My Journey Continues

Hi all my forum buddies.  Just wanted to post on a new thread as it is more relevant than where my journey began.  Hope to see you here. Jules

Parents
  • Thinking of you today xx love Kerrie xx
  • Hi everyone

    Just logged on and am totally overwhelmed (you sure as hell know how to bring out my emotions!!).  Thamk you all so much.  My hubby's celebration of life was so well attended it was 'shifted' to the larger chapel and despite the obvious sadness, we were as one in our thoughts and prayers as we bade a final goodbye. Many tears but also laughter as we all had our memories out for an airing in the three hours following the service. Beautiful buffet provided by his local drinking hole and a good few glasses raised (even if a lot were soft drinks ha ha) and we had some to take home for supper too!  The children and grandchildren came back and we had a very relaxed evening together (daughter and family stayed over so the boys could go to bed at normal time).

    Today has been spent catching up with thank you notes and more paperwork plus tea and cake with friends at lunch time.  We managed to raise over £550 for the nominated charity who had helped hubby at the start of his journey - he would have been thrilled.

    Brian, sorry to read about your Grandson's infection and do hope they can get him more comfortable very soon.  Our eldest has an emergency ENT appointment tomorrow (another half day off school) to follow up on a week of nosebleeds (the last one took over 2hrs to stem) and to see if they are going to cauterize.  I shall have Zack for a couple of hours (he has just cut tooth no.3 and it will be easier for daughter/son in law to concentrate rather than coping with both of them during the hospital appointment).

    Once again thanks to all my forum friends for your continued love, prayers and support which is truly appreciated.  Hugs and kind thoughts to your all.  Jules xxx

  • Hi Brian

    Hope your blood test comes back with good results re your prostate 'levels' and that your meeting this evening went well - you are surely being kept busy and its nice that you can give so much back having dealt with cancer firsthand.

      I have spent a good few hours writing thank you notes in response to the wonderful donations made in hubby's memory and they are still coming in so the chosen charity will be chuffed to bits I hope.

    Good news on Mum's re-assessment. Had call today and she has new social worker so we are having a meeting next Tuesday afternoon which should move matters on - a great relief I can tell you. However it turns out, at least we will know where we stand but hopefully she will  be able to stay put- time will tell. She was in good spirits today and had had her hair set too - made such a difference to see her smile on my arrival.

    Really hope that your youngest grandson's tummy can be sorted out soon - he is such a brave lad and deserves to be pain free and comfortable so that he can enjoy life and be back with his school friends.

    My eldest grandson had bis appointment at the ENT department of local hospital and had one nostril cauterized so hoping this will help him.  Another afternoon out of school but needs must,  He has Science Club after school tomorrow and is really looking forward to it.

    Well best go and 'dish up' - have Cornish Pasty in the oven (wont be as good as what you get in Cornwell but the kitchen is not so far to travel). All the best to you and Mrs B and hope her brother (and your Dad) still doing ok.  Hugs Jules x

  • Hi Jules = I am glad your husbands Celebration of Life went well  - I can imagine it was a very moving occasion and I am glad it went well. It must be strange just making breakfast as you are now. How strange it is!!

    my bestest wishes =  you are so strong Jules = do take care = we will be thinking of you

    Steven xxx

  • Hello Jules so glad things are moving as ragards to mum ,and that the new social worker is more helpful too, about time they got back to you eh ..Good that the donations are mounting up andyou will be proud to hand it over to the charity im sure ..Im so glad you are still able to come to the forum brave lady and still giving much needed support to others, what would we do without you  .My youngest son came to dinner today he had a day of so I made cottage pie his favourite then we walked his dog a jack russel Freddie and Rusty we went to the beach and thought it would quiet but I have never seen so many dogs in one place but it did stay dry for us .Jules Take care hugs sent x...Sueanne

  • Hi Jules,

    I am so glad for you that Monday went as well as it did and that you were also able to raise as much money as you did in hubby's memory.  You and your family truly are amazing!

    It is a shame that, with everything you have had to deal with you are having such a tough time trying to sort out the re-assessment for your Mum.  Threatening them with the PM is a good idea as I discovered recently, after the lack of support from head office after Claire left, that going above somebody's head can be the only way to gert things done.

    Just to update on Hannah they said on Sunday that she would receive a dye and scan on her kidneys on Monday which they promptly failed to do.  As a result she will either stay in hospital for another week or go home and then return next week as they only seem able to perform this test on a Monday.  Maybe they do broken legs on Tuesdays and stubbed toes on Wednesdays, (sorry for the sarcasm!)

    Will check in soon although I have an awful lot to sort out at work before I take next week off to spend a busman's holiday at home and replace the facia and gutter on the bungalow.

    All the very best to you my friend.

