I am a stage 4 tongue cancer survivor

It was a long tough road but it seems as if I have won the battles so far.

Let me start this by saying I smoked from 1972 - 1977 and the Dr's do not think this was an issue.  I am a extremely light drinker.  I drink socially and only a beer or a glass of wine and never more than one.  HPV could be a culprit as I dated more than a few women when I was dealing with my divorce in 1987-88.  It's amazing that it took 20 years to present if that is indeed the cause.  I read that an oncologist wrote we have cancer in our bodies all the time.  It's just a matter of some trigger setting it off.  Stress, sickness of another type, etc.  I had tons of stress in July of 2007.  My wife lost her Dad and 10 days later I lost my Mom.  Her parents live in China and my Mom is in the US (as am I).

September of 2007 - lost taste of food.  I tasted something but it was only half the flavour I expected.  My family Dr said taste issues are in the brain so she ordered a CT of my brain.  No abnormalities.

November 2007 - Still experiencing loss of taste but now have developed a nagging pain under my right ear. - Went to see a Ear, Nose, Throat Dr.  He said it was TMJ and take Ibuprofin.

January 2008 - Went to another ENT Dr who said it could be a nerve in my ear.  He ordered an MRI.  The guy who read it said he thought he saw something on my tongue.

January 2008 - Another MRI of my head and neck this time.  They found something but don't know what it is.

February 2008 - Biopsy confirmed the worst.  Cancer of the tongue.  Stage 3.

Feb 08 - saw a cancer surgeon - he said it was inoperable (too large) as he would have to remove my tongue and my quality of life wouldn't be there.

February 2008 - went to see an oncologist (1st opinion) who was too blunt.  Said he was leaving to teach at University and had said if the cancr is in my lymphnodes I will be dead soon.  Said I should see my dentist for review.

Feb 08 - Dentist, oral surgeon, gum Dr., all said my teeth should come out.  All my teeth!  So I went in to have them all removed surgically. (Insurance doesn't cover this I found out later).

Feb 08 - Surgery to put in the feeding tube and my 'Port-a-Cath' - makes delivery of Chemo easier.  Ordered several cases of liquid food (Insurance doesn't cover the food either).

March - got to see 2nd oncologist they mapped out my course of treatment.  7,000 units of radiation over a 7 week period.  They made my face mask (to hold my head still) and we started on Monday.

Three heavy doses of chemo (cisplatin).  The chemo would be delivered on days 1&2 of weeks 1, 4, and 7.  The dose is so strong they had to give me half at a time, so two days for one dose.

April 08 - we finished treatment.  Now I just have to start feeling better.

August 08 - PET scan shows tongue and neck are clear but now there is a spot on my spine and my lung to be concerned about (turned out it was nothing)

December 12 - PET is clean from the top of my head to my knees.  Yippie!!!!

Side effects - Good - I havn't had to shave my neck for four years now and it's as smooth as a babys bottom.  Lost a bunch of weight.  Kept it off until I had dental implants put in to hold my dentures in place better.   Now I'm heavy again.

Side effects - Tolerable -  When my weight was down I was cold most of the time.  Because of the targeted radiation my neck cramps up when it is cold in the room.  I can't whistle well at all and my singing voice isn't what it used to be.

Side effects - Bad - none.  I'm still here.

There is so much more to this.  feel free to ask questions.

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