Hi Sally

so glad to hear that you are fine 15 years on. Do you mind me asking how old you were when you were diagnosed and why did you stop taking the Letrozole? 

All good wishes to. And wishing you continued good health

nikki

xxx

Dear Cazzy

firstly, enjoy your birthday. Celebrate well and happy birthday. Be the daylight dancer that inspired your user name. ‍♂️

I hope that you soon feel much better and my thoughts are with you.

nikki

 xxx

Hi Nikki,

I hope that your MGUS is not progressing too fast. I suppose that there could well be something in the home to cause cancer, but if there is, it must have the ability to hibernate for years before it manifests itself. My parents were separated for about 40 years before they showed any symptoms. I have been away from home for nearly 60 years, so it is hard to attribute this to the home.

I'm glad to hear that you are feeling a little better today. I suspect that you will find you have good days and bad like the rest of us.

It is good to hear that you are getting the support you need from your husband. I am very fortunate with my hubby too and, it makes all the difference to be able to move forward positively.

I shall be thinking of you this week and, I will have my fingers crossed that all turns out well for you.

Kind regards,

Jolamine xx

I'm the same. My mood is low, the pain is awful and my hair stands on end. I look like Ken Dodd on a good day. I have been on letrozole for 9 months and I have heard that a trial was done where you take 9 months of letrozole and 3 months off for better quality of life. I see my consultant on the 20th Jan, so  I'll keep you posted on what he says.

Chin up

Regards Patsy 

Thanks Jolamine

We are working hard to redecorate our bedroom so that it’s all shiny and beautiful for when I’m being self indulgent over the coming weeks. It’s been good to keep busy and take my mind off other worries. It’s good to have a focus.

good luck with your results this week and thanks again for keeping in contact.

best wishes 

nikki

xx

Dear Patsy

Good luck when you see your consultant on the 20th. I am very interested to hear the outcome.

Did you settle down on Letrozole after a few weeks? I sincerely hope that the side effects subside. The low moods are the hardest to cope with. 

Best wishes

nikki

x

Hi Nikki,

Decorating your bedroom sounds like a great way to pass your time just now.

I shall let you know when I get my results.

Kind regards,

Jolamine xx

Hi. I have now taken Letrozole for over 6 years.  I cope pretty well but it definitely affected my moods.  I am a very positive person, was always chirpy and 'seem to remember ' - 'funny' and fun.  I think it's like very serious pmt.  I take a tiny dose of anti depressant venlafaxine which just tips me back to 'normal' mood.  I get twitchy, short tempered and anxious at times and my husband often says why don't I up my dose.  I'm reluctant to do this as if I miss it, even once I feel terrible - physically dizzy etc. So it would mean I can't ever stop it.   But, it is worth taking to counteract moods and the letrozole is something I'm not prepared to stop taking  if it stops, or ups odds to stop cancer coming back.  Letrozole does affect my mood, and also creates issues with libido and other physical effects, but on balance so happy to be able to take it as a prevention measure. 

Dear Janie

I am experiencing exactly the same symptoms since taking Letrozole. I was a. Sunny happy optimistic person prior to taking this drug. Even during diagnosis and surgery I didn’t cry or get upset but since I started the drug I am like a different person. Also feeling much less tolerant of other people.

it is a comfort to me Janie to know that it’s not just me. I thank you for your honest reply. I think that I need to come to terms with the change that Letrozole has made in me. I am scared though of taking more drugs because I have become addicted to sleeping tablets since this bad blip in my life. 

How much longer will you need to take Letrozole? I hope that you can come off it soon. I was told seven years. It feels as if the drug is stealing the next few years of my life and not only have I lost my breast, but it has stolen so much that was precious to me. It really affects the relationship with our husbands and like you, I’m not feeling the desire for physical intimacy, although I know I must resolve this because I don’t want my husband to be unhappy with me.

The song “Yesterday” springs to mind. Certainly all my troubles were insignificant prior to this.

So Janie, thank you for your reply.  I take comfort that you are cancer free and that this may be attributed to continued use of this drug.

I wish you good health, happiness and long life.

all bst wishes

Nikki

xxx

Good luck xxxx