    Garf. xxx

  • Hi Jules, glad you are getting such wonderous support, you deserve it.  Keeping busy is a godsend.  I am still busy , paperwork etc 3 months down the track.  Good mum appears to be doing better. Visited the in laws tdy, first time since hubby passed.MIL only got out of hosp 3 days ago, but was good to be there when nurses visited so I could ask them what was the prognosis etc.... Questions father in law forgets to ask due to his advancing years and all he has on his plate.  Managed to do a bit of weeding for them while MIL dosed and also allowed father in law to talk freely to me.  Son and family will visit them during the weekend, which they will enjoy immensely.  I am so fortunate in my family.big hugs to you , lovely lady.  Kathy xx

  • Hi Stephen

    To be honest having breakfast alone had been a feature long before hubby passed away (lunch and dinner too!!) as in the last months he struggled with food.  Now I am in the strange phase of adjustment to so many things that only time can help with.  Still on that day by day course and keeping occupied through both necessity and good diversions are available too.

    Have been able to help our children too so motherly instincts still in use (being needed as well as to comfort is a very real part of the early healing process I find).  Have had sister in law here for the evening before her return to Isle of Man and now 'winding down' before seeing what tomorrow brings (apart from doing the laundry(may order a new washing machine tomorrow!!) and going on my usual bingo night. out).  Kind thoughts sent to you and yours. Jules

  • Hi sueanne

    Day to day tasks help to keep me on the straight and narrow and being focussed on what needs to be sorted will certainly keep me occupied for weeks and possibly months to come. Not rushing but being practical and am lucky to be able to have the time to give support to those going through similar journies (though sad to know how much pain we all have to go through along the way).

    Nice that you had your son and were able to treat him to his fave meal and walk the dogs. I met my daughter in the High Street today and after doing our shopping stopped for hot chocolate (and a cup cake for her!) whilst Zack slept in the pushchair.  Will certainly miss the treats when I go back to work!!!

    Take care and sending peaceful thoughts and hugs.  Jules x

  • Hi Garf

    Really sad to read that Hannah still has no answers yet and is being kept waiting - really horrid time for you all. Maybe another case for 'going higher up' to get results - just wish it was not necessary in every walk of life these days to achieve the right results!!!  No apologies needed for your sarcasm (I suspect you are spitting bricks inside just now).

    Hope you find time for some relaxation during your 'busman's holiday'.  I have builder coming at the weekend to 'size up' new wall to keep back garden secure (fence resembles a woodpile!!) and hope to get the car moved too.  Highlight tomorrow could be ordering new washer/dryer - how sad is that ha ha.

    Take care of yourself and hope you manage a peaceful break from the work stresses you have been under.  hugs sent your way and I must get some shut eye!  Jules

  • Hi Kathy

    Good that  you have managed that 'first visit' to the inlaws - all the firsts seems to come with differing emotions I am finding at present.Hopefully now that your MIL is recuperating at home her progress will be steady and am sure they will enjoy family visits.

      Next week is turning out to be full of appointments so just as well still on leave.  Hoping to off load the paperwork surrounding the legal side of things as should appoint solicitors after the weekend.  This will at least lighten the load. Our eldest grandson, having  had one appointment at hospital yesterday for nasal cauterization has another appointment through to attend Gt Ormond Street Hosp  next week (this refers to check up into 'night rocking' and entails him being watched whilst asleep so I am having Zack so both Mum and Dad can be with him. 

    Well the clock has turned onto another day and as I want to be up early tomorrow I had better 'hit the sack'.  Chat soon and do take care of yourself .  Kind and peaceful thoughts are sent your way.  Jules x 

  • Good morning Jules,

    I see you were burning the midnight oil last night. Pleased you are hoping to order your new washing machien today. Mrs B loves the new one we bought some months ago now. Mrs B said, "Its so simple to use even an idiot like me could probably use it", thats not to say I will however:D.

    When I went to see my youngest grandson, he ran up and gave me a massive hug; really made me feel welcome. I have another two meetings next week so still keeping busy. I am luck Mrs B doesnt mind me keep going out. While writting this I am eating a bag of cashew nuts as I have now finnished all my chestnuts.

    Glad you have at last got some news on your mothers social service help. I hope this one is more appreciative of your mothers needs and also the affect it has and is having on you. Hope your grandsons hospital trip can help solve his problem. I have now had three e-mails thanking me for my speach last week which were much appreciated.

    Anyway, take care Jules, I have to help Mrs B now with the hoovering. Have a peaceful weekend for you truely desrve it, big hugs, Brian

Reply
  • Good morning Jules,

    I see you were burning the midnight oil last night. Pleased you are hoping to order your new washing machien today. Mrs B loves the new one we bought some months ago now. Mrs B said, "Its so simple to use even an idiot like me could probably use it", thats not to say I will however:D.

    When I went to see my youngest grandson, he ran up and gave me a massive hug; really made me feel welcome. I have another two meetings next week so still keeping busy. I am luck Mrs B doesnt mind me keep going out. While writting this I am eating a bag of cashew nuts as I have now finnished all my chestnuts.

    Glad you have at last got some news on your mothers social service help. I hope this one is more appreciative of your mothers needs and also the affect it has and is having on you. Hope your grandsons hospital trip can help solve his problem. I have now had three e-mails thanking me for my speach last week which were much appreciated.

    Anyway, take care Jules, I have to help Mrs B now with the hoovering. Have a peaceful weekend for you truely desrve it, big hugs, Brian

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