Today the hospice nurse visited!

It was with mixed emotions that I saw the hospice nurse today.  

As I live alone I have decided that I will end my daysin the local hospice and the wonderful nurse was so helpful.  She will be coming back next week and has given me homework - put my affairs in order by the time she comes again.  She is organising prescriptions for all the things I now have to buy myself, a wrist alarm in case I need help, visits to complementary therapies at the hospice and attendace allowance.  She said I can go to their daily get togethers where they do art classes etc with lunch.  She put my mind at rest with the pain relief saying that if it gets too bad they will take me in for a week and sort me out.

I just have to say how relieved I am, and can now stop crying wondering what was going to happen to me.

Parents
  • Hi Pauline,

    I hope that all is okay – thinking of you. X

  • Hi, thanks for all your kind messages.  I have just come out of hospital for the second time, having spent 5 of the last 6 weeks there.  On the day I was supposed to leave a patient on our 4 bedded bay got a terrible vomiting and diarrheoa virus and the rest of us werent allowed to leave the bay for 18 hours.  Using the same toilet etc with our door shut to us and incomers.  I was sent home the next day and quickle discovered I had the virus too..

    It has been a bit traumatic as the different antibiotics given got stronger and now my legs are numb and I am unable to function or eat.  My whole body shakes continuously too.  Am seeing hospice nurse on Monday but I feel that things are quickly going downhill for me now.    I have been given a great deal of morohinein all its forms, slow release, Oromorph etc etc which keeps me asleep the majority of time.

    Is this howit is supposed to be - I feel so confused!I

  • What a brave wonderful lady you are.

    Sending love and very best wishes to you.  xxxx

  • My dear Pauline, I am so, so sorry that you have to go through all this.  I hope you are not on your own at home, you need to be looked after, not struggling alone, and Monday seems a long way off.  If you still feel so bad, why not phone the hospital or hospice now?  I am so worried about you, especially as I know from experience how groggy and confused morphine can make you. 

    God bless, hugs and love, Hazel xxx

     

     

     

  • Hi Pauline.

    Keeping you in my thoughts.  Really sorry that you caught the virus whilst in hospital and can imagine that you feel pretty low right now.  When hubby was on various morphine medications there were a few different side effects and he was 'switched' several times to try and alleviate them.  As Hazel has said I really hope you are not home alone as you should be having care to manage your symptoms.  Try and give the hospice a ring as they are available 24/7 and should be able to arrange a visit asap(or have you in for monitoring) - waiting till Monday I  feel is too long when you feel confused and unable to function properly. I know it varies from area to area bu hubby had community nurses four times a time to keep an eye on him  (he did not want hospice care) and I had a phone number to ring whenever I was concerned (though he never wanted me to bother them!!)  I hope you see someone soon. Sending hugs as this very difficult time.  Jules xxx 

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  • Hi Pauline.

    Keeping you in my thoughts.  Really sorry that you caught the virus whilst in hospital and can imagine that you feel pretty low right now.  When hubby was on various morphine medications there were a few different side effects and he was 'switched' several times to try and alleviate them.  As Hazel has said I really hope you are not home alone as you should be having care to manage your symptoms.  Try and give the hospice a ring as they are available 24/7 and should be able to arrange a visit asap(or have you in for monitoring) - waiting till Monday I  feel is too long when you feel confused and unable to function properly. I know it varies from area to area bu hubby had community nurses four times a time to keep an eye on him  (he did not want hospice care) and I had a phone number to ring whenever I was concerned (though he never wanted me to bother them!!)  I hope you see someone soon. Sending hugs as this very difficult time.  Jules xxx 

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