awaiting treatment. 
you will get sorted soon lovely. 
 

I got my chemo appointment today 14 th January, go for a Picc inserted on Monday 12 th. It's getting very real now. Thinking positive, or at least trying .

good luck with everything,keep in touch.

love Kiera

Thanks Kiera

Yes at least I will be having some treatment while I wait.

I think Picc is a good idea -thats what I will do if needed.When I had the MRI dye thing they took loads of goes to get the cannula in.I hope you stay well up to next week x 

When does your radiotherapy start hun? 
yes Picc s are much better, only the one insertion. I do hope you get yr oncotype result soon and don't need chemo!

take care love Kiera 

Hi Kierra

How are you doing ?

I have decided not to get the Onco test re done and just go for chemo.Not sure the oncologist agrees but I'm the one who has to live (hopefully !) with my decision.

I might be going to the chemo clinic on Thursday , depends if its cancelled because of Covid apparently.

Have you had a planning appointment or just got picc and blood test today ?

Thanks x