Effects of coming off tamoxifen after 10 years

Hi, I came off tamoxlfen in July after 11 years, I’ve not had any of the many other side effects mentioned. I am 58 and tamoxifen through me into menopause at 46. Since coming off tamoxifen I feel permanently exhausted and have what I can only describe as brain fog, I can also burst into tears in a second at ridiculous things. I was wondering if anyone else has felt like this.

Parents
  • I am coming up to my 10 years from first diagnosis. It’ll be 5 yrs post second diagnosis. I’ve had all the symptoms mentioned here for those who have come off tamoxifen. I do often wonder if there is any benefit to me being on it this long. But having brain fog, feeling flu like  nausea and exhaustion are all part of my life on tamoxifen with rib pain and sometimes diarrhea included - so guess there would be no difference! This is awful to read how you all are feeling coming off tamoxifen. I honestly had thought it all gets better.

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  • I am coming up to my 10 years from first diagnosis. It’ll be 5 yrs post second diagnosis. I’ve had all the symptoms mentioned here for those who have come off tamoxifen. I do often wonder if there is any benefit to me being on it this long. But having brain fog, feeling flu like  nausea and exhaustion are all part of my life on tamoxifen with rib pain and sometimes diarrhea included - so guess there would be no difference! This is awful to read how you all are feeling coming off tamoxifen. I honestly had thought it all gets better.

Children
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