Hi Pauline

Really relieved to read your latest post and so pleased the Nurse has been and arranged new medication for you.  My Dad suffered horrendously with constipation during his cancer illness (hubby not quite so bad).  All I can say is they were both told not to force it (had they had the energy!!) and luckily eventually found the right balance with medication and an increase in liquids and fresh fruit (taken as smoothies which also helped with eating problems).  Hubby was put on steroids several times to help with appetite so hope these  help you too.  Sending big hugs and know all your forum buddies are thinking of you, just as I am.  Jules xx

Hi Pauline

Hope that the new medication does the trick  - mind you after having that bug you insides are probably all scewwiff anyway.

You are such a lovely inspiring lady and always so helpful with others on here that I just wanted to add my best wishes and hope they get you sorted out soon.

Hope the new medications do the trick, Pauline, I am so relieved that the nurse has reassured you a bit and is just on the end of the phone - make sure you do phone her if you need help!  We are always here for you too, as you always are for others. 

God bless, hope you can manage a bit of a rest now.

Love Hazel xxx

Hi Pauline have been reading a bit of this thread now and then and think your such a strong woman. Hope these new medications do the trick. Take care of your self -Diane xx

Hi Pauline, 

So glad to read you've had some reassurance from the hospice nurse. I've really built up a good relationship with mine. You are right, I did spend time in the hospice getting my pain medication sorted - two weeks in fact! I'm on a drug called Ketamine (people always associate it with vets and horses.) I'm also on Fentinyl patches (62mcg/HR)  I also take oromorph to help with any breakthrough pain amd I'm lucky, like you, that my nurse is only a phone call away and my medication can be tweaked to suit my needs. 

I'm afraid I can't help solve your constipation problems as I have a Stoma amd touch wood, it is functioning normally, unlike my bladder which is playing up at the moment! (Retention) 

Hopefully the link Jane has suggested will be of help? Plus asking the nurses? 

I saw my consultant yesterday and we are still tweaking my medication so I can a function with less drowsiness, but sadly my prognosis was not good news. Latest scans show much disease progression amd we're looking at 'timing' about going into the hospice. Meanwhile, I'm still carrying on, enjoying this spring sunshine amd making the best of every minute. 

Stay strong Pauline, I'm thinking of you amd sending lots of love, Jo xx

I think the moderators have blocked the drug name, sorry if I've contravened forum regs. x

Hi Jo

Sorry to hear your latest news.

We haven't blocked the drug name but our automatic swearword filter may have got confused!

If you get a moment you could email the drug name via the Contact A Moderator button and I could post it for you.

Sending warm wishes your way,

Jane 

Hi Jo you seem like such a strong woman and with all you have been through you still have a smile on your face. That honestly makes me bubble up because it's so lovely to read your comments  you have such a positive out look and like I said you keep on smiling and enjoying the sunshine. Take care of your self and your in my thoughts -Diane xx

Hello Jo,

I am so sorry to hear your new prognosis, you are always so caring of others yet you have so much to contend with yourself.  I hope that you can continue to enjoy the sunshine for a long time to come and your meds will keep you comfortable.  Thinking of you and sending my love, take care.

Hazel xx

Afternoon Pauline, how are you doing, darling?  I hope all the meds are working and giving you some respite,  please take care  - sending love and thinking of you as ever. 

Hazel xx