Hi Pauline,

I hope that all is okay – thinking of you. X

Hi, thanks for all your kind messages.  I have just come out of hospital for the second time, having spent 5 of the last 6 weeks there.  On the day I was supposed to leave a patient on our 4 bedded bay got a terrible vomiting and diarrheoa virus and the rest of us werent allowed to leave the bay for 18 hours.  Using the same toilet etc with our door shut to us and incomers.  I was sent home the next day and quickle discovered I had the virus too..

It has been a bit traumatic as the different antibiotics given got stronger and now my legs are numb and I am unable to function or eat.  My whole body shakes continuously too.  Am seeing hospice nurse on Monday but I feel that things are quickly going downhill for me now.    I have been given a great deal of morohinein all its forms, slow release, Oromorph etc etc which keeps me asleep the majority of time.

Is this howit is supposed to be - I feel so confused!I

What a brave wonderful lady you are.

Sending love and very best wishes to you.  xxxx

My dear Pauline, I am so, so sorry that you have to go through all this.  I hope you are not on your own at home, you need to be looked after, not struggling alone, and Monday seems a long way off.  If you still feel so bad, why not phone the hospital or hospice now?  I am so worried about you, especially as I know from experience how groggy and confused morphine can make you. 

God bless, hugs and love, Hazel xxx

Hi Pauline.

Keeping you in my thoughts.  Really sorry that you caught the virus whilst in hospital and can imagine that you feel pretty low right now.  When hubby was on various morphine medications there were a few different side effects and he was 'switched' several times to try and alleviate them.  As Hazel has said I really hope you are not home alone as you should be having care to manage your symptoms.  Try and give the hospice a ring as they are available 24/7 and should be able to arrange a visit asap(or have you in for monitoring) - waiting till Monday I  feel is too long when you feel confused and unable to function properly. I know it varies from area to area bu hubby had community nurses four times a time to keep an eye on him  (he did not want hospice care) and I had a phone number to ring whenever I was concerned (though he never wanted me to bother them!!)  I hope you see someone soon. Sending hugs as this very difficult time.  Jules xxx 

Hello Pauline, my love, how are you today?  A bit better I hope, but if not please call somebody - I just wish I could be there for you!  

Love Hazel xx

Hello Hazel and everyone with your lovely comments and help, yes I am alone because the hospital wont tell me what the virus was so I cant have people in the house just in case it is c-Dif.    I have been spending most of my time in bed asleep with the help of morphine to take away the pain.  I am speaking with the hospice nurse tomorrow to see where I go from here.  My family have been bringing in food, which I really cant eat, but I am so grateful to them for.  Each day I think I will be able to walk or stand easier but no such luck. Well, I must stop moaning, there are too many out there with worse things to bare.  Love to you all.

Hello Hazel and everyone with your lovely comments and help, yes I am alone because the hospital wont tell me what the virus was so I cant have people in the house just in case it is c-Dif.    I have been spending most of my time in bed asleep with the help of morphine to take away the pain.  I am speaking with the hospice nurse tomorrow to see where I go from here.  My family have been bringing in food, which I really cant eat, but I am so grateful to them for.  Each day I think I will be able to walk or stand easier but no such luck. Well, I must stop moaning, there are too many out there with worse things to bare.  Love to you all.

Maybe there are, but not many I think, Pauline.  I am glad that your family are able to see you and keep an eye on you at least, even if you cannot tolerate any food they bring.  I pray that the nurse comes early tomorrow so some action can be taken - meanwhile please, please be careful when you try to stand/walk, especially when using the toilet as no doubt you have to if it's C/Diff or something similar.  

Sending my love, God bless, keeping you in my thoughts.

Hazel xx

Hi Pauline,

Hope the nurse can help you tomorrow and whilst there might be other going through hell you are still enormously brave and ever thoughtful of others despite your own predicament just now.  Glad the family can pop round even if you cannot manage the food they bring.  Don't hold back on how you are feeling when the nurse comes as I am sure there will be a way they can help. 'Isolation' is all very well, because of the rotten bug you have caught, but you can and should still be able to access medical assistance. My thoughts are with you lovely lady.  Hugs, Jules xx

Dearest Pauline, 

You are certainly not moaning so stop that thought now! I can only echo the concern that the others have posted. I'm so sorry you're alone, but glad your family are supporting you with food. 

I've not been on the forum lately, but still think about everyone each day, and their daily struggles! 

Pauline, you are such a strong, inspirational woman. I'm sending lots of love and massive hugs through the airwaves. Keep posting sweetheart and let us know how you're doing. 

Take care, much love, Jo xxx

What helps?  I suffer terrible constipation which hurts so much.  Whilst in hospital they gave me 6 enemas, none of which worked, with senakot, laxeido etc. The pain makes me sick.How is your pain, Jo, I think you spent some time in a hospice getting control of it, didnt you?  I shall ask the nurse and really hope she has some answers.  x

Hi Pauline4

We have some information here on constipation which may be helpful to you.

Do post in our Ask The Nurses section too if you would like our team to give you any advice at any time.

Thinking of you,

Best wishes

Jane

So sorry for your pain, Pauline, I only hope Jo or the nurse have an answer for you.

God bless, thinking of you all the time. 

Hazel xxx

Nurse just left, so helpful.  Gave me a list of medication which she is dropping off at doctors for me.  Starting from scratch, but with some extras like steroids for a couple of weeks (to help with eating), and advice on lots of other things. feel a bit more confident nowshe said the body tremors were probably a nerve that is being squashed and may or may not right itself.. I will see her next Tuesday for an update but she is on the end of a phone anyway..  

Thank you all for your kindness, advice and for just being there.    I really appreciateit. xI

Hi Pauline

Really relieved to read your latest post and so pleased the Nurse has been and arranged new medication for you.  My Dad suffered horrendously with constipation during his cancer illness (hubby not quite so bad).  All I can say is they were both told not to force it (had they had the energy!!) and luckily eventually found the right balance with medication and an increase in liquids and fresh fruit (taken as smoothies which also helped with eating problems).  Hubby was put on steroids several times to help with appetite so hope these  help you too.  Sending big hugs and know all your forum buddies are thinking of you, just as I am.  Jules xx

Hi Pauline

Hope that the new medication does the trick  - mind you after having that bug you insides are probably all scewwiff anyway.

You are such a lovely inspiring lady and always so helpful with others on here that I just wanted to add my best wishes and hope they get you sorted out soon.

Hope the new medications do the trick, Pauline, I am so relieved that the nurse has reassured you a bit and is just on the end of the phone - make sure you do phone her if you need help!  We are always here for you too, as you always are for others. 

God bless, hope you can manage a bit of a rest now.

Love Hazel xxx