I just came here to add my experience, which has been a bit more positive; I came off Tamoxifen about 5 or 6 weeks ago and have been okay since.

I'd googled what side effects to expect (having been provided literally no information about it from the hospital), and this was the only place I could find any information at all. I was quite worried given everyone's experiences on this thread. I guess people don't generally write about more positive experiences. Anyway, I had no symptoms when I went on it (aged 43, already menopausal, following a mastectomy), and haven't had any symptoms since coming off. Possible deterioration of my long distance eyesight, but that could just be general ageing. Hopefully if anyone's about to come off and is reading this, then they may be a bit less worried, as not everyone has the terrible experiences. Sorry anyone has to go through these awful symptoms :(

I just came here to add my experience, which has been a bit more positive; I came off Tamoxifen about 5 or 6 weeks ago and have been okay since.

I'd googled what side effects to expect (having been provided literally no information about it from the hospital), and this was the only place I could find any information at all. I was quite worried given everyone's experiences on this thread. I guess people don't generally write about more positive experiences. Anyway, I had no symptoms when I went on it (aged 43, already menopausal, following a mastectomy), and haven't had any symptoms since coming off. Possible deterioration of my long distance eyesight, but that could just be general ageing. Hopefully if anyone's about to come off and is reading this, then they may be a bit less worried, as not everyone has the terrible experiences. Sorry anyone has to go through these awful symptoms :(

I have now been off tamoxifen 12 weeks. The only real side effect I have had is flushes . These were nightly for the first few weeks but have almost gone now.

Went to doc to discuss coming off the tablets . He had no knowledge to assist me. Said he would make enquiries haven't heard anything. 

While I was there they discovered I have a irregular pulse and heartbeat now. Awaiting a cardiology appointment. 

I am currently waiting for a call from the breast clinic to advise me about stopping tamoxifen after 10 years. Hoping not to suffer as alot of others have!