Hi GillMH,

I started on Accord approx 4 weeks ago and noticed that metallic taste in mouth in last week but also in the last few days have started with terrible aches in legs and hips. I am quite active so know it's not a change in excercise or anything. I had to put a heat rub on last night to get to sleep. I thought here we go now. Is the side effects starting!

After reading your reply and reading others I heard Cipla, so nipped into a local well known chemist today (up North) to see if they could get these if I got docs to write the brand on prescription. After saying they had seen them then her going to have a word with pharmacist, came back and said sorry can't get these for you.  Will try asking round now at other chemists. 
I also mentioned the terrible pain in legs and pharmacist said this is nothing to do with the brands. ( trying to fob me off I think) ! Will try my usual chemist on Monday.

Pips 

hello lovely 

I had 28 tablets in total not 28 boxes they have 18 of my brand and 10 of a mixed brand x 

love Lara ️

Pips 

Oh wow 

these are £100 a box I never knew that expensive crazy price 

love Lara ️

Hi. I started on anastrozole 3 and a half years ago and the side effects almost finished me off. As it was the pandemic and hospital appointments weren't happening I thought this was the norm. It started after about 3 months the joint and muscle pain, hot sweats, insomnia were unbearable. I got up the stairs at night by hanging on to the spindles. I couldn't walk the dog or anything else much for that matter. My oncologist listened at my first meet 17 months after surgery and just said oh that is the medication. I finally got some relief two years ago when a call for my routine mammogram I was asked was everything ok. As a result of speaking  to the receptionist my breast care nurse took me off the tablets and replaced these with LETROZOLE. She did say that as these are a member of the same tablet family I could still get side effects. I do but more tolerable. The pain isn't as aggressive, hot sweats are constant and my hair resembles a perm most mornings due to being wet with sweat. It's on off with the bed covers all night and broken sleep each night as opposed to hours of insomnia. The insomnia alone left me exhausted every morning. Pain has progressed in my hands and on researching this it can be attributed to this medication, which my pharmacist agreed with. I realise the side effects of this medication will likely range from none to severe, as I have read where patients have come off it as they were in so much pain. I can relate to this as initially I would describe it as debilitating. My nurse said it was debilitating arthralgia. I had a very positive experience with all the breast care professionals but at no point did anyone mention these side effects. Yes they are in the little leaflet in your tablet box, but I wasn't prepared for it. Life is more bearable due to listening to my body. If I do too much I suffer for a few days after. It's a bit at a time and what doesn't get done, well that's ok.

Hi there, don’t know if this will help , I’m on Letrozole ( poison I call it) and have had nearly every side effect listed. Bone pain, weight gain, hair loss , high blood pressure , could go on but won’t bore you to death! Anyway the bone pain is much better since taking Magnesium 150mgs morning & night ( check with your doc first) I take Lamberts make . I also take Pilfood for hair loss, Calcium ( at lunchtime as it counteracts the magnesium ) , Vitamin B for the hair loss . I really notice the difference if I don’t take the Magnesium , my joints & bone pain get worse. I’m also on Citalopram for hot flushes( they are a mild antidepressant but work for flushes) . Hope this helps xx

Hi. Thanks for the information. My hair was fine until I changed to Letrozole, now it's very thin on top. I have a diet high in calcium so take vit D in winter to help with absorbing this. I'll look into vit b for my hair as I was upset as it was so thick and was my crowning glory! Again I feel we have to plough through our side effects to see if letrozole is the cause then remedy ourselves or go to our GP.  

Good luck ! My hairdresser recommended Pilfood x

Hi LCR & thanks. How long have you been taking Pilfood and what make is it?  Have you seen an improvement?x

Only 4 weeks , slightly less shedding but you need to take it for 12 to notice any difference really x