Hi. It's difficult I know, but When I am feeling down I just think of the people who weren't given any options.  I think I was one of the first group  to have Letrozole prescribed for so long and As long as my dexa scans are ok (monitoring osteoporosis risk?)will probably keep on it?  Physically,  my hair is thinning a bit but generally I feel fit and healthy.  I didn't go for reconstruction as after 2 ops had had enough 'messing about'.  I was just so pleased to be rid.  It's not always easy but my husband doesn't seem to mind me being lopsided.  The remaining one is still quite attractive! I dont think he would be the person I chose to  be with if he did.  He does find my moods difficult sometimes  - can be the *** from hell, but  it's a question of weighing up your options and trying to accept it might not always be ideal.  Do ask about something to help your moods and you can also ask for help with your difficulties in the bedroom, but physical closeness and affection is important to you both.  At least you know it's not you!  Keep well and happy.

Hi Janey,

Welcome to our forum,

I just wanted to pick up on what you said about Venlafaxine. As with all anti-depressants, you cannot suddenly stop taking them, but have to gradually reduce the dosage and frequency that you take it for. If you suddenly stop or miss taking it, you will feel absolutely awful.

Kind regards,
Jolamine xx

Thank you.

xx

Thanks Janie

such wise words. It’s been so helpful being in contact with you. I’m literally just leaving home f R my first radiotherapy session. Barely slept all night but it will be good to start ticking off the number of sessions left and reclaim my life.

luckily, my husband has been incredibly supportive. His own mother had a full mastectomy and all lymph nodes removed and my mum is currently being treated for breast cancer. I have moments of total despIr when I am holding my baby granddaughter in my arms, hoping that my daughter and granddaughters don’t have to go through this. I’m having the genetic testing done because so many of my family have had cancer.

all best wishes Janie. Got to go xxx

Hi Nikki,

Thanks.

Jolamine xx

Dear Jolamine

I have been thinking of you today. Do you have any news on your results? 

All my best wishes. Please let me know how you are.xxx

love Nikki

Hi Nikki,

How did your first radiotherapy session go?

My results are still not back, so I am still playing the waiting game. I shall let you know the outcome as soon as I hear.

Kind regards,

Jolamine xx

Hi Jolamine

it must be excruciating for you having to wait so long for your results. I often think that no news is good news though and if the scan was cause for concern, the hospital would have responded more swiftly. Let’s hope and pray that you soon get a happy result. 

The radiotherapy sessions were ok. 3 down and 12 to go. I’m looking forward to February when I can reclaim my life and not have hospital visits every day. Talking to other ladies waiting for their treatment, I realise that I am so lucky that I didn’t have chemo. So many ladies are wearing turbans and scarves on their heads that I feel I have got off lightly.

i hope that you have some nice plans for the weekend to keep your spirits up Jolamine. I will be thinking of you. 

Best wishes

nikki

xxx

Hi Nikki,

I am glad to hear that your first radiotherapy sessions went well. It's hard to believe, but that's you more than ¼ of the way through already. When you start talking to others, you realise that there are many others who are worse off and, begin to feel how blessed you are, when you have got off so lightly. Here's hoping that this continues to be the case.

It's not much fun waiting for results, but I'll just have to be patient.

Kind regards,

Jolamine xx

Hi Jolamine

im just off for an early radiotherapy treatment. 

Good luck this week. I have my fingers x for you. Be brave. Xxxx

Best wishes

nikki

xxx