Shelie7

Hi Shelie 7, I know you posted mths ago about letrazole. I've been taking it for 3yrs now,and  I've has different brands the worst one for me was Cipllia. I take Accord Brand now, its not great I had so many symptoms at the start of taking it,joint pain,muscle aches and pain. I also developed trigger thumb,which can be a side effect ,I had that for over a year,as well as plantas  fasciitis  in my feet. Those have now gone, but I still.get pains,in joints and muscles,,and both my shoulders  hurt  can't put my arms  behind  my back to scratch it lol. I've recently started getting hot sweats ,which I didnt get at start. But if it helps.stop the cancer coming back I'll continue and soldier on. I'm 66,I will be 67 in November this year. I've been lucky so far getting my Accord brand,as I asked my doctors to head my prescription at the top ...Accord Brand Only,I won't take any others  as just about tolerate this one and dont want to risk taking any other brands incase my side effects are worse,i couldn't  risk getting trigger thumb again,as that was awful and psinfull. I think with any  letrazole ,you have to find one you can tolerate, and what my doctors have done for me is give me two lots at a time,u also have bern prescribed Adcall tutti fruti flavour ,and thst helps with my calcium and bones. Also prescribed ibubrofen gell,to help with my pain,as I allready have degenerative atheritus, which I've had scince age 18. Try to stick  with a  letrazole Brand you find you can tolerate, I wish you good luck  in your moving on journey. 

Hi , there is apparently a shortage of Letrozole again! I’ve been on Accord since May , every side effect listed but managing to cope / counteract them , but last script they gave me Sun despite my Gp specifying Accord , but they didn’t have any . Well the difference!!!! Horrid night sweats, hot flushes with a vengeance , itchy scalp , more bone pain and this massive dark cloud and that’s after only 3 days!! I’ve managed to get one box of Accord but dread to think how I would cope on the Sun brand! It’s hard enough dealing with having cancer without this hassle ! Sorry for ranting 

Hi , there is apparently a shortage of Letrozole again! I’ve been on Accord since May , every side effect listed but managing to cope / counteract them , but last script they gave me Sun despite my Gp specifying Accord , but they didn’t have any . Well the difference!!!! Horrid night sweats, hot flushes with a vengeance , itchy scalp , more bone pain and this massive dark cloud and that’s after only 3 days!! I’ve managed to get one box of Accord but dread to think how I would cope on the Sun brand! It’s hard enough dealing with having cancer without this hassle ! Sorry for ranting 

Hi can't sleep, and just popped on the chst forum and saw your reply...thank you. 

Yes cancer is the gift that keeps on giving, I never realised that the after treatments would make you feel so rotten, they don't knform you of all the side effects you get whike taking letrazole.  It's hard at times,, and I was shocked to be told by my oncologist ( that I've never met I. Person,that I'd be on it for 10 yrs,I've 7 more to go. But it is whst it is and you just have to make the most of life,and do what you can do ,and try not to worry that you can't do whst you used to do. We are not brave ,lije everyone seems to think we are,we have no choice. We do what ever we're told to survive .Some days  are better than others are,  and im just grateful I'm.still here.